A forum for family, friends and carers of pancreatic cancer patients

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kate2101
Posts: 73
Joined: Fri Jun 15, 2018 4:20 pm

Re: My mum - Stage 4 PC with liver mets

Postby kate2101 » Fri Dec 21, 2018 3:59 pm

Hi Dianne,

Thanks for your good wishes, who would have thought a year ago I’d be in this position, I didn’t appreciate how simple life was. Looking forward to my trip but also scared stiff! Like Erika, I’m fortunate that my life insurance paid out so I can pay for the treatment without remortgaging or robbing the bank.

It’s been a strange year since my diagnosis in June, a rocky rollercoaster but it’s ending better than I expected. I’m still here, tired but still functioning as normal and looking forward to cooking for my family for Christmas. And of course America in January! I know nanoknife is no magic cure and there are risks but what to lose?

Best wishes to all for Christmas, let’s hope 2019 brings good news and progress for PC sufferers. X

Theresa Upton
Posts: 34
Joined: Thu Oct 11, 2018 4:39 pm

Re: My mum - Stage 4 PC with liver mets

Postby Theresa Upton » Fri Dec 21, 2018 6:38 pm

Good luck Kate, I wish you all the luck in the world and a safe journey.

Enjoy your Christmas break

Theresa

xx

kate2101
Posts: 73
Joined: Fri Jun 15, 2018 4:20 pm

Re: My mum - Stage 4 PC with liver mets

Postby kate2101 » Fri Dec 21, 2018 11:59 pm

Thanks very much Theresa. Must admit I’m a mixture of emotions, excited, hopeful, mainly scared but what an adventure! But one I wish I wasn’t involved in. I now have to concentrate on getting as fit as possible and avoid any nasty bugs going around.

Thanks again for good wishes, I’ll keep you posted. Enjoy your Christmas too. X

J9pkr
Posts: 9
Joined: Wed Sep 26, 2018 8:35 am

Re: My mum - Stage 4 PC with liver mets

Postby J9pkr » Wed Feb 06, 2019 9:17 pm

Hi All,

It has been a while since I have written anything here but have been reading your blogs with interest and hope everyone is doing well.
My Mum is not doing too badly we are on the last dose of chemo on the first cycle and will have a CT next Tuesday which will no doubt bring anxiety until we receive the results. Everything is crossed that the the chemo is doing something positive which I know will spur Mum on. Mum is on Gemcitabine and Abraxane and after this dose has experienced a really strong metallic taste along with the usual nausea. Has anyone any experience of this and any suggestions to relieve this side effect?
Best wishes to all. J

Dee123
Posts: 19
Joined: Wed Aug 08, 2018 8:21 pm

Re: My mum - Stage 4 PC with liver mets

Postby Dee123 » Mon Feb 11, 2019 7:50 pm

Hi all,

Just a quick update on my Mum's CT scan results today after the end of her Gemcitabine and Abraxane chemotherapy.

The pancreas tumour and liver mets have not changed since they reduced in the last scan, so this is good news.

However her lymph nodes have now been mentioned for the first time.

The lymph node in her abdomen has increased in size from 5cm to 16cm. This might explain the pressure/tightness pains she has been feeling in/around her stomach recently.

The next step is to have another scan in 4 weeks to check if the lymph node has increased in size again, if it has she will then move on to Folfirinox chemotherapy. I know this is a more aggressive chemotherapy and she did not want this originally but they have said they can adjust the dosage to what works for her.

If anyone has any tips on how to reduce the swelling of the lymph nodes, any diet tips, or anything else that would be great! I am going to start my research online now to look into lymph node involvement because this is new...

I hope everyone is doing ok xx

J9pkr
Posts: 9
Joined: Wed Sep 26, 2018 8:35 am

Re: My mum - Stage 4 PC with liver mets

Postby J9pkr » Mon Feb 18, 2019 9:26 pm

Hi Dee,

We get Mum’s first scan results tomorrow so we are all anxious tonight. Your post was the first I read after Mum was diagnosed and I remember it giving me some hope as your Mum has just got her first scan results and they were so positive.
So pleased she seems to still be doing well.
Hope the Lymph node treatment is successful.

Janine