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kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: frustrated

Postby kittycat » Sun Jan 24, 2016 3:25 pm

Hi sheena, Roger enjoyed rice puddings or soup and he also liked bananas and custard. Although he had diabetes there are low sugar varieties available. Hope you have some joy with your go next week.

Sue

Ant11
Posts: 125
Joined: Sun Dec 01, 2013 8:43 pm

Re: frustrated

Postby Ant11 » Sun Jan 24, 2016 7:08 pm

Hi Sheena, a great thing for heartburn is Peppermint Water. The doctors can prescribe this and is really helps. Good luck

Fifi

Re: frustrated

Postby Fifi » Fri Jan 29, 2016 6:39 pm

Hi Sheena,

What happened with the GP?

Leila xx

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Sat Jan 30, 2016 10:28 pm

Hi all not a lot has changed this week.Steve is eating a bit better but Dr has only prescribed 12 steroids is this normal would of thought if they were helping Steve eat he should be taking them all the time ? palliative care nurse came home on Tuesday she was lovely and surprised we had already discussed what Steve wanted care wise.feel happier now I have her support.worked out Steve has lost 7 1/2 stone in 10months he really looks skeletal so sad .received drs Bill 2 consultations and 1a&e visit £240 the joys of living on an island.hope everyone else is ok sending hugs x

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Sat Jan 30, 2016 10:38 pm

Forgot to say indigestion /heartburn is under control thank God as Steve was so uncomfortable with it

Proud Wife
Posts: 740
Joined: Sun Jan 17, 2016 9:28 am

Re: frustrated

Postby Proud Wife » Sun Jan 31, 2016 7:28 pm

Hi Sheena

I have no idea about the steroids although my husband is still on them, albeit on a lower dose because it certainly helps with his appetite. You say you live on an island and I don't know if I'm allowed to ask where on the forum as it's so public?

I know there are plenty of people who know more than I do so I'm sure they can shed some light on why you were only given 12 tablets. My heart goes out to you that you have to pay for healthcare though. That must feel like a real punch in the face at a time like this. Great Steve's heartburn sorted. That's a lot of weight to lose in 10 months. Hopefully the steroids (even 12 of them) will help him to eat some more and if he can put on a little weight, that should help too.

Take care xx

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Wed Feb 03, 2016 8:41 pm

Saw dietician who says Steve is taking too much creon. So had a go at her and said don't think so. He isn't allowed the fortisips as too much sugar. Didn't really learn much from her so a waste of time.

Steve wasn't feeling good yesterday so went to see chemo nurses. His blood sugar has gone up to 31·7mmols. So diabetic nurse has started him on another tablet. Took his levels today and thankfully have dropped to 17·8.

Steve is feeling irritable and is very restless - hoping he will be feeling brighter by weekend.

PCUK Nurse Jeni
Posts: 1063
Joined: Mon Jun 14, 2010 1:30 pm

Re: frustrated

Postby PCUK Nurse Jeni » Thu Feb 04, 2016 1:42 pm

Well done Sheena in your answer about the creon!

Of course, there is no such thing as "too much", as simply, the body will get rid of what it does not need, just like what happens when a normal pancreas makes "too much".

So sorry to hear about Steve's blood sugars - very high all right, no wonder he has not been feeling well. That will also cause him to feel irritable and restless.

Did they stop the steroids, as these will definitely be contributing to high blood sugar levels?
Kind regards,

Jeni.

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Thu Feb 04, 2016 9:21 pm

No I asked about steroids and they said to keep taking them. He was only prescribed 12 so only has a few left. It's funny because Steve said since he been taking the, he has felt worse.

We have community nurse now twice a day so a bit more help. Levels today are 21·5 so not going down much. Unfortunately he isn't eating much so that's not helping.

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Thu Feb 04, 2016 11:48 pm

It's almost midnight and I can't get Steve comfortable. He has bad indigestion, belching a lot, pain in lower back. He feels sick but can't. He doesn't want to go on any more and I am crying because I feel so helpless. He wants to die and has even mentioned taking his life. Why is life so cruel? How am I ever going to pull him back from this? I am heartbroken.

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: frustrated

Postby J_T » Fri Feb 05, 2016 1:32 am

Sheena you are doing so well looking after Steve. I know how hard it is to watch your man suffering and to hear them say such things, we can only give them love and support so keep on doing what you're doing.

Nights can be the worst time, I'm sending you a virtual hug. Hang in there.

Julia x

boa
Posts: 131
Joined: Thu Jul 09, 2015 1:13 pm

Re: frustrated

Postby boa » Fri Feb 05, 2016 7:37 am

Sheena, I just wanted to say I understand how difficult it is for you both and I am thinking of you. Just keep up your wonderful support for Steve. The high blood sugar may be making him a bit confused in his thoughts. My husband could be like that saying things that were out of character. Catherine

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: frustrated

Postby sandraW » Fri Feb 05, 2016 10:10 am

Sheena,
Sorry to hear that Steve is so down, As Julia and Catherine both said, you are doing a marvelous job looking after and supporting him, but it is so very scary, and it being night time makes it worse as you will both be tired as well. The high blood sugar will be making him feel rotten on top of everything else, I hope today sees him more comfortable, and I too am sending you a big cyber (((hug))) just wish I could do more to help, thinking of you love Sandrax xxx

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: frustrated

Postby Didge » Fri Feb 05, 2016 1:17 pm

So sorry to hear that Steve is feeling so poorly, both physically and emotionally. I do hope his physical symptoms ease soon so that he can enjoy what time he has left. I fully understand how someone could feel they don't want to go on if they are feeling too ill to enjoy any part of their day. But I also know how the saying 'what a difference a day makes' can apply to PC. Dreadfully ill one day and much better the next and so on. I hope this is true for Steve and that he rallies again. Thinking of you and do try to get some outlet for yourself or some support from people round you. It is so difficult as a partner to cope with this. xx

PCUK Nurse Jeni
Posts: 1063
Joined: Mon Jun 14, 2010 1:30 pm

Re: frustrated

Postby PCUK Nurse Jeni » Fri Feb 05, 2016 1:28 pm

Dear Sheena,

So sorry to hear what Steve is going through, and you as well.
How is he today Sheena? How is the pain in his back? Has the belching eased off? And the feeling of being sick?

Certainly, as the ladies have said, the high blood sugar is probably a culprit for the sickness. You might try peppermint tea for the belching? Its usually good to settle the stomach from wind, and also, good for nausea as is ginger.

Sheena - let us know if we can help at all, and if Steve is no better, do get him to the hospital, where he can be looked at. His blood sugars need lowering.

Hugs,

Jeni.