A forum for any other issues around pancreatic cancer

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toodotty
Posts: 70
Joined: Sat Jun 09, 2018 3:17 pm

Re: advice

Postby toodotty » Wed Jun 27, 2018 10:31 am

Hi Seth,
I was diagnosed with Stage 4 PC at Easter. This was despite having 3 clear ultrasound scans, numerous blood tests which came back clear, and an 8 hour visit to A&E where I was diagnosed with constipation.
The diagnosis was only achieved after I paid to see a private specialist who immediately ordered a CT scan (with contrast) and further blood tests. I had the scan and the diagnosis within a week. All the other tests done by my GP were a complete waste of time and money. The scan cost about £800 which I thought was good value, the blood tests were about £900 but my GP put them through on the NHS. So total cost in all was about £1000, but I was in so much pain it was worth it.

If you are having any of the symptoms described, insist on seeing a Gastrologist and get a CT scan asap.

toodotty

PCUK Nurse Jeni
Posts: 1014
Joined: Mon Jun 14, 2010 12:30 pm

Re: advice

Postby PCUK Nurse Jeni » Wed Jun 27, 2018 2:20 pm

Hello Seth,

Welcome to the forums.

I am sorry to hear that you are experiencing some symptoms at present, which you equate to those of a previous poster.

How long have you been having symptoms Seth? And have you been to your gp about this? Have you been given any treatment at all?

Please do feel free to email us directly, highlighting all of your symptoms, and we can contact you directly.

Alternatively, you can call us on the number in the signature below.

Kind regards,

Jeni.
Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707