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littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Fri Dec 20, 2013 6:58 pm

Thanks Marie

Lovely lunch with close girlfriends today, so feeling very loved. (Didn't much go for my slightly hippyish and lovely mad friend telling me she had candles lit all over her house for me, but she had consumed a whole bottle of champers by then - I am not a daytime drinker, perhaps that's the problem!!!)

Judi

marie souter
Posts: 198
Joined: Thu May 30, 2013 6:58 pm

Re: waiting for diagnosis

Postby marie souter » Sat Dec 21, 2013 7:46 am

Aw your friends sound lovely and just what u need right now x champers in the day? Y the hell not he he I say lay caution to the wind ... Have a glass or 10 and put the world to rights ... Aw miss my girly days .... Ur friend sounds like she's doing all she knows how to send positivity your way and white candles are healing candles from what my wickan daughter tells me .... Can't hurt can it .... Unless the house catches fire ... Yikes .... What u got planned for the weekend?

Love n hugs
Marie
Xx

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Sat Dec 21, 2013 10:51 am

Not a fan of champers. Afraid I have not filled week-end up, have to preserve my strength. I have a number of mobility issues on top of this latest scare so I tend to have to conserve energy but I might, just might go for a swim this afternoon. Been weeks and what is the point of my gym membership otherwise? Have yo got a packed week-end of fun or is it all Christmas shopping?

Judi

cestrian
Posts: 220
Joined: Mon Jun 03, 2013 11:20 am

Re: waiting for diagnosis

Postby cestrian » Sat Dec 21, 2013 3:42 pm

Hi Judi

Taking every day as it comes is essential! I was like a rag yesterday but just put it down to the Mugga Scan and Chemo I'd had on Wednesday followed by a tiring day in town on Thursday! Today I am mainly watching and listening to football after a good 12 hours of refreshing sleep last night. Chester 2 - 1 up but alas reduced to 10 men by dubious decision from referee!!

Take it easy but if you do get to the gym enjoy your swim.

Love and Peace

Mike

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Sat Dec 21, 2013 4:52 pm

Hi Mike, hope you are feeling a little better. Glad the football's helping, 'tho you might as well be writing in Cantonese as far as my ability to understand the words go.
Would have gone for swim but picked up post with a copy of a letter to my GP and local consultant from Consultant in Birmingham and am now feeling so desolate and self obsessed. Seems two areas of my pancreas are the subject of the proposed endoscopic ultrasound. It would arrive on a Saturday when there is no-one available to interpret his findings and no chance of understanding the consequences/likely or possible outcomes of these two areas of concern. By the way what is a Mugga Scan?
Judi

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: waiting for diagnosis

Postby Cathy » Sat Dec 21, 2013 8:08 pm

Hi Judi

I haven't posted to you before as I haven't been on the forum for a little while. However, a belated hello and I am sorry to hear of your traumas trying to get a propery diagnosis.

I hadn't heard of a mugga scan before but found this:

http://www.macmillan.org.uk/Cancerinfor ... Ascan.aspx

The nurses on here will probably have more info as well if you contacted them on Monday.

Lots of love

Cathy xx

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: waiting for diagnosis

Postby J_T » Sat Dec 21, 2013 8:14 pm

Goodness Judi the sooner you get a definite diagnosis the better. Must be very worrying for you. Fingers crossed for good results.

Jx

marie souter
Posts: 198
Joined: Thu May 30, 2013 6:58 pm

Re: waiting for diagnosis

Postby marie souter » Sun Dec 22, 2013 12:31 pm

Hey Judi,

Well yesterday was great I saw my grandkids, (5 and 3 mths) and it was so lovely to have the time to properly bond with the younger one, we're getting on famously...but my son made me put up with the footy ...GROAN.
Then later on my father in law came who I havent seen for ages, he gave me some advice to think on, don;t know if I'm quite ready to act on it, I only lost my mom 6 weeks ago and havent begun to process her passing but people seem to think I should be moving on by now but its just too early he was telling me to put my moms photos away and close the book on them so to speak ... NO WAY am ready to do that, my daughter had to remind him it had only been a few weeks not a few years but he was only trying to help. I do have her pic on my desktop (pc) and my facebook so those ones i have took down as I do see the sense in those ones though.
Then last night my brother has had a breakdown (Mike you will remember how little help I had caring for mom, and how we said they would have that guilt to deal with afterwards? Well yeah it happened and of course I helped counsel him through it as I don;t like anyone to suffer..)
So I spent 2 hrs helping him get his head straight which actually helped me see some things in a different light..kinda helping myself as well as him..
Today...I am chill city lol .. xmas shopping all done ... weather sux and I have ZERO chocolate in the house (what is the world coming to???)
I thought packing in smoking I would find it difficult but I am finding it really easy..AND am not substituting food for ciggies either ... hence no choccies in .. WAAAH but I want some now lol ...
Judi though when will you be able to discuss all your concerns? Whens your next appointment? The Mugga seems to be a Gamma Scan, I wanted a Gamma Scan for tendon injusries I had but they wouldn't give me it as it was too expensive and I ended up with an MRI instead ..... is this what they've offered you?
Anyways may pop to the shop soon get some of that choccy, weather in geordieland sux though today .. better put me thermals on first :)

Chin up for now honey ... try to take your mind off things if you can ... distraction is key atm while you're obsessing (which you can't help)..
we're all here for you..

Love and Hugz
Marie
xx

cestrian
Posts: 220
Joined: Mon Jun 03, 2013 11:20 am

Re: waiting for diagnosis

Postby cestrian » Sun Dec 22, 2013 2:17 pm

Hi All

I had several Mugga scans whilst on the clinical trial to check the bloodflow round my heart. Much as it says under the link that Cathy posted but the ECG in my case was ECG lite with only 4 or 5 electrodes compared to the full Monty I got with the trial nurses. Also two injections one that apparently helps the radioactive isotopes to adhere to the blood platelets thus helping the tracking process followed after about 20 minutes by the isotopes themselves. A very calming lie down in a darkened room while the scan takes place makes this one of the most enjoyable processes as I usually managed a little zizz!!

I think the one on Wednesday was the last one as it was the final check up as part of my trial/

Seems your endoscopic ultra sound will take a while to be interpreted but let's hope the results are positive for you Judi. Waiting is so frustrating but seems to be inevitable I'm afraid and not made any better by being dragged out over Christmas.

Love and Peace

Mike x

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Sun Dec 22, 2013 5:12 pm

Thanks all for the responses, just asking about MUGA because Mike mentioned he had had it. Was beautifully distracted today, friend took me to the Woolpack in Slad (Cider with Rosie) for lunch, her treat, then back to her's for coffee, although my current situation wasn't off the agenda, it wasn't front of the queue, be all and end all.

You all seem so well balanced, I am deinitiely off balance, as I said earlier - self obsessed but expect you have all had your own bloody nightmares because of that small gland.

Going to ring specialist nurse at Birmingham tomorrow - hope she is not yet on Christmas holidays, will also try and speak to GP, after all he did tell me a week ago I was now on the priority list! Not sure how well he is able to interpret the letter but is for sure he will have more knowledge than me, despite my scrutiny of the web.

Had a lovely present left outside my flat door by a neighbour, I don't often see, lovely tin christmas tree balls with chocs and marzipan within from Germany. Must get some cards done for neighbours and source a nice bottle of wine for this kind neighbour.
As I am off on 27th to family and then on to Norwich to friends, neighbours and local friends coming in to feed my cat, so will need to do a bit of a blitz on the flat - all this should distract me.
Keep well
Judi

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Mon Dec 23, 2013 6:32 pm

Spoke to GP first today, he thought that that identified by CT Scan not unusual and didn't know why they were doing an endoscopic ultrasound???
Spoke to Specialist Nurse from Birmingham later who first wished to establish if I wanted to know whatever outcome - how refreshing! She discussed possibilities of both problems identified - did not give me the BS of it being "normal for a woman of my age" and went on to tell me that this test may not be able to reveal all and may require to be done another once or twice. She was comfortable in discussing the most sinister outcome and also the least worse, she was also candid about surgery and that that should be avoided if at all possible but she did say if indicated and I really wanted it it would be carried out. She asked permission to call my GP in order to have my full bloods done - and that will be tomorrow. All in all I feel far more comfortable - I cannot stand being left in the dark and am positively full of rage if anyone tries to hoodwink or BS me. I feel I can largely put this away for Christmas.

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Tue Dec 24, 2013 3:27 pm

Oh my giddy aunt, the consultant I am to see at Birmingham has just been suspended suspected of branding his initials on a transplant patients' new liver!!!!

Judi

MSH
Posts: 228
Joined: Tue Apr 30, 2013 10:03 pm

Re: waiting for diagnosis

Postby MSH » Tue Dec 24, 2013 4:01 pm

Kind of like an artist signing his work?

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Tue Dec 24, 2013 4:36 pm

Yes, I must say that whilst shocked, I did find it funny. Apparently it wasn't harmful to the patient and I guess most medics have to have a pretty dark sense of humour to avoid getting depressed - it does seem to suggest a little meglamania 'though.

littlesister
Posts: 85
Joined: Fri Jun 22, 2012 2:18 pm

Re: waiting for diagnosis

Postby littlesister » Wed Dec 25, 2013 9:44 am

Hope you all have a comfortable and happy christmas and an uneventful (if possible) New Year

Judi