A forum for family, friends and carers of pancreatic cancer patients

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Eileendonald
Posts: 12
Joined: Wed Feb 01, 2017 11:00 pm

Re: Our journey to date

Postby Eileendonald » Fri Feb 10, 2017 9:02 pm

Hi sorry not been talking but it's been a stressful week. Dad has gone down really fast since last week it's quite a shock. Our lovely Macmillan nurse Sarah came today and has told us that she will be surprised if he us still here on Monday and I feel she is right. He is so unsettled and is mumbling in his sleep. He has slept more or less for the last 48 hrs straight. We can't tell what he us saying and keeps pointing to something that's not there. Looks like it is going to be a long and tearful weekend. Xx

Marmalade

Re: Our journey to date

Postby Marmalade » Fri Feb 10, 2017 10:40 pm

hello Eileen,

So sorry to hear that Dad is so poorly but in some ways glad that his trial is approaching an end. I hope he is a little more settled now. You can call the community nurses or out of hours for a stat dose of medicine to help him settle if you are worried.

Sometimes the drugs or the cancer or high blood sugar can cause hallucination, some people believe that those in this position see a trusted friend or relative who has already passed coming to guide them across the divide. All you can do is try and reassure him, let him know that all is well and that moving on will not be a problem for him, there is noting for him to worry about. I have told a few others what we told Louis, that no one told us how to be born or how to laugh or how to cry and when the time comes he will know what to do and all will be well, it seemed to reassure him. It's all you can do, reassure and make everything as calm as possible. We moved all the medical stuff out, brought flowers in and read nice things to him or played his favourite music. They say hearing is the last thing to go and Louis liked us to be around chatting or reading, just company.

I hope that you all have a peaceful night and send love and prayers xx

Eileendonald
Posts: 12
Joined: Wed Feb 01, 2017 11:00 pm

Re: Our journey to date

Postby Eileendonald » Sat Feb 11, 2017 7:27 am

Hi dad passed in the night very peacefully. 1 day short of 4 weeks from diagnosis. Thank you all for your kind thoughts and messages and my prayers are with you all xxx

Marmalade

Re: Our journey to date

Postby Marmalade » Sat Feb 11, 2017 8:17 am

So sorry for your loss Eileen, losing a parent is always hard. I hope that in time you will find comfort in the many memories of when Dad was fit and well and full of life.

God bless you all xxxx

Justamo
Posts: 468
Joined: Sun Sep 04, 2016 10:38 pm

Re: Our journey to date

Postby Justamo » Sat Feb 11, 2017 10:20 am

So sorry Eileen.
I can tell you from experience that in time all the sad and painful feelings will pass and the memories you recall most often will be the happy ones.
Take time to grieve, be kind to yourself and do exactly what feels 'right' to you.
Kind thoughts.
Mo

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Our journey to date

Postby sandraW » Sat Feb 11, 2017 10:21 am

Eileen, I am so sorry to hear you have lost your lovely Dad.
This is such a wicked disease, and it can progress so rapidly, at least Dad is now at peace and free from pain and discomfort. You will be in shock that it all happened so quickly, in the space of weeks your Dad was diagnosed and then he is gone. Please take care, sending you love and strength to get you through sandrax xx

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Our journey to date

Postby Wife&Mum » Sat Feb 11, 2017 12:10 pm

My sincere condolences Eileen.
Love, W&M xx

Eileendonald
Posts: 12
Joined: Wed Feb 01, 2017 11:00 pm

Re: Our journey to date

Postby Eileendonald » Sat Feb 11, 2017 5:09 pm

Thank you all so much for your kind words. I have found this forum to be so comforting as I'm not one to show others how I feel. Im the one who puts a brave face on for everyone else and I have found so much need to talk on here l. This is a horrible disease and I can't believe that it is so hard to diagnose and that it can kill so fast. But thank you everyone you have helped me loads xxxxxxx

Veema
Posts: 503
Joined: Mon Feb 02, 2015 5:35 pm

Re: Our journey to date

Postby Veema » Sat Feb 11, 2017 7:24 pm

So sorry Eileen.

Huge hugs...keep posting, it does help.

Vx

fionaw
Posts: 20
Joined: Thu Feb 09, 2017 4:42 am

Re: Our journey to date

Postby fionaw » Sun Feb 12, 2017 7:11 am

Thinking of you, and your dad, and your family.

peter2901
Posts: 8
Joined: Wed Jan 18, 2017 9:33 am

Re: Our journey to date

Postby peter2901 » Sun Feb 12, 2017 8:04 pm

Thinking of you and your family . Everyone on here has a link with this horrid disease and share your pain . Our thoughts and prayers are with you all x

Elaine123
Posts: 204
Joined: Tue Nov 29, 2016 6:49 pm

Re: Our journey to date

Postby Elaine123 » Mon Feb 13, 2017 8:07 am

Eileen I am really sorry about your Dad and how quickly this rotten disease took him. Please keep posting if you feel you need to as you know that people who have been through this will respond. Take care stay strong
Elaine
X

PCUK Nurse Jeni
Posts: 1063
Joined: Mon Jun 14, 2010 1:30 pm

Re: Our journey to date

Postby PCUK Nurse Jeni » Mon Feb 13, 2017 10:23 am

Hello Eileen,

We are very sorry to hear of your dad's passing.

It is good that your dad was peaceful, and that you were almost already preparing for this having had the nurse confirm what you were thinking yourself.

It is a shock to see your loved one go downhill with this disease Eileen, and as Mo said, take your time in this process.

On behalf of all the nurses, and the wider charity, we would like to express our sincere condolences to you and your family at this sad time.

Kind regards,
Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: support@pancreaticcancer.org.uk
support line: 0808 801 0707

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Our journey to date

Postby jay » Mon Feb 13, 2017 10:46 am

I am so sorry to hear about your Dad. Thinking of you
love Jayne
xx

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Our journey to date

Postby Didge » Mon Feb 13, 2017 1:54 pm

Sincere condolences,I am glad it was peaceful. thinking of you in the day ahead x