A forum for any other issues around pancreatic cancer

Moderator: volmod

Forum rules
Please see the messages in our "Rules" section

The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice
Stellastar
Posts: 4
Joined: Fri Oct 12, 2018 7:54 pm

Worried

Postby Stellastar » Thu Oct 18, 2018 9:27 am

I’ve been back and forth to the doctors for a good 18 months now with various symptoms.
I’ve had an endoscopy. They were looking for an ulcer. Nothing found.
I had a scan. They found some small gall stones.
I have some lumps under my breasts. Lipomas. One on the left side is being removed under a GA.
A liver blood test came back a little high but nothing more being investigated.
Physical symptoms.
Nausea.
Unable to eat large amounts. I do get hungry and find that eating little and regular makes me feel better. So there is only a little weight loss.
I’m very itchy.
I also have lumps on my legs. I was sent to the hospital as the Gp thought they may have been DVTs. Blood test said they were not.
Dreadful pain under my right breast pains around to my back and through my shoulder. This also feels weird. Kind of like insects crawling on my skin. Especially on my back area.
Indigestion and acid up into my throat. (Meds made little difference)
Going to the loo. My stools haven’t been normal for ages. They can be small but floating or massive like cow pats. They’re never solid anymore.
Lots of other things such as night sweats (have put that down to my age, mid 40’s). I burp loads. Also windy the other end!
I’m utterly exhausted. Also a weird thing, I can feel my heart beating. But sometimes it isn’t where my heart is. It’s in my upper chest though.
I apologise for the length of this.
I am not yellow nor do I have sudden weight loss. I have a history of eating disorder (binge eating along with dieting) which means my weight has been up and down for most of my adult life.
The doctor has now said that as tests are coming back clear that this is good. Obviously I do agree with this but the pain in my chest, shoulder and back is awful. The itching is horrible. I’ve had enough of feeling awful. It feels weird when I bend forward. Like there is something there.
Many of these things have been ignored by the doctor.
I have begun a daily food and symptoms diary as when I’ve been to the doctor I don’t have any specifics of that makes sense.
I’m not saying for one minute that I have PC, but I am worried.
Thank you for reading and for any advice you can give me.
Oh, I called the helpline a few months ago and the person I spoke to said the way PC is generally diagnosed is through a CT scan.
Many thanks .

Stellastar
Posts: 4
Joined: Fri Oct 12, 2018 7:54 pm

Re: Worried

Postby Stellastar » Tue Oct 23, 2018 10:18 am

Hello again.
I was wondering if anyone had any answers to the itching? And bloating?
Antihistamines are not working for the itching.
I’m so bloated despite not eating much. So much so my rings were stuck on when I woke up this morning. They were so tight and when I eventually removed them, there is still a red mark there.
I still have all the pains and nausea and my lipomas are prominent and hurt.
I felt so brushed off after my last Gp visit, that I’m scared to go back.
Many thanks

PCUK Nurse Dianne
Posts: 273
Joined: Tue Aug 14, 2012 3:29 pm

Re: Worried

Postby PCUK Nurse Dianne » Tue Oct 23, 2018 4:43 pm

Dear Stellastar,

Thank you for sharing your story. It might be easier if we take some time to email you directly with some thoughts and suggestions for you. I hope this might be a more satisfactory way for you to have some guidance and input.

We will make contact with you in the next day or so and hope this may be helpful for you.

with kind regards,

Dianne
Pancreatic Cancer Specialist Nurse
Pancreatic Cancer UK
Support line - 0808 801 0707
Email: nurse@pancreaticcancer.org.uk

Stellastar
Posts: 4
Joined: Fri Oct 12, 2018 7:54 pm

Re: Worried

Postby Stellastar » Wed Oct 24, 2018 9:27 am

Thank you so much Dianne. X

paige_smith
Posts: 7
Joined: Mon Oct 08, 2018 8:58 am

Re: Worried

Postby paige_smith » Fri Nov 02, 2018 2:22 pm

Hi Stellastar

Did you manage to get a diagnosis?