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violetmia
Posts: 10
Joined: Sun Apr 02, 2017 10:49 pm

Re: Metastatic adenocarcinoma

Postby violetmia » Mon Oct 23, 2017 10:42 am

DG, Thanks so much for your reply. Yes Folfirinox has stopped working. Also, the disease progressed on GEM-CAP as adjuvant chemo, so I'm not very optimistic about Gem alone.
Hmmm Wales is a radical idea, but I can see the logic. Thank you.

violetmia
Posts: 10
Joined: Sun Apr 02, 2017 10:49 pm

Re: Metastatic adenocarcinoma

Postby violetmia » Mon Oct 23, 2017 11:43 am

Hello DG,

Sorry I thought I had replied, but my reply seems to have disappeared. Yes, Folfirinox has stopped working. Gem-Cap also didn't work. So Abraxane is the obvious choice.
Wales is quite radical idea! I do see the logic though, although its pretty far from where we live, and we have children in school.
Thanks so much for replying

violetmia
Posts: 10
Joined: Sun Apr 02, 2017 10:49 pm

Re: Metastatic adenocarcinoma

Postby violetmia » Thu Nov 16, 2017 8:43 am

Hi DandyGal,

Very late response, sorry.

Yes the Folfox stopped working. Lesions had appeared in his liver, and scan showed more nodules in peritoneum. So he's now on Gemcitabine, but had to miss 2 weeks due to low white blood count.

We have applied directly to Celgene, who make Abraxane, to ask if they will supply it to him on compassionate grounds. I'll let you know how we do.

He's losing even more weight, but otherwise the symptoms are manageable.

Now we are about to go to Venice for a week!

x

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Metastatic adenocarcinoma

Postby Didge » Thu Nov 16, 2017 2:49 pm

Enjoy Venice! Fingers crossed for a problem free trip xx

Dandygal76
Posts: 759
Joined: Sat Mar 12, 2016 9:49 am

Re: Metastatic adenocarcinoma

Postby Dandygal76 » Mon Nov 20, 2017 11:10 am

Hi Violet

How are things? I hope you are having a lovely time in Venice. We would love to be updated when you get a chance.

DG x