A forum for family, friends and carers of pancreatic cancer patients

Moderator: volmod

Forum rules
Please see the messages in our "Rules" section

The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice
Dandygal76
Posts: 754
Joined: Sat Mar 12, 2016 9:49 am

Re: New diagnosis

Postby Dandygal76 » Sun Jul 09, 2017 4:59 pm

I think any and every decision around this cancer is brave... one of the bravest is to stop treatment. However, it depends on the person and I am proud that the two days before my dad died that he was planning more activities with my son and putting a bathroom in downstairs. That was absolutely the right decision for him and it had to be that way. You need to listen to your inner voice and to him. I believe, if he wants to fight, your next best option is GemCap and this is available on the NHS. Whether it is not having treatment or requesting more treatment the only thing I will strongly suggest is that you advocate for their choices and make people accountable. x

JaneTravers
Posts: 9
Joined: Wed Apr 19, 2017 5:34 pm

Re: New diagnosis

Postby JaneTravers » Mon Jul 10, 2017 1:59 pm

Hi Cjg
I'm so sorry to hear you have reason to be on this forum. I completely understand your shock and despair at your husband's sudden diagnosis. I hope I can help by sharing my experience so far.
My name is Jane, I'm a young 63 and was diagnosed with PC in March this year, completely out of the blue, having always been very fit and healthy, a keen runner and swimmer. Have had some major setbacks, including having to have 2 stents inserted and hospitalisation with neuropenic sepsis after 1st chemo session of Folfirinox. Today I am in hospital having my 2nd chemo. However, I want to tell you about the positives! Like you, my husband and I were looking forward to our retirement together, after a lifetime of work and bringing up a family. I particularly wanted to travel, especially to India and other far away places which we never had the time or money for before. We went through a period of grief that these plans were now in doubt. However, our family and friends have been incredible! We lived in Spain for 9 years, and friends we made there have 'popped over' to visit and we've had so many lovely family days, lots of fun and laughter. I have obviously given up my part time job and on the good days, of which there are many, love being at home, pottering in the garden, reading loads, seeing friends. Lots of people don't have this opportunity. My husband and I recently went away to Norfolk and had a wonderful time, I now value every minute of every day. Our daughter had planned her wedding for July next year (2018) but in light of my illness, and my recent 'near miss!' has brought it forward to this September 9th to make sure I'm there and on top form! So we are planning a wedding for 100 guests in 9 weeks, great fun. So I can honestly say, after you get over the grieving for what could have been, you can be happy again and see life as a precious gift, to be enjoyed a day at a time.
I hope this helps, and I wish you both all the luck in the world xxx

Cjg
Posts: 6
Joined: Fri Apr 14, 2017 8:16 am

Re: New diagnosis

Postby Cjg » Fri Sep 01, 2017 4:28 pm

On the 9th August, at the age of 52, my strong brave husband lost his fight, after just 5 months. Yesterday we said goodbye. I cannot put in to words how I feel, how unbelievable this awful journey has been. We asked for donations at the service yesterday and have so far raised over £800 for Pancreatic Cancer UK. We thought we'd have 2 years minimum. Life has been so cruel. I hope all of you out there with this terrible disease make the most of every minute like we did.

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: New diagnosis

Postby Wife&Mum » Fri Sep 01, 2017 6:27 pm

Dear Cjg
I am struggling to respond to your post as it is so heartbreaking but I want you to know that I am thinking of you and sending you my sincerest condolences. I hope the memories of your April wedding and the other good moments that you managed to share with your strong brave husband - despite the horrible diagnosis - bring you some comfort.
Love, W&M xx

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: New diagnosis

Postby Didge » Sat Sep 02, 2017 8:53 pm

Cjg, I am so sorry to hear your news. In fact very few people get 2 years. My partner who was operable managed 22 months. I know there are some who manage more but understandably they often don't come to the forum so much but just get on with their lives. But I completely understand how you hold on to that timescale and then to get so little is heartbreaking. Sending you lots of love for the times ahead. Didge xx

patrigib
Posts: 42
Joined: Sat Mar 05, 2016 7:53 pm

Re: New diagnosis

Postby patrigib » Sat Sep 02, 2017 9:32 pm

I'm so sorry ......... condoleances, just don't know what to say........

Quickasyoucan
Posts: 112
Joined: Tue Jan 17, 2017 10:06 pm

Re: New diagnosis

Postby Quickasyoucan » Sun Sep 03, 2017 10:01 am

I am so sorry for your loss. We all understand what you have gone through. The bad news and the hits seem relentless. If there is one good thing, it reminds us to tell our loved ones we love them and not sweat the small stuff. And remember you are not alone x

AndAde
Posts: 29
Joined: Thu May 18, 2017 8:51 pm

Re: New diagnosis

Postby AndAde » Mon Sep 04, 2017 1:01 pm

I'm so so sorry. There are no words xx

MaxineR
Posts: 8
Joined: Wed Aug 23, 2017 7:26 pm

Re: New diagnosis

Postby MaxineR » Mon Sep 04, 2017 4:15 pm

I am so sorry to read of your sad and devastating news and I wish you my sincerest condolences.

PCUK Nurse Jeni
Posts: 1019
Joined: Mon Jun 14, 2010 1:30 pm

Re: New diagnosis

Postby PCUK Nurse Jeni » Mon Sep 04, 2017 4:22 pm

Dear CJG,

I am so sorry to learn of your loss.

Please accept our condolences at this heartbreaking time.

I would like also to express our sincere thanks for your kindness towards the charity in the collection which you took up. It is greatly appreciated.

Jeni.
Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Proud Wife
Posts: 733
Joined: Sun Jan 17, 2016 9:28 am

Re: New diagnosis

Postby Proud Wife » Mon Sep 04, 2017 8:04 pm

Dear CJG

I am so very sorry for your loss. 52 is far too young and 5 months far too soon.

Thinking of you at this difficult time xx