A forum for any other issues around pancreatic cancer

Moderator: volmod

Forum rules
Please see the messages in our "Rules" section

The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice
MSH
Posts: 228
Joined: Tue Apr 30, 2013 10:03 pm

Re: How long did original diagnosis take after CT scan?

Postby MSH » Mon Jun 01, 2015 8:16 am

Chris,

I know very well that once you get something into your mind it can be difficult to shake off, and I don't wish to offend, but I don't think you are doing yourself any favours by coming to these forums. Some things are difficult to diagnose, others rule themselves out by exclusion. If you had had untreated pancreatic cancer for three years you wouldn't be posting now, (and probably not even if treated).

If you want to pay for a private investigation, then as Didge says CA19-9 is probably the best at this stage. Myself, I would save my money, or better still have a holiday to celebrate.

[Edit] Also be aware that chronic pancreatitis can cause a modestly increased CA19-9.

Mark
Last edited by MSH on Tue Jun 02, 2015 12:06 am, edited 1 time in total.

PCUK Nurse Dianne
Posts: 265
Joined: Tue Aug 14, 2012 2:29 pm

Re: How long did original diagnosis take after CT scan?

Postby PCUK Nurse Dianne » Mon Jun 01, 2015 4:23 pm

Hi Chris,

Thanks for your most recent post, and also to those forum members that have provided some supportive suggestions for Chris. As I am sure many of you are aware some of the symptoms for pancreatic cancer can be similar across many of diagnostic areas. I am sure this has been very concerning for you Chris and it is great that you have felt welcomed to be able to use the forum for support from others.

We also appreciate that for many patients it is difficult to be managed with 'non conclusive answers' to investigations and can leave you feeling that you are in 'limbo land'.

There are some other conditions that can cause similar symptoms with bloating, and the pale floaty stools along with weight loss. It may help to look at some of the research about 'Bile Acid malabsorption/deficiency' as these have similar symptoms ie loss of weight, loose stools etc, and can be common in some patients after they have had their gall bladder removed. One of the treatments for this is called Cholestramine or Questran (helps with bile acid absorption) and may help, along with the use of pancreatic enzymes in some patients.

These conditions may not necessarily be apparent on CT scans/MRI scans, but there would be other more appropriate examinations that would be useful ie a Barium meal and follow through along with screening to test for Vitamin absorption especially Vitamin D and B12.

As has been mentioned, now that you have had your symptoms for some lengthy period Chris, this must have been difficult for you, however is not necessarily a cancer diagnosis, but may require some differential diagnosis to be considered and the most appropriate testing for this. Please do feel free to be in touch Chris if we can help (support@pancreaticcancer.org.uk) and more than happy to have further discussion.
I hope this has been helpful and reassuring.

Kind regards,

Dianne
Pancreatic Cancer Specialist Nurse
Pancreatic Cancer UK

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: How long did original diagnosis take after CT scan?

Postby Didge » Mon Jun 01, 2015 10:06 pm

Hello Chris
Of course, as the nurses have said, we on this site are used to these symptoms being connected with PC and of course there are other things it could be. But not knowing and not feeling well must be difficult. If you do manage to fund a CA-19-9 blood test and the tumour marker levels are normal perhaps that will reassure you. However, as Mark says, I see it is now 3 years since you first got symptoms and although some types of PC are slower, most are aggressive, so it is good news if you are not getting any worse. I do hope you find some answers soon. Good luck! Didge.

Fraz
Posts: 2
Joined: Tue Nov 15, 2016 9:35 am

Re: How long did original diagnosis take after CT scan?

Postby Fraz » Wed Nov 16, 2016 2:02 pm

Hello there,
I must've been about an hour,pretty fast .
No messing straight to stage 4,doom n gloom.
No jaundice for me,still a little shocked.