A forum for family, friends and carers of pancreatic cancer patients

Moderator: volmod

Forum rules
Please see the messages in our "Rules" section

The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice
Margie
Posts: 3
Joined: Fri May 25, 2018 12:24 pm

Mum Diagnosis

Postby Margie » Fri Jun 01, 2018 3:46 pm

My mum who has been an active 78 year old, has recently been diagnosed with Pancreatic Cancer, which they say has spread to the peritoneum. She had a CT scan last week with a guide biopsy, and we went to see the oncology consultant today, and he has told us that they can not give a full diagnosis at this time, because of several reasons.

1. Blood mark for Cancer is very low
2. The biopsy from the peritoneum did not give results of cancer
3. The biopsy from the precancerous didn't give results of cancer.

My mum however has all the symptoms, being sick, bloating, tireness, they are now scheduling another Endoscopy to see if they can get conclusive results that way.

Although my mum has gone away from this, quite happy, as she still is holding out hope for a non cancerous result.

Is this a common issue with this type of cancer?

Hoping that it is a mis-diagnosis, as we feel in the dark again.

sandraW
Posts: 1027
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum Diagnosis

Postby sandraW » Mon Jun 04, 2018 10:50 am

Hi Margie, Sorry to hear about you mum being unwell I just wanted to post a quick welcome reply to you, the forum was down over the week end when I tried to log in, hence the delay.
Although this didn't happen to us, although we too took a while to get a diagnosis, it has happened to others on the forum,
I suggest you ring or email the nurses, they will be able to give you some answers I am sure, they are very approachable, lovely and extremely knowledgeable too. Hope you get the good news, take care sandrax xx

PCUK Nurse Rachel R
Posts: 10
Joined: Thu Jan 25, 2018 10:52 am

Re: Mum Diagnosis

Postby PCUK Nurse Rachel R » Wed Jun 06, 2018 3:39 pm

Hi Margie

I also wanted to welcome you to the forum on behalf of the Nurses here.

Unfortunately we do often find that people with pancreatic cancer do have a complex diagnostic pathway.

It does sound as if Mum has been diagnosed on the basis of her CT scan but it is the histological diagnosis that is causing difficulty. Clearly it would be great news if the presumed diagnosis of pancreatic cancer were not the case.

If it would be helpful to explore this further with the Nurses on support line then please don't hesitate to call or email us, we will more than happy to try and help.

With kind wishes
Rachel

Rachel Richardson
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Margie
Posts: 3
Joined: Fri May 25, 2018 12:24 pm

Re: Mum Diagnosis

Postby Margie » Wed Jun 20, 2018 8:57 pm

Hi

Thanks for you’re replies. Since my last post my mum has had a EUS scan with biopsy at Oxford JR, so it’s now a waiting game for the results which should hopefully be in a week. My mum is still losing weight although we are trying to keep this at a minimal but it’s so hard. We have all the usual tips of cream, cheese in with sauces for her and she loves eggs and the fortisip yoghurts. However she appears to have a pattern of every four days having terrible sickness which can last for a day and her tummy blows up really big and for an 8 stone lady she gets really distressed. The lady at the oxford hospital did say mum had quite a bit of fuild around the belly,is this normal for this condition and is there something that can be done to relieve this? Just hoping the results come in soon and we get a treatment plan which may help her symptoms. It’s been 8 weeks now since we originally were told she had this, and each week goes by I see my mum getting weaker and smaller in size, makes us all feel hopeless in anything we try to do to help her.

PCUK Nurse Dianne
Posts: 262
Joined: Tue Aug 14, 2012 2:29 pm

Re: Mum Diagnosis

Postby PCUK Nurse Dianne » Thu Jun 21, 2018 1:37 pm

Hi Margie,

I might take the opportunity to email you, there may be several reasons for Mum having the fluid in her tummy, and i can explain this further for you in direct contact.

With kind regards,

Dianne
Pancreatic Cancer Specialist Nurse
Pancreatic Cancer UK
Support line 0808 801 0707
Email: nurse@pancreaticcancer.org.uk

Margie
Posts: 3
Joined: Fri May 25, 2018 12:24 pm

Re: Mum Diagnosis

Postby Margie » Thu Jun 21, 2018 1:42 pm

Yes, please that would be great, do you require my email, or can you see it on file?

PCUK Nurse Dianne
Posts: 262
Joined: Tue Aug 14, 2012 2:29 pm

Re: Mum Diagnosis

Postby PCUK Nurse Dianne » Thu Jun 21, 2018 2:25 pm

Margie i have just sent you an email. Dianne