A forum for any other issues around pancreatic cancer

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Cdcmoon
Posts: 25
Joined: Mon Apr 17, 2017 7:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Fri May 19, 2017 9:42 am

Had a follow up appointment after my Endoscopy all clear including biopsy. The Dr wanted to review me in a couple of months but i said it's been going on for so long now i really need to get somewhere with it now and i have been booked in for a CT Scan on Friday 26th. I really hope this is going to be clear.

I have booked a follow up for 2 weeks later, if they find something would they call me in sooner?

Atm I have diahrhea everyday sometimes tan coloured sometimes grey but dr said this is normal? I just have general uncomfortable feeling when I sit up in my upper abdomen and my weight is stable.

PCUK Nurse Jeni
Posts: 1014
Joined: Mon Jun 14, 2010 12:30 pm

Re: Pancreatic Cancer worry

Postby PCUK Nurse Jeni » Fri May 19, 2017 11:25 am

Hello CDC,

Its good news to hear that you have a CT scan booked.

Two weeks is the usual wait to have the CT scan fully reported on, and be seen back in the clinic - this is the normal expected period of time for a review appointment.

Kind regards,
Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: support@pancreaticcancer.org.uk
support line: 0808 801 0707

Cdcmoon
Posts: 25
Joined: Mon Apr 17, 2017 7:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Mon Jun 05, 2017 8:34 am

If I had steatorrhea what would this look like? I am currently passing large stools (they come out with ease and seems to be loads of it. They are soft but always sink. I can't really find any pictures.

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Pancreatic Cancer worry

Postby Didge » Mon Jun 05, 2017 9:52 am

As far as I am aware they would be very pale and floating.

Cdcmoon
Posts: 25
Joined: Mon Apr 17, 2017 7:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Mon Jun 05, 2017 11:38 am

I've prob ha 3/4 of pale looking stools in past 6 months it's mostly just large amounts which are light brown snake like just seems to be loads of it.

PCUK Nurse Jeni
Posts: 1014
Joined: Mon Jun 14, 2010 12:30 pm

Re: Pancreatic Cancer worry

Postby PCUK Nurse Jeni » Mon Jun 05, 2017 3:26 pm

Hi there,

Have you ever been tested for Coeliac disease? Helicobacter Pylori also?
If not, it might be worth asking about these at your gp surgery.

Kind regards,
Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: support@pancreaticcancer.org.uk
support line: 0808 801 0707

Cdcmoon
Posts: 25
Joined: Mon Apr 17, 2017 7:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Mon Jun 05, 2017 4:50 pm

Yea I had blood tests and biopsy taken on endoscopy all negative.

I spoke with the hospital earlier my results are back however I can't bring my appointment forward I have to wait till Thursday :( don't feel good about it all right now.

Cdcmoon
Posts: 25
Joined: Mon Apr 17, 2017 7:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Thu Jun 08, 2017 12:55 pm

Had my results today pancreas looked normal so I've been told I have ibs. The scan did show that I had 2 small shadows on my right liver 1cm and 1.5cm so I have another ultrasound scan with contrast next week.

joanna1975
Posts: 13
Joined: Wed Mar 22, 2017 1:55 pm

Re: Pancreatic Cancer worry

Postby joanna1975 » Sun Jun 11, 2017 5:22 pm

Hello CDcmoon,

Do let us know what they found out; I've been having similar symptoms and drs can't find out what is wrong with me. I'm following your posts and wonder if we suffer from the same thing?
Kind Regads,
Joanna

Cdcmoon
Posts: 25
Joined: Mon Apr 17, 2017 7:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Sun Jun 11, 2017 6:14 pm

I will. Like I say I've got another ultrasound because of the shadows found on my liver and I have been told I have ibs as pancreas looked normal and so are all my other tests. The dr said these shadows are nothing to do with my symptoms however. Hopefully these will be benign.

Cdcmoon
Posts: 25
Joined: Mon Apr 17, 2017 7:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Thu Jun 15, 2017 3:15 pm

My scan revealed they are henangiomas and the dr was pretty confident with that today after I was injected with fluid.

joanna1975
Posts: 13
Joined: Wed Mar 22, 2017 1:55 pm

Re: Pancreatic Cancer worry

Postby joanna1975 » Tue Jun 20, 2017 5:19 pm

Hi CDCmoon,

are all the symptoms caused by then henangiomas then? Are you going to have any more tests?

Cdcmoon
Posts: 25
Joined: Mon Apr 17, 2017 7:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Tue Jun 20, 2017 6:21 pm

I have a follow up on Thursday my symptoms are nothing to do with what was found in my liver they were found by chance and are common. My gastro dr said he thinks I have ibs as everything else is normal but I will find out Thursday what happens next.

joanna1975
Posts: 13
Joined: Wed Mar 22, 2017 1:55 pm

Re: Pancreatic Cancer worry

Postby joanna1975 » Wed Jul 05, 2017 9:09 pm

Hi Cdcmoon, I guess you've seen a doctor yet- what did he say?

Cdcmoon
Posts: 25
Joined: Mon Apr 17, 2017 7:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Wed Jul 05, 2017 10:08 pm

He said there is no more tests they can do and I am to limit my diet to see what triggers my ibs I now have apparently