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PCUK Nurse Jeni
Posts: 955
Joined: Mon Jun 14, 2010 12:30 pm

Re: The nightmare so far....

Postby PCUK Nurse Jeni » Wed Aug 30, 2017 2:18 pm

Hello AndAde,

Thank you for posting an update concerning your husband.
I am sorry to hear that the appointment was not positive for you both.

Can I ask whether he was commenced on anything for his appetite then? Although I appreciate you said it was only in the past few days which it has decreased - so it might not have been apparent then.

Certainly, AndAde, there are some options for his appetite - has he ever had steroids? If he is not diabetic, then steroids such as Dexamethasone are very good for a reduced appetite - they cause you to feel hunger. They are also very good for inflammation and pain, also nausea, and they also boost energy levels. So, its very likely that he would benefit on a number of fronts from some steroids.

Certainly, this is something which you can ask your gp about - and its possible that he will feel a lot better on these.

I hope that this is helpful? Should you have any further questions, please do not hesitate to contact us - details are in the signature below.

Kind regards,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Didge
Posts: 776
Joined: Sun Dec 29, 2013 10:35 am

Re: The nightmare so far....

Postby Didge » Wed Aug 30, 2017 3:31 pm

Hi AndAde, sorry to hear things are not good. I do hope some of the suggestions bring an improvement and he is in the percentage that the 2nd line chemo works for. I feel for the dog too! He must sense that his master isn't well. How sweet! Xx

AndAde
Posts: 11
Joined: Thu May 18, 2017 7:51 pm

Re: The nightmare so far....

Postby AndAde » Wed Aug 30, 2017 7:16 pm

Adrian had steroids a couple of months ago. They worked brilliantly , and kick started his appetite again. He hasn't had any for about 4 weeks. He was very sick last night, so today I spoke to his palliative care nurse, who had been delighted with his progress, and she said he had to see our GP. The GP called this afternoon, she gave him a thorough examination and put our minds at rest. She thinks he might have a water infection or a problem with his salt levels, so we have nurses coming tomorrow to take blood, she's taken a water sample and wants a stool sample next time he goes!

This evening he seems to be improving, he ate some fillet steak and a few chips then sat downstairs with me for an hour, so I'm hoping its a bug that he is now recovering from, I'll let you know in the next few days xx

Didge
Posts: 776
Joined: Sun Dec 29, 2013 10:35 am

Re: The nightmare so far....

Postby Didge » Wed Aug 30, 2017 8:56 pm

That roller coaster again. Fingers crossed things continue to improve x

AndAde
Posts: 11
Joined: Thu May 18, 2017 7:51 pm

Re: The nightmare so far....

Postby AndAde » Sun Oct 01, 2017 4:47 pm

Good news on the chemo front, Adrian is coping well with the new regime.

He was weighed after the first cycle and he'd gained a pound so I was delighted!

The consultant is arranging another CT scan after 3cycles to see where we are. I just hope and pray its having a good effect for him.

I've had some technical issues, so I haven't been able to post for a while, but I have been reading the forum when I can. It keeps me sane xx

PCUK Nurse Jeni
Posts: 955
Joined: Mon Jun 14, 2010 12:30 pm

Re: The nightmare so far....

Postby PCUK Nurse Jeni » Mon Oct 02, 2017 3:33 pm

Hello AndAde,

This is great news to hear - also good to hear that he has gained weight - its often a boost to patients.

Wishing Adrian great success for the CT scan.

Kind regards,

Jeni.
Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707