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allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Wed Sep 16, 2015 7:58 am

Thank you everyone for your messages. My dad was very withdrawn yesterday, and had actually asked to be moved to a side room for privacy. The nerve block went ahead and bless him he had to lie on his stomach for 4 hours after which was really difficult for him. I spoke to his palliative nurse yesterday and explained what had happened the day before, just see what today brings. I will definitely be complaining though!
Thanks again
Alison

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: My Dads diagnosis

Postby jay » Wed Sep 16, 2015 8:54 am

Ah Alison my heart goes out to you and your Dad. Hopefully the nerve block has eased your Dad's pain.
love Jayne
x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: My Dads diagnosis

Postby Sueoliver » Sat Sep 19, 2015 9:14 am

Hi Alison,
Has the nerve block helped? How is your Dad today? Thinking of you both.
Love Sue x

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: My Dads diagnosis

Postby sandraW » Sun Sep 20, 2015 12:36 pm

Hi Alison,
Hope Dad is feeling a bit more comfortable now, take care sandrax xx

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Sun Sep 20, 2015 10:40 pm

Hi all. Thank you all for replying. My dads nerve block seems to have worked. He has a lot less pain and is comfortable, he just has a bit of pain in his right shoulder blade? Maybe the way he was laid? He has been constipated maybe the medication? Thanks so much for replying its a big help to hear from other people. He is still quite withdrawn but what can I expect after the Dr last week, I have written a complaint about the way she addressed it so see what happens!
Alison

kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: My Dads diagnosis

Postby kittycat » Mon Sep 21, 2015 6:48 am

Hi Alison, so glad your Dad's pain is now better controlled at long last. Everything seems to take an age when you need it quickly. I can understand his mood being low, my Roger is pretty much the same and doesn't seem to be getting any better. Hope you have a better week. Take care.

Sue

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: My Dads diagnosis

Postby Sueoliver » Mon Sep 21, 2015 9:04 pm

Hi Alison,
I am glad the nerve block seems to be working that must bring some relief. I don't blame you for writing a complaint although I think a majority of these Dr's need training in bedside manners!
Stay strong.
Love Sue xxx

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Wed Sep 23, 2015 9:16 pm

My dad has being suffering with severe constipation after the district nurse coming out 3 times to do enemas nothing seems to be working and he is in great discomfort,feeling sick also.He just seems to have one thing after another and its so unfair

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Thu Oct 08, 2015 7:41 pm

My dad has being admitted to the Hospice on Tues as his pain was too much. It's right below his right shoulder blade and towards his spine. He has had it weeks but its got more severe,the Drs said its muscular and have just prescribed voltarol gel but its never touched it! The Hospice have arranged an xray tomorrow to see what it is?.He has really deteriorated and I asked the palliative nurse how long he had left,I kept putting it off asking but we really need to know, she said short months, so I presume about 3 if we are lucky! The main thing worrying my dad is will he suffer at the end, he has suffered since he was first diagnosed last November, he has had nothing but pain. It's so cruel, and I cannot think straight I go to bed thinking about him, cannot sleep and wake up thinking about him. Wish there was light at the end of the tunnel, but we know there isn't
Alison

Fifi

Re: My Dads diagnosis

Postby Fifi » Thu Oct 08, 2015 9:23 pm

Hi Alison,

Sorry to read about your Dad. It shocked me to read the GP's have given him Voltarol for pain, the only words that come to mind for that are swear words, so disgusting.
They should hopefully tell you the results of the xray straight away, I really hope it isn't anything bad.
While he is in the hospice, hopefully they can get his medications correct, and sort out his pain. Hopefully they can keep that balanced, and if his pain increases, they can just increase it to cope with it.
If they can get this sorted for him now, it might give your Dad the confidence he needs that when the time does come, the pain will be made comfortable and he won't suffer.
What are the staff like? Are they caring and trying to help?

Leila xx

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Fri Oct 09, 2015 8:43 am

Thanks Leila

The staff are absolutely brilliant, he does seem quite happy there but he still wants to go home until the end, I know its going to be hard for us all but its what he wants. I just feel in a blur all the time and can't concentrate on anything.
Alison x

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 6:35 pm

Re: My Dads diagnosis

Postby Marieb » Sun Oct 11, 2015 8:55 pm

Hi Alison

I have just been reading through your recent posts about your lovely dad and the pain in his shoulder blade. I have suffered from that type of pain from the start. My specialist nurse has told me this is typical Pancreatic pain, it can be on right, radiates up the spine and into shoulder blades and can be a sign of inflammation.

Just thought I would mention it. I use Matrifen patches and top up with Oramorph solution up to hourly as required.

I hope your dad gets some relief, for me it was excruciating.

Marie X

Marie X

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Mon Oct 12, 2015 7:06 pm

Thank you Marie for your reply.
It sounds very similar to my dads pain, they are awaiting xray results and are treating for a chest infection too. I will bear what you said in mind and let them know.

Thank you

Alison x

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Sun Oct 18, 2015 7:11 pm

Marie, I wanted to ask about the patches you have for the back pain? Do you have other medication besides that? My dad is on slow release oxycodene twice daily, just thought I would check before mentioning to the Dr and hope you are feeling ok xx

Alison

Fifi

Re: My Dads diagnosis

Postby Fifi » Mon Oct 19, 2015 8:50 pm

Hi Alison,

Sorry for interrupting but my Dad was on Oxycodone. He had plenty of other medicafions as well. Loperamide for diarrhoea, codine fir diarrhoea. Pragablin for sciatica. Paracetamol for pain. Dexamethasone for weight gain and liver pain. Rifaximin for Small Bacterial Overgrowth. Domperidone for sickness. Fragmin injections to prevent blood clots.
Oxycodone is good for pain relief. Dad did have the liquid oxycodone for a while, and results were pretty istant. He did move on to the slow release patches, and I believed these worked well also.

Leila xx