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sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Sat Feb 20, 2016 9:50 pm

Ty all for your continuing support Steve has not got out of bed today and eaten 2 dry crackers and a ice lolly .refusing to let me wash him and hasn't even done his teeth,so not like him he was always so fussy about hygiene.hopefully have a better day tomorrow

shelda
Posts: 59
Joined: Thu Feb 04, 2016 11:41 pm

Re: frustrated

Postby shelda » Sat Feb 20, 2016 10:25 pm

Oh Sheena so sorry to hear that Steve is like this, it's so so hard seeing them like this almost given up on themselves and then to feel you haven't got the support from the local medical team...this is the most frustrating part and you just want to scream of how unacceptable it is to let a human being just be left like this with no help!!! Sending you lots of love, so so brave xx
Last edited by shelda on Sun Feb 21, 2016 1:57 pm, edited 1 time in total.

boa
Posts: 131
Joined: Thu Jul 09, 2015 1:13 pm

Re: frustrated

Postby boa » Sun Feb 21, 2016 8:45 am

Hope today is good for you. I understand exactly how you feel. My husband ordered a new razor when he really wasn't too good because he was very particular just like your Steve but then he refused to wash. I think they just feel too tired. I'm thinking of you.
Catherine

kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: frustrated

Postby kittycat » Sun Feb 21, 2016 10:06 am

He sheena, although I don't post much now, I have been following your story and I'm know what you're going through. Roger had always been particular about his appearance and then just didn't want to be bothered with washing - I think they must be so tired that it's just too much. You do a wonderful job looking after him and I hope that you get a hospice place soon, just so that you can have a little respite. Having said that, Roger was at home and I was offered someone to stay overnight so that I could sleep and there was no way I could sleep while he needed care. Take care. Sue x

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Mon Feb 22, 2016 8:14 pm

Steve went into hospice this morning it is a beautiful place.He is very happy at being there.He has eaten a small amount and Dr came this evening to sort out his meds.Will try to do catch ups when I can.I feel so different as if a lot of weight has been lifted off of me.

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: frustrated

Postby Didge » Mon Feb 22, 2016 10:40 pm

That's good news - try to get some rest while you can now xx

shelda
Posts: 59
Joined: Thu Feb 04, 2016 11:41 pm

Re: frustrated

Postby shelda » Tue Feb 23, 2016 1:27 am

Really hope Steve (and you) get the help you need now, glad he seems to have settled there xx Shel xx

kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: frustrated

Postby kittycat » Tue Feb 23, 2016 7:19 am

That's good news - you'll both feel better now.

Sue x

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: frustrated

Postby sandraW » Tue Feb 23, 2016 11:43 am

Hi Sheena,
Its totally understandable that feeling of relief, you now have people to help you look after Steve, and you won't be so worried all the time.
I am glad its such a beautiful place, ours was as well, and all the staff are so caring, special people needed to work at such special places.
I hope you get to spend some quality time with him now the worry has been lifted and I hope he feels happier now that he's settled.
love sandrax xx

PCUK Nurse Jeni
Posts: 1063
Joined: Mon Jun 14, 2010 1:30 pm

Re: frustrated

Postby PCUK Nurse Jeni » Tue Feb 23, 2016 12:36 pm

Great news Sheena!

Agree with Didge - try and get some rest yourself while he is being well looked after.

Hospices are peaceful and happy/sad places all at once, but they do a great job caring for people.

Jeni.

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Tue Feb 23, 2016 6:30 pm

Been to see Steve. He looks like a different person. Pain etc under control have upped his anti sickness meds and anti-depressants. Now working on opening his bowels. He has eaten a few small bits, and had a Jacuzzi bath - lovely.

Nurses reckon he will stay for a couple of weeks if he can carry on eating, but he can stay longer if necessary. I am so glad he is happy and hopefully I can try to chill out as well x

boa
Posts: 131
Joined: Thu Jul 09, 2015 1:13 pm

Re: frustrated

Postby boa » Wed Feb 24, 2016 7:42 am

Good to hear this. I think you will find Steve will be most comfortable and it will give you a chance to be more relaxed. Hospices are wonderful with superb people working in them.
Catherine

PCUK Nurse Jeni
Posts: 1063
Joined: Mon Jun 14, 2010 1:30 pm

Re: frustrated

Postby PCUK Nurse Jeni » Wed Feb 24, 2016 9:39 am

Amazing news Sheena!

So pleased for Steve - this is why hospice care is so good. Its a model that definitely needs replicating.
Long may it last.

Jeni.

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: frustrated

Postby Sueoliver » Wed Feb 24, 2016 6:20 pm

Hi Sheena,
Mum spent 4 weeks in the hospice and they were truly wonderful. They are dedicated and can't do enough! I hope you are ok look after yourself as well.
Love Sue x

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Wed Feb 24, 2016 7:57 pm

Oops Steve has lost 2lbs in weight ,head of home has told staff he has to eat during the night as well .He has been listening to mp 3 player and when I got there he gave me a really long list of songs he wants at funeral.I replied omg how long do you want your funeral to last .we both burst out laughing which is good as at the time I was about to cry.I'm unsure if he will come back home as certain things he says is as if he has accepted he won't.my daughter son in law grandson and my youngest son travel to Australia tomorrow for a month.my son came to see Steve tonight and left upset as he thinks this is his last goodbye.I have been out for coffee today and caught up on lots of bits had a long bath and I am planning a early night .love to all xx