A forum for any other issues around pancreatic cancer

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marie souter
Posts: 198
Joined: Thu May 30, 2013 6:58 pm

Re: waiting for diagnosis

Postby marie souter » Thu Dec 26, 2013 12:15 am

Had quite a nice day .. misssed my mom really badly as i spent the last 4 christmases with her .. but I did have a nice day with family and was spoiled rotten xx how about you??

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Thu Dec 26, 2013 1:39 pm

Oh good Marie, thanks to Birmingham special nurse and her honesty, I have largely been able to put the worries behind me. Spent Christmas Day with eldest daughter and S in L and grandchildren and a friend. Quiet day today to prepare for going away. Tomorrow all thre daughters and grandchildren and youngest's family home and then on to friend in Norwich for New Year - so pretty packed and very spoilt.

Judi

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Thu Dec 26, 2013 11:00 pm

I meant to say put worries away over Christmas - who knows what my future will bring but for now ignoring future even January future.
Judi

marie souter
Posts: 198
Joined: Thu May 30, 2013 6:58 pm

Re: waiting for diagnosis

Postby marie souter » Fri Dec 27, 2013 12:04 am

yep u gotta live for today honey even if you are'nt ill .. make the days count regardless xxxx hope you ahvea lovely new year sounds like just what you need

xx

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Tue Jan 07, 2014 3:03 pm

Happy and hopefully healthful New Year at the very least contented and pain free to you all.
This Friday is the day for my endoscopic ultra sound which hopefully will give true diagnosis first time, although I was warned by specialist nurse that sometimes one or two further are needed. I wonder how long after I will find out the prognosis. Didn't dwell on it overChristmas and New Year,'though every news item and programme seemed to refer to pancreatic cancer and now Simon Hoggart! Still I would take 3.5 years especially since it seems he was well enough to work until November. We will see.

Keep well warm and dry.

Judi

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Wed Jan 08, 2014 12:55 am

Do you know what is bafling me - no weight loss.I am sill as chubby as ever. I am not a glutton, don't ever eat meals as quickly as others. never eaten as much as friends but love food.Only eat what I fancy and when hungry. defo not a fan of frozen meals - like to cook, but no proper meal today, but loved my camembert of ciabatta rolls.
I also have an unstable thyroid AND was diagnosied with hyper thyroidism, now I know that means thin with possibly bulging eyes. I have neither. Endocrinologist talked of removing thyroid - but I was plump and I still have it 'tho it trips under active sometimes- oy vey.
Everybody with PC which ever type seem to lose weight - does this mean my significantly dilated pancreatic duct the whole length of the pancreas and the cysts they believe are in the uncinate process are harmless - I think not but I m confused and yeh! scared

marie souter
Posts: 198
Joined: Thu May 30, 2013 6:58 pm

Re: waiting for diagnosis

Postby marie souter » Thu Jan 09, 2014 11:50 am

Hey honey

Wow that does sound like a gd sign all the PC sufferers I know all have weight loss issues .. Am so pleased u have a gd appetite xx not long now to the scan .. Tomorrow is it? I think it was a WK to ten days for moms results from her biopsy but her initial scan was done as an inpatient so we had those v quickly ... I am willing that the new year brings the result of no PC for u honey xx

Love and hugs
Marie
Xx

Oh how was ur new year away?

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Thu Jan 09, 2014 1:06 pm

Thank you Marie, seems daftthat I have spent my life yoyo dieting, don'tseem to eat as muchas others but still retain weight BUT in this circumstance it may be very lucky. Already had the CT,which is what led to this Endoscopic ultrasound tomorrow. x

marie souter
Posts: 198
Joined: Thu May 30, 2013 6:58 pm

Re: waiting for diagnosis

Postby marie souter » Fri Jan 10, 2014 2:05 am

Will b thinking of u tomorrow honey with everything crossed xxxxx

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Fri Jan 10, 2014 6:33 am

Thanks Marie, today may be the day, I find out. Bit nervous. Had some soup already as tum should be really empty by the time the test starts. eeeek!

marie souter
Posts: 198
Joined: Thu May 30, 2013 6:58 pm

Re: waiting for diagnosis

Postby marie souter » Sat Jan 11, 2014 5:19 pm

Hey honey,

How it go? Am assuming you didn't find out anything yet?

Hugz
Marie
xx

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Sun Jan 12, 2014 10:32 am

What a rollercoaster. First the confusion and fear of the first phone call and subsequent calls from first specialist nurse and GP. From them being so sorry for my probable diagnosis to "normal for a woman of my age" and then GP telling me he "doesn't understand why I have been referred for an endoscopic ultrasound" leaving me to think that I was being dramatic for no good reason. Then on seeing the consultant radiologist before the procedure on Friday being told it could be possible the pancreatic surgeon would recommend removal of my pancreas! This latter was a possibility that had never arisen during my research and something I didn't think possible.

After the test, this consultant told me that the duct, although substantially dilated was clear and it may possibly have always been this way but that there are cysts in the uncinate area, he thinks the biopsy is likely to show they are not cancerous that they are IPMN and the possibility is that I will be monitored to see if they do become cancerous. He believes that this has absolutely nothing to do with the IBS symptoms that took me to the GP in the first place and I can only conclude at this time that the lack of clarity of the barium enema, leading to the CT scan was lucky and finding these pre-cancerous cells, if that indeed is what they are, may not have happened until was too late.
I will have to wait for a few weeks until I see the pancreatic specialist to confirm this situation. It looks like I may be a long term visitor to this site - fingers crossed.
Judi

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: waiting for diagnosis

Postby Slewis7313 » Sun Jan 12, 2014 11:41 am

Judi, another wait is pretty much normal with this thing, but the expectation that the problem is a non-cancerous cyst is good news. The diagnosis of anything associated with the pancreas never seems to be straight forward and yours seems to have had more than your fair share of twists and turns but hopefully with a positive outcome. We await the test results with positive anticipation.

Take care

Steve
X

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Thu Jan 16, 2014 3:50 pm

Sorry folks, I am on here again moaning and worrying.Gone from high to low, because I am so tired, no exhausted is the word. I want to sleep most of the time and I have had a lot of discomfort. The pain I am experiencing is in left side and feels like I have been kicked almost winds me and goes through to my back - pre existing problem with spine is exacerbated. also pain right upperside - though this does not wind me. It is probably the pre-existing stomach problems I have had and back to feeling nauseous every morning. I can't even face wine at moment. I suppose it is psychosomatic but can't help worrying that the results may not be what I had expected.
Have put in a call to specialist nurse and wait for re-assurance but fear I may get more of the same that I got from my GP, annoyance at my fussing.

Judi

PCUK Nurse Dianne
Posts: 265
Joined: Tue Aug 14, 2012 2:29 pm

Re: waiting for diagnosis

Postby PCUK Nurse Dianne » Thu Jan 16, 2014 4:57 pm

Hi Judi,

If you wish to email us on the support line email (support@pancreaticcancer.org.uk) we may be able to help you with some of these questions about the pancreatic cysts and the possible IPMN, so please feel free to contact us and we may be able to give you some more information.

Dianne
Support team