Thank you for your query and pleased you felt able to ask this. The foul smelling wind and burps are often a sign that you are not taking enough Creon.
You highlight a concern we often hear about. When patients are started on Creon, the suggestion is for 2 with a snack and 2-3 with a main meal as a starting dose. A starting dose is usually for the first few days to become accustomed to taking this, and also start to increase your appetite. Then the Creon should be increased. You may be aware that foods that are higher in calories and fat will require a higher dose of Creon as the fats are the most difficult food to break down.
Also this should not be a static dose, some meals will require more Creon than others, one example we use is lean chicken and salad will not require as much Creon as fish and chips.
It sounds that you may benefit from an increase your Creon dose Nellie656, however please do feel free to give us a call or email on our contact details below if it would help to talk through this. You are correct that there is no upper limit of Creon that can be taken, however if taking very large amounts of Creon with meals and still struggling with symptoms, an assessment would consider other factors that may be causing the symptoms.
I hope this is helpful and please do not hesitate to be in touch with us if we may help.
Pancreatic Cancer Specialist Nurse
Pancreatic Cancer UK
Support line - 0808 801 0707 (M-F 10-4pm)