Forums
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Forums
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- 339
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- ‘Ask a Dietitian’ webinar Tuesday 19th March, 5.30pm — 7pm
- By Support Team,
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- 4.8k
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- Pancreatitis after FNA biopsy
- By RuthN,
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- 12.5k
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- Our short journey
- By norty14,
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- 1.8k
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- General health
- By Luke1971,
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- 6.2k
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- Chemoteraphy trial for stage 4 PC PRIMUS 001
- By sanita,
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- 2.2k
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- Can't get away from the Concern.
- By AcrossthePond,
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- 832
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- Trauma
- By Thesea,
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Recent Posts
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By RuthN · Posted
Hi, I’m Ruth. This is my first post I don’t yet have a diagnosis. I’ve been offered an EUS, endoscopic ultrasound with a fine needle biopsy of a cyst in the tail of my pancreas. I was told there’s a risk of pancreatitis after this but I wasn’t given any other information about that. So my questions are does anyone have experience of this? How soon after the procedure do you know you’ve got it, what’s the treatment, does it get better or is it permanent, and if it does resolve, how long does that take? Does it mean being in hospital? This cyst was an incidental finding, I am 81 and really well. I just can’t decide whether to pursue this or not. would value all opinions please. -
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By Luke1971 · Posted
Is anyone else experiencing major problems getting hold of Creon? There have long been slight issues, but the 25000 capsules have been unavailable nationally since mid-February 2024. I am assured that this won't be forever - and I can usually track down the 10000s - but it is a hugely worrying problem for those of us who need this for the rest of our lives and can't eat without it. Any tips gratefully received. -
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By Thesea · Posted
While I'm not sure if it is possible to really 'come to terms' with someone we love having a terminal disease, 11 weeks really sounds too short a period of time in which to even start doing that. The Hospice offered me counselling. I haven't taken up the offer as yet but am keeping it in mind. Do you think that might possibly help you a bit? -
By rhi · Posted
I feel the same. Still functioning, empty. Low energy and waiting on a tsunami coming which hasn’t hit yet. It’s such a strange feeling when you have loved someone so so much. Like you expect more already. Where is it? When will it come? -
By rhi · Posted
Thanks to you both for responding. My beautiful Mum passed away on the 28th March. 1 day short of 11 weeks from her diagnoses. The last week was horrific. She suffered a stroke, her second in as many weeks. They said the best thing to do was make her comfortable and I just don’t think she was, definitely not at first. We were never advised of the risk of strokes or, what it would have meant when they said they could make her comfortable. It was just horrific. They could have prepared us by having frank discussions but they didn’t. I suppose im just looking for an outlet. The reality hasn’t set in. It’s beginning to. I can’t begin to comprehend life without her but I have to. I just can’t believe she’s gone. It’s like I can and I can’t at the same time. I know it’s happened it’s just so unbelievable. I suppose I don’t know how to feel or who to talk to. I’m sick of crying. It’s just so heartbreaking for everyone: so bloody unfair. Everything just happened so fast. I’m so sorry you both had to go through this awful disease. It’s the worst. 💔 -
By Luke1971 · Posted
Hi - although I didn't have PC, I had the Whipple last summer, and my six months of FOLFIRINOX finished seven weeks ago. It sounds like I'm about six months behind you. From what I can gather, it's really hard to generalise - although I can personally say that, today, the fatigue is as bad as it's ever been. I also still have peripheral neuropathy in my fingertips. I've not had sickness like you, though. Are you able to ask a professional? Sorry not to be more helpful. -
By Cheshireboho · Posted
Hi , I was diagnosed withPC in November 22, I had a whipple followed by Folforinox for 6 months . All scans bloods good . I still have some pain and have days when I am tired and feel slightly sick . Is this normal? I know I’m lucky to have got this far . I was stage 1b no lymph nodes no metastases. -
By Thesea · Posted
I kind of understand what you mean when you say you want to feel really sad. Sadness is so distinctive, it takes over and you just function on a basic level at best but at least you know where you are and it can seem like you're showing your love & respect for the person you've lost. But I guess that when you're used to coping, getting by, trying to 'act normal' for someone who was suffering, you're not going to suddenly collapse in a heap. Maybe one way of looking at it is that you were used to getting by just fine when your partner was alive. And that shared habit continues which would be a way of honouring him and you will cry again when the time is right.
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