Take part in live Q&As with our Pancreatic Cancer Specialist Nurses
Forum rules
Please see the messages in our "Rules" section
Maryjd
Posts: 1
Joined: Wed Oct 10, 2018 1:50 pm

Pancreatic cancer with lung secondaries

Postby Maryjd » Thu Oct 11, 2018 1:02 pm

Hi there,
My sister in law (aged 48) was diagnosed with a pancreatic tumor back in June with secondary lung cancer. Thankfully it hadn't spread to anywhere else but was quite bad in the lungs. She was started straight away on Folfirinox. After 6 rounds her ct scan showed a reduction in the pancreatic tumor but no real improvement in the lungs even though her physical symptoms seemed to suggest an improvement (less coughing and less need to use oxegen). The oncologist is flummoxed as he says he has never seen anyone present with only secondaries in the lungs when the primary cancer is in the pancreas. She started into another 6 rounds of Folfirinox at the beginning of September and two weeks ago had a lung biopsy from 3 places. Since the surgery her lungs have badly deteriorated and she is back using oxegen almost full time. The oncologist has now made the decision to change the chemo to weekly doses of abraxane gemcitabine to try and help the lungs improve but keeps reiterating that they've never seen a case like this before. I'm just wondering if anyone has any similar experience of pancreatic cancer only having spread to the lungs?
Kind regards,
Mary

PCUK Nurse Rachel R
Posts: 28
Joined: Thu Jan 25, 2018 10:52 am

Re: Pancreatic cancer with lung secondaries

Postby PCUK Nurse Rachel R » Fri Oct 12, 2018 12:02 pm

Hi Maryjd

I'm Rachel, one of the nurses that works on the support line. I just wanted to respond to your post to welcome you to the forum, I do hope that you'll find valuable support here.

I am sorry to hear of your SIL's diagnosis of pancreatic cancer, I imagine this must be a very anxious time for you all.

We do often hear of pancreatic cancer spreading to the lungs unfortunately so I'm not completely clear in what context your SIL's Oncologist is speaking. If you did wish to chat about this a little further then please don't hesitate to give us a call - details are in the signature below, you're also very welcome to email also.

I do hope that your SIL's condition improves soon.

Kind wishes,
Rachel

Rachel Richardson
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Veema
Posts: 503
Joined: Mon Feb 02, 2015 5:35 pm

Re: Pancreatic cancer with lung secondaries

Postby Veema » Sat Oct 13, 2018 8:54 pm

Hi Maryjd

My husband's cancer spread to the lungs initially. It was a good few months before it spread elsewhere. I hope the new regime helps.

Vx