A forum for advanced pancreatic cancer issues

Moderator: volmod

Forum rules
Please see the messages in our "Rules" section

The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice
jenrich123
Posts: 1
Joined: Fri Mar 30, 2018 8:21 am

My mum diagnosed with pancreatic cancer and liver mets after a DVT

Postby jenrich123 » Wed Apr 11, 2018 2:08 pm

Totally in shock after this diagnosis.
My mum is well at the moment, had no symptoms apart from DVT.
It is such a shock for the whole family. My gran (her mum) is 86 so this was completely unexpected as my mum is only 66.
Due to see oncologist at end of week.
Can anyone recommend chemo regimes they have found successful? And best way to deal with side effects?
Is this normal that the only sign she's had is a DVT??
Feel absolutely heartbroken as she has never smoked, drunk (occasional glass of wine at Christmas time)

PCUK Nurse Dianne
Posts: 260
Joined: Tue Aug 14, 2012 2:29 pm

Re: My mum diagnosed with pancreatic cancer and liver mets after a DVT

Postby PCUK Nurse Dianne » Thu Apr 12, 2018 4:06 pm

Thanks Jenrich for your post and i am sorry to hear your story.

If you would like to touch base with the support service i would be able to give you some more guidance and some information about chemotherapy that might be suitable for Mum.

Our support phone line is open form 10am - 4pm Monday to Friday, or you may email on the address below. I am sure some of the other forum family members will also respond to you.

Kind regards,

Dianne
Pancreatic Cancer Specialist Nurse
Support Service
Pancreatic cancer UK
Support line: 0808 801 0707 (10-4 Monday to Friday)
Email: nurse@pancreaticcancer.org.uk

Veema
Posts: 466
Joined: Mon Feb 02, 2015 5:35 pm

Re: My mum diagnosed with pancreatic cancer and liver mets after a DVT

Postby Veema » Fri Apr 13, 2018 9:11 pm

Hi Jenrich

Sorry to hear about your Mum's diagnosis. Pancreatic cancer is notorious for not showing any (or few) symptoms until it reaches a critical mass and spread to other organs.

My husband's cancer had not spread outside the pancreas and he was offered folfirinox, which is a tough regime for some people, but he managed it well. It's a combination of different chemotherapy drugs. It did shrink his tumour. I'm not sure if this regime is offered when the cancer has spread, but there are other treatments available to keep the cancer stable. Hopefully you've spoken to one of the nurses by now. Let us know what the outcome of the oncology appointment is.

Vx