A forum for family, friends and carers of pancreatic cancer patients

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allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

My Dads diagnosis

Postby allyc1 » Wed Jul 15, 2015 10:18 am

My dad has being diagnosed with inoperable pancreatic cancer at the head of his pancreas, it is locally advanced but unable to operate as it is on an artery. He is having chemotherapy fortnightly, but has been unwell so is missing this one, and they have reduced it. He has lost over 6 stone in weight since November 14, but i think a lot of it was the stress. His moods are very up and down, more down then up, and i find it so hard to be strong.I woukd like to know if other people are going through the same, as he feels so isolated and he we just dont know the outcome. I woukd appreciate any feedback if anyone has the same diagnosis or has gone through it as i feel really helpless.
Thankyou

LMD
Posts: 120
Joined: Tue Apr 15, 2014 10:06 pm

Re: My Dads diagnosis

Postby LMD » Wed Jul 15, 2015 3:53 pm

Hi there
So sorry to read about your Dads diagnosis. Just to say hello .. You'll find a lot of support and information here and you can always telephone the nurses if you'd like to speak to someone. (They're amazing and so helpful)
My advice just now would be to try and take each day as it comes. I hope your Dads next chemo goes well. Try and stay strong and positive (I know it's hard though) sending you a hug x

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Wed Jul 15, 2015 8:47 pm

Thankyou for your reply, and i know to take one day at a time as each day he is different.

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: My Dads diagnosis

Postby sandraW » Thu Jul 16, 2015 12:31 am

Hi Ally,
Sorry to hear about your Dad, I too wanted to welcome you to the forum.
It is all so scary I am not surprised your poor Dad is feeling the stress. My husband did get down at some points in his treatment, but on the whole managed to stay positive and upbeat, but everyone is different in how they handle things.
The not knowing what is going to happen is the worst, the constant highs and the lows, are all so draining and we are all going through, or have been through it, just like your are now. The feeling of helplessness is normal too, and we are helpless, caught up in the endless round of appointments and treatment, all we can do is support and love them.
I hope the treatment helps your Dad have more time and a better quality of life, is he taking Creon? and the fortified drinks, they help too with weight control.
Keep posting and let us know how you Dad is doing, take care sandrax

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Thu Jul 16, 2015 7:25 am

Thanks Sandra
He is taking the creon and the fortified drinks and we are seeing the consultant today to see how the ct scan went, and hopefully it hasnt spread anywhere else, at his last scan it hadnt so fingers crossed x

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: My Dads diagnosis

Postby jay » Thu Jul 16, 2015 9:58 am

Welcome to the forum Ally,fingers crossed for the scan results.
Take care ,
love Jayne
x

kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: My Dads diagnosis

Postby kittycat » Thu Jul 16, 2015 6:02 pm

Hi Ally, hope the oncologist appointment went well. My husband was diagnosed with the same as your dad and he lost weight last year but the doctors just ignored it and said it was less to carry around. He was only 8St 11lbs to start with and is now about 7st but he has good days and bad and we just enjoy everyday as best we can. I know it's difficult and it breaks your heart seeing your loved ones going through this but there is a tremendous amount of support on here and the nurses are excellent so keep posting and take care.

Sue

Levi1
Posts: 13
Joined: Sat Jul 04, 2015 10:16 am

Re: My Dads diagnosis

Postby Levi1 » Thu Jul 16, 2015 6:31 pm

Hi ally,

I'm going through the same with my mum at the moment. We are still waiting for the biopsy at the moment but should be within a week for that. We as a family are committed to try nanoknife, I've read a lot into it and seems like the best option as they can go close to blood vessels etc with this treatment. It's definitely worth doing all the research you can as already in this early stage it seems that I have told the GP what we can do to help my mum rather than him tell us.

I've got strength from talking about it on here and with people around me- stay strong and most of all positive!

Levi

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: My Dads diagnosis

Postby Sueoliver » Thu Jul 16, 2015 8:34 pm

Hi Ally,
I am sorry about your Dad. Welcome to this forum you will find it invaluable. Everyone is helpful and most of all everyone understands. It is hard to be strong but somehow we manage it. I am sure you are a tremendous support to your Dad.
Stay strong and take care.
Love Sue x

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Fri Jul 17, 2015 7:18 am

Thanks for your replies, we got positive news yesterday the consutant thinks the tumour has reacted well to the chemo and definitely hasnt spread, in fact he thought it may have shrunk!. He thinks the next course of action will be a block of Radiotherapy on its own. Has anyone else has this? My dad was told if its shrunk enough they may try to operate (whipples op)but he has heard bad stories from this, and the consultant himself said that 4 out of 5 have the cancer coming back.Thanks for taking the time to read it really does help to think other people are going through this

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: My Dads diagnosis

Postby sandraW » Fri Jul 17, 2015 2:34 pm

Hi Ally,
There are people that do very well after surgery, it is the only cure! but its also true that the cancer does come back in a lot of cases, I think that's because it lies dormant in the liver, then raises its ugly head again, a few months after surgery.
My husband had surgery in September 2013, and we found the cancer had returned in the liver in Jan 14 but he did have a very aggressive form and they found cancerous cells in two lymph nodes, after surgery.
He had 5 fu and Folfirinox chemotherapy, 23 in total, and remained really quite well throughout, he had a 5 and a half month break last summer and had a wonderful time working in his garden and going on holiday. He died in April this year, but was only really unwell for a short time and I know for certain he was glad he opted for surgery.
It is of course a personal choice and surgery is usually only offered if there appears to be no spread, but this is a very sneaky disease.
Best wishes to you your dad and family, and I hope he gets the chance for surgery, he might well be one of the lucky ones, take care sandrax

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Fri Jul 17, 2015 5:06 pm

Thanks Sandra, sorry to hear about your Husband. How was your Husband after the surgery? Its a really big op isnt it? Did your husband have Radiotherapy also? I appreciate your advice as it is all so new to us x

rsk1974
Posts: 80
Joined: Thu Jul 31, 2014 1:21 pm

Re: My Dads diagnosis

Postby rsk1974 » Fri Jul 17, 2015 5:39 pm

Whipples is a big op, but if that's an option then that's surely a positive as so many people don't have this option. My dad had it, but I would have also understood if he didn't have it as it's a big operation. He then had a 6 month course if chemo after.

rsk1974
Posts: 80
Joined: Thu Jul 31, 2014 1:21 pm

Re: My Dads diagnosis

Postby rsk1974 » Fri Jul 17, 2015 5:42 pm

Whipples is a big op, but if that's an option then that's surely a positive as so many people don't have this option. My dad had it, but I would have also understood if he didn't have it as it's a big operation. He then had a 6 month course if chemo after.

knutsford4
Posts: 45
Joined: Sun Sep 28, 2014 3:24 pm

Re: My Dads diagnosis

Postby knutsford4 » Fri Jul 17, 2015 10:28 pm

Hi allyc1
My husband had full whipples in Oct 2012, took all the complications, was in hospital 8 weeks, got the all clear, did 6 months of preventive chemo, went back to work, January 2014 came back give him 3 months, more chemo so far he's had a total of 23 months of chemo but he's still here, ups and downs but leading a good life and even taking about doing a cruise when he gets his CT results next week, so hopefully you dad will do good and work to his agenda not the docs
Good luck