A forum for family, friends and carers of pancreatic cancer patients

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sandraW
Posts: 990
Joined: Thu Oct 31, 2013 5:38 pm

Re: Thanks for sharing your experiences . . .

Postby sandraW » Thu Aug 24, 2017 8:38 am

Mo, what can I say. I am just glad, Peter made the most of his time when he was feeling well.
I think we do just get a sense of what is actually happening, when we know our loved ones so well. Hopefully when he gets his pain relief right, he will feel a bit better but it is so hard.

Boris is truly spoilt just as he deserves to be and I know you showed him my post about him not using the watering can so he would prove me wrong.

There certainly are lots of spiders about, I have just found a reasonable sized web in my lounge, I only cleaned it on Sunday, so the spider has been very busy, I felt a bit mean destroying it, spiders don't really bother me tbh as long as they are not too big I can cope.

As for you pretending there is no such thing as PC, why not,worry will not change any outcome
what will be will be, and hopefully you had a good 6 weeks respite.

You problems with you back sound truly horrendous, mu SIL has had a similar problem, she had a small fall and they found about 4/5 fractures she is coping okay at the moment, but it must be a real worry for you. Sending love and ((hugs)) to you both take care love sandrax xx

Quickasyoucan
Posts: 73
Joined: Tue Jan 17, 2017 10:06 pm

Re: Thanks for sharing your experiences . . .

Postby Quickasyoucan » Thu Aug 24, 2017 9:46 am

I'm sorry no one has the right to be scared of spiders unless they've seen the buggers we have in Oz😱.
Mo I am sorry to hear Peter is not feeling so sprightly but boy has he done well so far. Hopefully if changes are shown his tumour will continue to be a slower grower or respond to more treatment.
Dad would have been 84 last Friday a similar age to Peter.
Am sorry to hear about your pelvis that sounds painful. Shame there is no miracle glue invented yet for bones!
Boris sounds like a pig in muck in his life of luxury. All the best xx

Marmalade
Posts: 18
Joined: Thu Jul 06, 2017 3:29 pm

Re: Thanks for sharing your experiences . . .

Postby Marmalade » Sun Aug 27, 2017 1:31 am

Darling Mo,

I am so sorry I have been lax in messaging with you. I can't fix it of course but you should know that we are all here, making time and walking with you in good times and bad.

I'm glad Peter has broken his silence on his prognosis and that you will know what he ideally wants to happen to him as things progress. I completely agree that it does not have to dominate the time you have, talk about it, have a good cry and then get on with making things as good as they can be for as long as possible. You will find that the rule books start to be thrown out in favour of comfort and whatever pleasure can be found.

You have been a terrific career and have given Peter and us so many good days. You may well have reached another unwelcome milestone but dips on the roller coaster can be followed by some really good days, not as many perhaps and not lasting as long but still good.

You are brave and an awesome wife and friend, I know you will help Peter face whatever comes along. Please do not ignore your own health, it should not be either his health or yours.

I send you love and prayers Mo and heartfelt wishes for an easy journey. Keep posting.

M xxx

Dandygal76
Posts: 688
Joined: Sat Mar 12, 2016 9:49 am

Re: Thanks for sharing your experiences . . .

Postby Dandygal76 » Mon Aug 28, 2017 11:10 am

Lovely Mo. I wish I had words and actions that could make things better but I don't. It is important though that you know we have walked your path and that we are here for you. It is always such a pleasure when people do not post because they are living their lives - I find great comfort in it. Now I think you may be on PC planet a bit more... pull up those socks, feed the cat and come here whenever you need. PC has a mind of its own and we will all roll with whatever it brings - with you. x

Justamo
Posts: 364
Joined: Sun Sep 04, 2016 9:38 pm

Re: Thanks for sharing your experiences . . .

Postby Justamo » Wed Aug 30, 2017 9:10 pm

Hi folks. I'm trying a bit of distraction therapy so have organised a lunch for the girls at the aquarobics class. And negotiated a free lunch so that we can invite our instructor as our guest ! Sore bones not withstanding, I went to the class today and can manage so long as I don't do any jumping things.

Peter appears quite laid back about Friday's appointment, but appearances can deceive - as we all know. He claims to be feeling sick, and tonight's supper got scraped, almost untasted, into the bucket. I suggested the anti-nausea pills, but he tells me that it's 'not that sort of sick'.

Tomorrow he's arranged an outing with a friend, so that will help take his mind off things.

Thanks for all the support. Much needed, and much appreciated.
Love
Mo

Marmalade
Posts: 18
Joined: Thu Jul 06, 2017 3:29 pm

Re: Thanks for sharing your experiences . . .

Postby Marmalade » Thu Aug 31, 2017 10:51 pm

Hi Mo,

PW wants me to tell you she is thinking of you and sending positive vibes, she is having some trouble accessing the forum at the moment.

I will also be thinking of you both tomorrow as always M xx

Dandygal76
Posts: 688
Joined: Sat Mar 12, 2016 9:49 am

Re: Thanks for sharing your experiences . . .

Postby Dandygal76 » Fri Sep 01, 2017 9:36 am

Hey Mo

I hope the scan is okay today. I know our patients can be stubborn as well but I truly believe it is better to nip the symptoms in the bud than let them develop too far and try to get on top. Easier said than done I truly know.

Blips R Us all round I hope.

Much love

xxx

Wife&Mum
Posts: 360
Joined: Thu Dec 03, 2015 3:12 pm

Re: Thanks for sharing your experiences . . .

Postby Wife&Mum » Fri Sep 01, 2017 9:40 am

Mo, sending my very best wishes for a positive meeting today.
W&M xx

Justamo
Posts: 364
Joined: Sun Sep 04, 2016 9:38 pm

Re: Thanks for sharing your experiences . . .

Postby Justamo » Fri Sep 01, 2017 9:01 pm

Thank you lovely people for all your positive vibes and virtual hugs today. I felt every single one of them.

My Patient and I reported to our lovely Dr Feelgood at 9am promptly. This time Peter was actually With Us, if you know what I mean, as opposed to being there in body but absent in mind and spirit.

Dr Feelgood asked about the pain, and Peter showed him where it was. With a little gentle prompting from Dr F he admitted that yes, the pain was in his back as well, and that it did lessen if he changed position and either laid flat or stood upright. We told him, between us, about other rather worrying symptoms including a feeling of fullness after half a meal, and almost non-stop hiccups. Meantime I am trying very hard to read the notes on the scan which were displayed on Dr FG's computer screen and almost falling off my chair in the process, so he took pity on me and started to read out heavily redacted bits of the report.

The scan, it seems, was not terribly clear. (Really ? A CT scan ?) The tumour was not displayed very clearly because of the stent. (?) However, he didn't mention any spread to liver or lungs. I asked if a CA19.9 test had been done from the last lot of blood, and it hadn't, and he agreed to take a blood sample straight away which would be sent to Sheffield for CA19.9 testing.

He spent some time telling Peter that he had had a good year, with relatively few problems, despite being diagnosed with a terminal illness. At this, Peter blanched, because he had never really admitted to himself that it was a terminal illness, but now his head was out of the sand so he had to take it on board.

He now wishes to discuss Peter's case with the Radiotherapy Consultant. He went on to explain that radiotherapy could help with the pain, but sometimes it can cause bleeding, so there would be a full discussion with the MDT before any action was taken. He also mentioned, briefly, surgery, but didn't suggest further chemotherapy. He arranged a further appointment for 22nd September, and that was that. So, actually, we are no further forward.

Peter sees all this as bad news, but I see it as moderately reassuring news in that no mets anywhere in his abdomen or lungs were mentioned. It's really hard for Peter to take all this on board; having pretended that there was nothing wrong that a few indigestion tablets wouldn't sort out to coming face to face with his own mortality is a tough call. Which is the right way ? I've been looking at this forum since July last year; Peter was diagnosed two months later. I have consulted Dr Google on every possible outcome, had masses of advice and support from this forum, and agonised over everything on a daily basis. I've wept buckets when forum members have lost their loved ones and rejoiced at others' good news and Peter has been oblivious to the whole lot and just concentrated on his golf.

So we trotted round Tescos, tootled off to the next town and looked round the shops, bought a sandwich in a nice small bakers and ate it in the car, and generally had a day off. It was still dry when we got home so I got the lawnmower out and My Patient came and took it away from me when I was halfway through and finished it all off. We had supper off trays in front of the telly, took lots of phone calls, and Peter watched the football and screeched every time somebody scored while I pottered about. My Fitbit says I did 7500 steps today, most of which were in the hospital corridors.

Boris feels neglected, so I had a game with him, and now he's sitting on my left foot while I type this on a proper keyboard. I think it's time for bed - it's been a long and weary day.

And I have learned the hard way that No News isn't necessarily Good News.

Love
Mo

Wife&Mum
Posts: 360
Joined: Thu Dec 03, 2015 3:12 pm

Re: Thanks for sharing your experiences . . .

Postby Wife&Mum » Sat Sep 02, 2017 8:50 am

Hi Mo

I would take it as a really good sign that there was no mention of mets and that Dr Feelgood even mentioned surgery again. I know you and Peter have decided that surgery is a no no, but have you also decided against more chemo? If not, I'd be inclined to go back to Feelgood to discuss it.

And long may Peter continue to fully focus on his golf. Psychologists say that when there are worries, women tend to ruminate and men tend to distract. That's certainly true for hubby and me.

Wishing you a day full of pleasant distractions for you both.

W&M xx

Veebee
Posts: 77
Joined: Thu Feb 16, 2017 4:31 pm

Re: Thanks for sharing your experiences . . .

Postby Veebee » Sat Sep 02, 2017 1:49 pm

Hi Mo....I'm happy to know that Peter is still managing the England team in among all his other sporting roles and that you are keeping the home fires burning. I loved reading the bit about him taking over the mowing...Allan used to do that with me sometimes...just come out and say nothing but take the mower off me. It's given me a warm glow. It's a lovely gesture. No mets has got to be good news for you both, so try to focus on that. Have a good weekend...I'm off to cut the grass now as it's waving at me. xxx

Quickasyoucan
Posts: 73
Joined: Tue Jan 17, 2017 10:06 pm

Re: Thanks for sharing your experiences . . .

Postby Quickasyoucan » Sun Sep 03, 2017 9:03 am

Mo sending you, Peter and Boris good thoughts from down under. X

Justamo
Posts: 364
Joined: Sun Sep 04, 2016 9:38 pm

Re: Thanks for sharing your experiences . . .

Postby Justamo » Sun Sep 03, 2017 7:35 pm

Quickly, I read out your message to Peter, and he says 'thanks'. He played 15 holes of golf this morning, ate his lunch, and has been Power Napping ever since. Boris is Power Napping in one of his sleeping bags and I'm thinking about doing the day's washing up.

Any more thoughts on sharing your life with another dog ? Or is it too soon after losing Jake ?

Love, Mo

Quickasyoucan
Posts: 73
Joined: Tue Jan 17, 2017 10:06 pm

Re: Thanks for sharing your experiences . . .

Postby Quickasyoucan » Mon Sep 04, 2017 9:39 am

Mo, 15 holes that's pretty impressive!
I have expressed an interest in a puppy from my dog trainer's labrador who was due to be mated in October but this has now been postponed till her next season. To be honest still struggling without my jakey and dad, so not a bad thing to have some time. Likely to be this time next year if a suitable pup eventuates.
Thanks for asking. Sending positive thoughts to you b and p. X

Veema
Posts: 354
Joined: Mon Feb 02, 2015 5:35 pm

Re: Thanks for sharing your experiences . . .

Postby Veema » Mon Sep 04, 2017 5:51 pm

Mo...does Peter take something like omeprazole / lansaprazole etc? It helps the creon do what it's supposed to and might help with the feeling full.