A forum for family, friends and carers of pancreatic cancer patients

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belgrade
Posts: 157
Joined: Fri Jul 05, 2013 11:53 pm

Re: Need some advice if possible !

Postby belgrade » Thu Oct 02, 2014 10:49 pm

Thinking of you all.

Hilary

Dcoleman
Posts: 38
Joined: Wed Apr 30, 2014 10:46 pm

Re: Need some advice if possible !

Postby Dcoleman » Fri Oct 03, 2014 9:11 pm

So the hospice came today and were really good. They have organized for the district nurse to come in everyday as they were only coming in once a week but obviously he is progressing quite quickly now. They are coming in on Monday to give him his drugs intravenously it looks like there is about 3 different ones they are going to give him. He is having trouble at the moment with his bowels. He hasn't eaten for days and is really struggling with the toilet now. We managed to get a commode from the hospice which has been a massive help as we would never be able to get him to the toilet each time. They are also arranging for some one to come and night sit for us from Sunday so that maybe we might get a couple of hours sleep. I'm still working full time and then coming home to care for dad as well so I'm completely drained and then when I do get into bed i wide awake! Time will only tell how much longer we have my dear dad with us but we will make it as peaceful and pain free as we can. My tears are flowing as I type this and I'm sure i could fill buckets with the amount of tears i have shed.......

brodders
Posts: 65
Joined: Fri Jun 20, 2014 7:51 pm

Re: Need some advice if possible !

Postby brodders » Fri Oct 03, 2014 11:24 pm

Thinking of you Cate Xxx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Need some advice if possible !

Postby Sueoliver » Sat Oct 04, 2014 11:37 am

I am so sorry thinking of you x

root
Posts: 15
Joined: Wed Mar 05, 2014 9:55 pm

Re: Need some advice if possible !

Postby root » Sat Oct 04, 2014 12:26 pm

Gosh this is identical to what is happening for me. The night sitters are fantastic. They make such a difference. My most heartfelt thoughts go out to you xx

rsk1974
Posts: 80
Joined: Thu Jul 31, 2014 1:21 pm

Re: Need some advice if possible !

Postby rsk1974 » Sat Oct 04, 2014 1:47 pm

My thoughts are with you,so horrible, and so exhausting for all. Big hugs.xx

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Need some advice if possible !

Postby sandraW » Sat Oct 04, 2014 4:25 pm

Thinking of you all take care sandrax

Dcoleman
Posts: 38
Joined: Wed Apr 30, 2014 10:46 pm

Re: Need some advice if possible !

Postby Dcoleman » Sun Oct 05, 2014 7:53 pm

The nurses are now coming in once a day to see dad...though today he seems to have rallied a little bit and not slept as much as normal. I think tomorrow they will start with the intravenous medicine. We are counting each day he is with us a blessing and enjoying chatting and reminiscing with him before it is unfortunately too late x

Fifi

Re: Need some advice if possible !

Postby Fifi » Sun Oct 05, 2014 8:56 pm

There is so much heartache. You probably don't see it, or feel it right now but you are being very brave. You somehow have the strength to get through each day. You are giving your dad your all, and it will mean the world to him. You are probably giving him the strength to make another day.

Thinking of you and your family.

Leila xx

Dcoleman
Posts: 38
Joined: Wed Apr 30, 2014 10:46 pm

Re: Need some advice if possible !

Postby Dcoleman » Sun Oct 12, 2014 5:02 pm

Well its all very strange ...dad seems quite perky after having a couple if days of not really being awake. He was so sleepy it was difficult to get him to take his morphine but the last 2 days he is much more awake. Still gets a little bit confused and hasn't eaten now since Thurs before last but is managing fluids ok. The nurses have been coming in once a day and I'm grateful for the fact that mum and I are getting more sleep now as well. I am fully aware that this will not last but while he has a bit of a laugh and banter with us its like I have my old daddy back which I love and will cherish these memories for sure x

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Need some advice if possible !

Postby sandraW » Sun Oct 12, 2014 7:39 pm

Its good that you are getting quality time with your Dad, thinking of you and the family, and glad you are getting the support you need at this difficult time, take care sandrax

Dcoleman
Posts: 38
Joined: Wed Apr 30, 2014 10:46 pm

Re: Need some advice if possible !

Postby Dcoleman » Wed Oct 22, 2014 9:25 pm

So the next update is that dad now hasn't eaten anything for 3 weeks. He is still taking in fluids. His pain is increasing but the morphine is controlling it and they have now put this line in his arm so they can give a morphine top up as he is still having morphine orally at the moment. His speech is now quite slurred and he is getting a little confused now as well. I'm not sure about any one else and it's so hard to describe but there is a strange smell. It's like an ill smell and it's one that I can smell even when I'm not in the room. It just stays with me and it's horrible. He is so thin now and that up sets me more than anything. I can't bear to see him lingering on day by day as he is just waiting to fall asleep forever. His breathing is different like his chest is heavy. He never moans about anything and is as dignified as ever. We are still caring for him at home and however hard it is, it is what he wanted and we must continue to care for him the best we can x

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Need some advice if possible !

Postby sandraW » Wed Oct 22, 2014 9:45 pm

So sorry that you and your poor Dad are going through this terrible time, thinking of you, keep strong, sandrax

brodders
Posts: 65
Joined: Fri Jun 20, 2014 7:51 pm

Re: Need some advice if possible !

Postby brodders » Wed Oct 22, 2014 9:53 pm

Hello - I know exactly what you mean about the smell. My poor mum smelt very unusual. I am thinking of you please stay strong if you can . My birthday today - first time in 49 years that I haven't spoken to my precious mum - it's her birthday on Friday 6 months ago to the day she passed away. It won't seem like it now but in the future you will take comfort in the fact you have this time to love and care for him, take care and sending you lots of love Cate xxx

Dcoleman
Posts: 38
Joined: Wed Apr 30, 2014 10:46 pm

Re: Need some advice if possible !

Postby Dcoleman » Wed Oct 22, 2014 10:05 pm

Birthday wishes cate. Must be so hard the first year of your mum not being with you for each of the special things that happen through out the year. Trying to stay strong but I have days when the tears flow then others when I am quite ok about everything. It is hard but we are a close family and for that I am grateful for my parents bringing us up that way.raise a glass to your precious mum when ever you can x