Ask the nurse
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- 18
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- Out patient appointment
- By whykel,
41 topics in this forum
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Confused about diagnosis
by Guest Helenm74- 4 replies
- 2.5k views
Hello. I found this site while trawling the internet for answers and I've read a few posts, my heart goes out to everyone. My dad had a laparoscopy yesterday, not the first diagnostic procedure as he's also had endoscopy, colonoscopy, another endoscopy with biopsy taken, ct scan and pet scan. The endoscopy with biopsy came back inconclusive so they did a pet scan and yesterday the laparoscopy where they took more biopsies. I should also say that the mass on his pancreas was first spotted 3 years ago when he was diagnosed with stage 2 bowel cancer (operation and chemo and seemed ok). Tests on the mass started end of summer last year when the consultation told him he …
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Pancreatic cancer stage
by Sangavasre- 7 replies
- 4.6k views
Hello, I had Wipple surgery one year ago. Post surgery I have a many complications like leak in connection so I had gone through double surgery within a week. After that I had 3 times bleeding and one month high fever. But some how I have survived my surgeon said I am very lucky. Post surgery my biopsy report came It's T2N0Mx stage. My DR said it's in early stage no need of chemotherapy. Is it's good I don't need chemotherapy. Please advice me
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Nutrition
by Jamie- 1 follower
- 2 replies
- 1.3k views
Hi, i need some information about nutrition for my mum, she was diagnosed stage 4 inoperable in mid September, she's been losing weight since june and really rapidly since diagnosis. She's now afraid to eat because of the pain and acid reflux she gets. She's also a bit 'difficult' and set in her ways when it comes to eating . She told me her nutritionist said she could eat anything but when I've looked online for suitable diets for people with pancreatitis or pancreatic cancer it generally says otherwise. She's received some food supplements in the form of puddings which she has around 2 of each day. She has also been prescribed creon, but because she suffers chronic pai…
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- 2 replies
- 2.1k views
Hi there, My mum is 18 days post whipple surgery. She was re-admitted to hospital 15 days post op as she hadn’t had a bowl movement since the surgery. She has since had one and is now home. They did a CTscan and found no blockages and no major leakages to cause concern. She is slowly regaining mobility however is extremely fatigued and her mood is very, very low. She has had a few bouts of vomiting with no nausea and now we are only using ondansetron as and when needed. She has almost completely lost her appetite and I’m struggling to get her to eat and drink enough fluid. We want to avoid another hospital stay and tube feeding at all costs. She won’t takenEnsure…
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Scary times
by Vanessa W- 3 replies
- 9.2k views
My husband has been diagnosed with Pancreatic Cancer with mets to the Liver. He's only 59 and in all other regards has been very fit and healthy thoughout his life. We are all so shocked at his diagnosis and most anxious that after almost 3 weeks in hospital, he is now awaiting his stent to be ballooned as it was felt it hasn't opened fully. His bilirubin levels have dropped now as the jaundice has subsided. He has a small blockage to the stomach which presumably is where the tumour is pressing so is awaiting a small bypass operation. He is nil by mouth at the moment and is being fed by food bags intavenously. He's so tired all the time from being on a low level morphin…
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feeling desperate
by thomasdowd- 2 replies
- 1.7k views
I have continual trips to the toiletbafter eating which is unresolved over12 weeks . this means \icannot start chemo and \iam basically house bound. I can see no light at the end of the tunnel and I am very depresseed and running out of options. anyone one line to talkto
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I don’t know what to do
by Guest JustMe1985- 4 replies
- 2k views
I came home from prison last October I weighed 190 lbs my waist was a 36 now I’m under 125 lbs my waist is smaller than a 24 I fit in kids clothes again I cannot eat but two bites of food I’m sick an in pain my skin is paper thin I’m extremely tired and always in pain with my stomach still losing weight can’t eat I’ve had blood tests I’ve had colonoscopies endoscopies an an ultrasound they found that My bile ducts are dilated but claim that’s all they can see an they cannot find what’s wrong with me I really feel like it’s some type of cancer someone please help me I on rinks how much more I can take if being this sick with no answers an the doctors think I’m crazy
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Picc line
by jennypennyroll65- 1 follower
- 3 replies
- 4.7k views
Hi there..I was diagnosed with pancreatic cancer and liver mets last September 2019. Happily I'm still here! I had 12 cycles of Abraxane and Gemcitabine on a trial which didn't do much. I've had 10 cycles of Folfirinox which has been very successful. I have low volume stable disease on my last ct scan 2 weeks ago. My tumour markers have dropped dramatically too. I now have 2 months off treatment. My only wee problem is since my picc line was removed Ive noticed the veins around my picc line are a bit more swollen. I've had a scan and doppler which were fine. Has anyone else had this problem?
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Prostrate
by Jess- 1 reply
- 2.4k views
Hi my husband has stage 3 PC.. He's had a whipple and is waiting for chemotherapy.. Recently he has started having problems urinating.. Increased frequency and slow/stop start flow.. He had a sample taken and is clear of infection... Could this be related to his cancer... Or a result of being catheterised!?.. I have a niggling fear of it having already spread.. But I don't know if I'm being overly anxious... Any advice would be great. Jess
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Terrible pain, post whipple.
by Jess- 2 replies
- 3.1k views
My husband had his whipple proceedure two weeks ago.. He's home but in severe, constant pain.. He's on codine, and two lots of morphine... Is this normal.. He doesn't have an infection..
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Thoracic, abdominal and pelvic CT Scan
by BertDeBlert- 2 replies
- 2.5k views
Hi all, I recently had these results back from a diagnostic CT Scan, Examination Title: CT Chest, Abdomen and Pelvis Clinical History: Symptoms of lower chest and abdominal pain without any significant cause. Findings: Normal lung parenchyma with no masses, nodules or areas of opacification. Pleural spaces are clear. Normal proximal airways. No enlarged supraclavicular, axillary or mediastinal lymph nodes. No pericardial effusion. Liver is of normal size with no focal defect. Normal gallbladder, pancreas, spleen, adrenals and kidneys. The large bowel has a normal appearance. Normal appendix identified separately. Normal small bowel. No free flu…
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Can PC cause pressure near spleen?
by Cdcmoon- 2 replies
- 2.6k views
Can PC or pancreas issues cause pressure near spleen? I have such a heavy pressure in my back around that area. I had ultrasound and they said spleen appeared normal. Just feel like a ball is in my body.
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- 14 replies
- 27.3k views
Hi, new to the site and forum so I hope I have landed in the right place. I am a fit and well 50 years young mum of 3 (youngest is , working full time. So I am used to being busy and getting on with things, but after suffering increased episodes of abdominal pain I ended up in A&E at the end of May. Following x-Rays and a CT they told me I had a "well defined mass in the pancreatic head and uncinate process measures 45 x 35mm with central enhancing solid mass and surrounding cystic component with peripheral dystrophic calcification". They also mentioned gross dilation of the pancreatic duct and differential diagnosis IPMT vs mucinous cystadenocarcinoma. At t…
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Creon
by StPancreas- 9 replies
- 20k views
Hi, My Mum was put on Creon on diagnosis but still has loose floaty,fatty poo. We have upped the doses and she is having to 4/5 x 25000 with a main meal ( child portion) and 2/3 with snacks. Currently takes it with first mouthful - but it is often the second as she forgets. She had an endosopy in May which identified she has a cup and spill, or cascade, stomach and I think this may be causing an issue. Basically her stomach has a shelf and food gets stuck on the shelf until it overflows into the bottom of stomach. I think the creon might be getting stuck on her shelf and therefore not able to help as much as it should. Does anyone take Creon part way through t…
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Help - scared
by Beans- 3 replies
- 9.6k views
Hello, Not sure where to turn so decided to post here. Just feel scared and lost, and have convinced myself I have PC. Doctor just laughed and said I didn't. Have been feeling unwell for over a year. Had blood tests, ultrasound on my abdominal area and told all fine just gastritis. Have been prescribed 2 types of antacids ( now randitidine) which don't make much difference. Have stools that range from diarrhea, light/pale coloured or small pencil shaped. 99% time float and always appear greasy. I can't remember when they were last even nearly normal. Have really bad wind, gurgling in stomach upper and lower. Pain/pressure below right rib. Also feels like …
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Pancreatic upper pelvic pain
by Guest Rlewis- 1 reply
- 11.3k views
What is the best treatment for moderate pelvic pain with stage 4 cancer with mets to the liver. I’ve ftried ibguard, simethicone, dicyclomine and antiinflammatory drugs like naproven and omeprazole, they help some but it never goes away. i will be having yttrium radioembolization to the liver mets next week.
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Main branch IPMN
by Pam35- 1 reply
- 11.5k views
My husband has been told that he has MB - IPMN but no signs of cancer, which of course we are very relieved about. He has been advised to have a total pancreatectomy. Is this normal procedure when there is no sign of cancer? What are the chances that this is a misdiagnosis? Is it possible to monitor changes in the pancreas on a yearly basis ? Or is this too risky? If he does not have the operation what are the chances that it will become cancerous? Is it necessary to have his gallbladder and spleen removed? Reading this forum has made me realize that we are in a very fortunate position. Grateful for any advise
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Pet Scan for Type 3C
by The_petal- 1 reply
- 13.8k views
Big cock up with my PET scan today. When I got the phone call yesterday for a PET scan at 4.00 today I was told not to eat or drink after 12.00 and that my blood sugar had to be below 11.0 So at 11.30 I had a cappuccino and checked my blood sugar which was 11.2 so at 12.30 I had a couple of units with the novarapid just to make sure my blood sugar would be OK for the scan. When I got there they wouldn't do the PET scan because I had had a milky coffee and the Insulin injection without food less than 4.00 hours before the scan! No one had mentioned anything about not injecting prior to the scan although I had said at the time of the appointment I was diabetic. Wha…
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Newly Diagnosed
by Guest RoseP- 1 reply
- 11.5k views
Hi My sister, 44, has just been diagnosed with stage 1/2 pancreatic cancer. I have a whole raft of emotions - I feel angry mostly, and go from deep sadness at what she leaves behind (a 10 year old daughter and a loving husband) and what she will miss, to optimism and hope. Sometimes I even feel tremendous guilt as if this shouldn't have happened to her and it should have happened to me. She is the most beautiful, loving person who has had a tough year and this has capped it all off in a brutal way. One of the things that is also on my mind is the possibility I may develop it too...particularly when my kids are asking if it's genetic/hereditary. None of my family…
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Enlarged peri-pancreatic lymph node found. Reason for concern?
by Guest Hopeful- 1 reply
- 9.3k views
Hi, My mother (71 years old, otherwise healthy) just had an ultrasound because she went to the doctor describing some tenderness in her side that she was concerned about. The ultrasound came back as finding one enlarged peri-pancreatic lymph node. The doctor said they would follow up with another ultra-sound in 3 months. Is this a sign of pancreatic cancer? Also, is pancreatic cancer hereditary?
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Usual waiting times for procedures
by Guest Robette- 20 replies
- 41.6k views
Hi sorry I. M new to this. I was admitted to hospital on monday with suspected appendicitis but that was ruled out after an ultrasound showed a 4cm cyst in the head of my pancreas. This was confirmed with two contact CT scans. My blood were ok no cancer markers and my liver and kidney function is normal. I have been referred to a GI MDT team and they discussed my case yesterday. A nurse rang and told me they want to see me again to explore further and I will get an appointment in the post but probably won't be before xmas. Is this waiting usual? I have been driving myself crazy googling everything I am 43 mother of four and work full time usually totally fit and well …
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**Help**
by Gemma83- 5 replies
- 11.2k views
Hi All This is my first time posting. A little about our situation - My mum has recently been diagnosed with Cancer. The cancer she has is a mass surrounding the major blood vessels near the pancreas (inoperable). This falls under PC. She is doing amazing, I'm so proud of her. However she is suffering really really bad with diarrhoea. This has been going on for months to the point now she's not eating because of it. We were given Creon tablets 25000 and she's tried those. They suggested she might not be taking enough and you cannot overdose on them. She can take 20 a day and it makes no difference if anything worse. She was prescribed Loperamide tablets (d…
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treatment confusion
by plastics- 1 reply
- 7.8k views
Hi all, i am new to this blog and i hope you may be able to help. My Father was diagnosed around 5 weeks ago with PC, he was screened prior to xmas with gallstones and was awaiting treatment. He became jaundiced and his GP sent him to A&E. A scan was done which showed swelling in the bile duct,two days later he had a plastic stent fitted and scrapings taken for analysis. His bloods were improving as the stent seemed to be doing its job,the next day a specialist nurse came to see dad to tell him the cells were cancer and he had three options, surgery,chemo or do nothing,as you can imagine we were all very shocked. Two days later Dad was discharged and we waited…
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Unsure diagnosis
by Soo123- 2 replies
- 9.7k views
Hi I’m Sue and not posted since last year , it’s been a frustrating few months , as I began having middle abdominal pain last October and I was sent for a CT scan with constrast by my GP on November 1st . It came back with a small cyst in th uncinate process of the pancreas and was told it was nothing to worry about . But because my pain didn’t go away I was sent to see a Pancreatic surgeon on December 20th who said that there was nothing to concern him and the pain wasn’t coming from the pancreas , but would see me again in 6 months for a follow up MRI scan , which was reassuring. He referred me to a Gastroenterologist who he said was very good at finding difficult diagn…
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Extreme Exhaustion
by vickif- 4 replies
- 12.8k views
My husband was diagnosed with liver mets on the 13th Dec and subsequently with PC on his birthday the 15th Jan. We await a liver biopsy and decision as to what and if he will receive chemo. In the meantime my husband is severely tired and it is an effort for him to even walk to the toilet. He sleeps at night and most of the day and when awake can barely lift his head. Is this the cancer or something linked. He's been given 9 months to 2 years as a prognosis. Please help x
