Search found 17 matches

by PCUK Nurse Chris
Tue Jul 11, 2017 2:37 pm
Forum: Advanced pancreatic cancer
Topic: Experiences without treatment
Replies: 4
Views: 10154

Re: Experiences without treatment

Hello Anthony, Thank you for posting on the forum. On behalf of the charity i would like to say how sorry we are to hear of your diagnosis. The decision as to whether to undergo active treatment is always a difficult one and will be different for each individual. There is no right answer. It really ...
by PCUK Nurse Chris
Thu May 18, 2017 5:11 pm
Forum: Patient Experience Forum
Topic: Jane's story
Replies: 30
Views: 40061

Re: Jane's story

Hello Jane, Welcome and thank you for taking the brave step of posting on the forum. I appreciate how difficult this can be sometimes. I wanted to take the time to introduce our service. This is a free service that is available from 10am - 4pm, Monday - Friday (apart from Public holidays). It is run...
by PCUK Nurse Chris
Thu May 18, 2017 5:04 pm
Forum: Advanced pancreatic cancer
Topic: Metastatic adenocarcinoma
Replies: 19
Views: 25251

Re: Metastatic adenocarcinoma

Hi Channers, Welcome to the forum. I think most of the previous posts have already covered the questions you raised but I thought I would also reply to you. Each person diagnosed with this tough disease will have a different journey and their treatment and care will be individual to them. This makes...
by PCUK Nurse Chris
Fri Mar 24, 2017 5:08 pm
Forum: Advanced pancreatic cancer
Topic: aphthous ulcer
Replies: 9
Views: 13057

Re: aphthous ulcer

Hello Kate, I'm sorry to hear of dad's symptoms. Nearly 3/4 of cancer patients will suffer with oral problems and can find it impacts on their life. It would be worth referring to dad's GP or specialist to investigate why they are persistent if not already done so. He may benefit from topical cortic...
by PCUK Nurse Chris
Mon Feb 13, 2017 6:54 pm
Forum: Family, friends and carers
Topic: Thank you and our story... but we are not that far yet!
Replies: 433
Views: 143862

Re: Thank you and our story... but we are not that far yet!

Dear Leigha, We are so sorry to hear of your dad's passing. As others have said on this forum, you did everything possible to help your dad in fighting this terrible disease. On behalf of all the nurses, and the wider charity, we would like to express our sincere condolences to you and your family. ...
by PCUK Nurse Chris
Wed Nov 16, 2016 4:28 pm
Forum: General chat
Topic: Food and eating
Replies: 5
Views: 10398

Re: Food and eating

Hello Fraz, Thank you for posting on the forum and we are sorry to learn of your diagnosis. We appreciate how difficult it can be coming to terms with a diagnosis such as yours and trying to get good control of the symptoms. Pancreatic cancer can lead to difficulty with the digestive system causing ...
by PCUK Nurse Chris
Mon Nov 07, 2016 4:27 pm
Forum: Family, friends and carers
Topic: Help for my sister please
Replies: 25
Views: 17812

Re: Help for my sister please

Hello George, I am sorry to learn of your sister's symptoms and appreciate what a worrying time this must be for her and all her family. I am emailing you directly so that you have an email containing information that will hopefully prove useful to you and your sister. Kind regards Chris Pancreatic ...
by PCUK Nurse Chris
Wed Aug 10, 2016 4:57 pm
Forum: Family, friends and carers
Topic: Our Journey without chemo
Replies: 261
Views: 87019

Re: Our Journey without chemo

Hello Marmalade, Reading your posts and I just wanted to say that all of us in the support team are thinking of you during this tough time that you are all going through. It is so difficult to see loved ones in what could be a distressing state. If you think there are any symptom issues that are unr...
by PCUK Nurse Chris
Mon Aug 01, 2016 3:34 pm
Forum: Advanced pancreatic cancer
Topic: My Mum, My World, Stage 4 PC
Replies: 16
Views: 23384

Re: My Mum, My World, Stage 4 PC

Hi Julie, As others have already said welcome to the forum and i am sorry you find yourself in this situation. I hope being on this forum leads you to getting the support and help you need. I would also like to take this opportunity to introduce our service. This is a free service that is available ...
by PCUK Nurse Chris
Mon Jul 18, 2016 2:36 pm
Forum: Treatment & side effects
Topic: Chemotherapy dose reduction protocols
Replies: 8
Views: 13244

Re: Chemotherapy dose reduction protocols

Hello W and M and fellow forum users, Sorry for the delay in getting a response to this post. I wanted to approach some clinicians to gauge their opinion on this topic. In answer to your question I think this topic can be a little confusing and can be open to interpretation by different clinicians. ...
by PCUK Nurse Chris
Wed Jun 29, 2016 1:52 pm
Forum: Treatment & side effects
Topic: Chemotherapy dose reduction protocols
Replies: 8
Views: 13244

Re: Chemotherapy dose reduction protocols

Hi W&M, Thank you for your post asking about hospital protocols on when to give chemotherapy. We are always glad to try to answer any queries that are forum users have. In this circumstance it is difficult for us to comment on why individual NHS hospital trusts have variations in their guidance on w...
by PCUK Nurse Chris
Fri Jun 24, 2016 12:19 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 178023

Re: Mum of 42 recently diagnosed inoperable PC

Hi Ruth, Thanks for keeping us updated on your treatment and care and providing your story for others to read. We are glad to hear that you returned from Germany safely. It is positive that you are receiving input from specialists, such as the stoma nurse, to manage some of the complications that ha...
by PCUK Nurse Chris
Tue May 31, 2016 11:33 am
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 178023

Re: Mum of 42 recently diagnosed inoperable PC

Great to hear your news Ruth and wishing you a speedy recovery

from all at Pancreatic Cancer UK
by PCUK Nurse Chris
Tue May 31, 2016 11:22 am
Forum: Patient Experience Forum
Topic: My Journey So Far
Replies: 215
Views: 122545

Re: My Journey So Far

On behalf of the nursing team and all the staff at Pancreatic Cancer UK, we would like to offer our heartfelt condolences to you all at the sad passing of Mark. Mark was an inspiration to many through his blog and forum posts. He eloquently and sensitively detailed the emotional journey of experienc...
by PCUK Nurse Chris
Fri Apr 22, 2016 12:44 pm
Forum: Family, friends and carers
Topic: Dealing with Mum's diagnosis...
Replies: 73
Views: 41021

Re: Dealing with Mum's diagnosis...

Hi CLM, Thank you for keeping us updated on your mum and sorry to hear some of the issues she has had in relation to her illness. Some pain associated with pancreatic cancer can be neuropathic in nature (nerve pain) and is due to the pancreas sitting in front of a bundle of nerves called the coeliac...

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