A forum for any other issues around pancreatic cancer

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GunnarG
Posts: 26
Joined: Mon Oct 15, 2012 9:43 am

Re: Reluctance

Postby GunnarG » Sat Mar 09, 2013 10:10 am

im not in very bad pain , but the pain comes and goes. its no in mye upper right stomach area just under rib cabe and down. the worst is the nausea/appetite loss.

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: Reluctance

Postby DRAD3 » Sat Mar 09, 2013 8:14 pm

So sorry to hear that you are still suffering and hope that you are able to follow up Dianne's suggestions for further investigations?
with love
Deb
x

GunnarG
Posts: 26
Joined: Mon Oct 15, 2012 9:43 am

Re: Reluctance

Postby GunnarG » Sun Mar 10, 2013 8:15 am

yesterday i acctually thought i might have the solution to my problems ,as simple as Migrenes with low grade pain. ive read migrenes can give constipation and diarrhea.. but i doubt that is the case.
however i did notice a bit more appetite after taking migrene medication(just a bit). i know this sounds stupid but, it made a lot of sense yesterday. cause ive had additional symptoms as headaches black floaters in eyes and a increased sensitivity to light and sound. but unfortunatly today im back where i was again:/

GunnarG
Posts: 26
Joined: Mon Oct 15, 2012 9:43 am

Re: Reluctance

Postby GunnarG » Sun Mar 10, 2013 6:30 pm

and by the way thank you for all the answers. i tend to forget my manners when im freaking out

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: Reluctance

Postby DRAD3 » Sun Mar 10, 2013 7:05 pm

Does sound like there is a lot going on and I hope you can find someone who can unpick all the symptoms and find an answer. I guess with a lot of medical problems, you can get other related stuff going on as a result. Of course, the worry and stress of it all can result in symptoms as well. Where to begin? I can see you are constantly trying to find answers yourself - hope you can get some help.
Deb
x

Catherine
Posts: 88
Joined: Sat Nov 24, 2012 11:31 pm

Re: Reluctance

Postby Catherine » Sun Mar 10, 2013 11:26 pm

Hello Gunner,

Sorry you are in such a state. Migraines are my specialist subject, I suffer from chronic migraine and yes I get constipation, stomach pains, bloating and sometimes diarrhoea (although mostly that would be a welcome relief) along side them. My appetite is also affected as often I feel nauseas and sometimes what I like one day I can't stand the thought of the next. And sometimes I am in simply too much pain from my head to move my jaw. The other thing about migraine is that the headache is just one symptom, so other symptoms may continue long after that has gone. I have been in the midst of an attack for 3 and a half weeks now and my stomach is still not working properly. I also get a pre stage and a post stage which can throw up all sorts of symptoms ranging from extreme tiredness to feeling like I'm getting the flu.
Some people experience silent migraines where they have a migraine without the headache. Which migraine medication did you take? It might be worth while keeping a headache diary to see if they are the root cause of your problems.
Good luck

Catherine xxx

GunnarG
Posts: 26
Joined: Mon Oct 15, 2012 9:43 am

Re: Reluctance

Postby GunnarG » Mon Mar 11, 2013 2:26 pm

i took some nasal spray, not sure what the name was.
i also have very aching pains in arms,wrists, stomach back and shoulders.
and my stomach is constantly making noises, plus if I use the palm of my hand and drag down on my stomach hard, I can hear squizing.

GunnarG
Posts: 26
Joined: Mon Oct 15, 2012 9:43 am

Re: Reluctance

Postby GunnarG » Mon Mar 11, 2013 2:30 pm

And I think my stools contain fat, but I'm not sure! They look pretty greasy and sticky but I cant see any "oil spill " like drops on the water. Sometimes they float, sometimes they sink sometimes I get several loose ones and just one of them floats.
Appetite is the worst and just a feeling of catching a fever or something but I don't have fever.

GunnarG
Posts: 26
Joined: Mon Oct 15, 2012 9:43 am

Re: Reluctance

Postby GunnarG » Wed Mar 13, 2013 7:16 am

Just wondering thought, whare are the chances they overlooked something on the Eus in november and that it has grown and spread by now? given that he said the examination was good.

Catherine
Posts: 88
Joined: Sat Nov 24, 2012 11:31 pm

Re: Reluctance

Postby Catherine » Wed Mar 20, 2013 10:45 pm

Hello,

Sorry for the late reply - I've been suffering with my head and haven't been able to look at my laptop. It sounds as if you had zomig nasal spray for your migraine. Have you been back to the doctors?

Catherine x

GunnarG
Posts: 26
Joined: Mon Oct 15, 2012 9:43 am

Re: Reluctance

Postby GunnarG » Sun Mar 31, 2013 7:24 pm

i doubt this is caused by migrenes, latest news is doctor has ordered new mri. and a blood test called chromogranin. for hormones neuroendocrine etc

but i dont now. my stools are still loose but come more often. 2 days day have actually been almost black. deep dark brown. and sometimes undecisive colors.

but isnt it so that diarrhea is more common in cancer of the head of pancreas? since that will block all digestive juices? one in the body or tail would still let the juices run right?

GunnarG
Posts: 26
Joined: Mon Oct 15, 2012 9:43 am

Re: Reluctance

Postby GunnarG » Sun Mar 31, 2013 7:29 pm

but doctor still is pretty sure about his case. that i do not have anything life threatening.... how can he know just from some blood tests

i mean i had symptoms early september but i did not have pain ,now i have more pain then i could imagine. thats what scare me and the loss of interest in food and fluids. though i can eat only not enyoing , and stomach dont like me eating. got a bad case of gas to.

though i try to understand that they checked me 15 november with eus, its been 4 months since last time and pain got worse.
dont know what to believe just trying to get some reassurement.
could it be could it not be, i have diarrea but no jaundice etc!

GunnarG
Posts: 26
Joined: Mon Oct 15, 2012 9:43 am

Re: Reluctance

Postby GunnarG » Sat Apr 13, 2013 9:10 pm

new mri came back normal.and i have officially given up- been sent for second opinion to anohter hospital but i doubt theyll find something either.

so i diagnose my self with chronic fatigue syndrome and ibs since no one wants to give me any answers since my worst symptoms now are ,muscle weakness in legs . the stomach pain with/followed by smelly gas. and somewhat loose stools with some mucus. sometimes floating sometimes not.

burping.

upper back pain on both sides.

constant headaches and pressure in head.

confused.
theres probably more that i cant remember.


tired all the time(but i dont find resting satisfying. do not feel like doing things i like.

ive read cfs can cause intestinal problems as well. and that there is a link between that and ibs.

Catherine
Posts: 88
Joined: Sat Nov 24, 2012 11:31 pm

Re: Reluctance

Postby Catherine » Sun Apr 14, 2013 11:42 am

Hello there, just a thought have you been tested for celiac / gluten intolerance? That can cause all the symptoms you describe. Really good news that nothing sinister is showing on your MRI. Take care, Catherine x

GunnarG
Posts: 26
Joined: Mon Oct 15, 2012 9:43 am

Re: Reluctance

Postby GunnarG » Thu Apr 25, 2013 8:17 pm

yes i have been tested for this,but i hardly eat any bread