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Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Wish someone would help him

Postby Didge » Mon May 04, 2015 9:48 am

Lovely words, Leila. I will be thinking of you tomorrow. Just one thing I disagree with your dad on - do talk to strangers, Leila. You are too wonderful a person not to share yourself with more people! all my love, Didge xx

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Wish someone would help him

Postby Slewis7313 » Mon May 04, 2015 9:58 am

Leila, Just wiped the tears away long enough to respond. I will be thinking of you tomorrow and am sure it will be an amazing celebration of your Dad's life. The words are perfect as is the choice of music.... Hotel California is one of my favourites (has to be played really loud though!). I am travelling to London tomorrow and will be away for a few days for my Nanoknife, but will try and get online to see how things went. You are a great Daughter and I am sure your Dad was fully aware of that until the end. You should be proud of the way you supported him.

Take care and good luck for tomorrow.

Steve
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kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: Wish someone would help him

Postby kittycat » Mon May 04, 2015 2:14 pm

Leila, will be thinking of you tomorrow and hope it goes as well as it can. It looks as if you've put together a lovely service for him and I'm sure he'd be proud of you.

I know just what you mean when you say that a day hasn't gone by in the last 18 months when you haven't thought about losing him as I feel just the same since my husband was diagnosed, and it's such an awful thing to live with - no -one should have to go through it.

Take care.

Sue
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jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Wish someone would help him

Postby jay » Tue May 05, 2015 7:56 am

Thinking of you today Leila,the letter you've written is beautiful.
love Jayne
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rsk1974
Posts: 80
Joined: Thu Jul 31, 2014 1:21 pm

Re: Wish someone would help him

Postby rsk1974 » Tue May 05, 2015 4:01 pm

Hope today went well, and I'm sure you made your dad proud. X

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Wish someone would help him

Postby sandraW » Tue May 05, 2015 4:45 pm

I have been thinking of you all day Leila, I hope everything went well for you, love sandrax xx

Fifi

Re: Wish someone would help him

Postby Fifi » Wed May 06, 2015 8:32 pm

Dads service went lovely. There were so many people there. I managed to get up amd read my letter, I had to have help up there, but once I were I were fine. The Minister said some beautiful words. Was very hard to see the curtains go, and to walk away.
Felt very lost afterwards. Such a weird feeling.

I miss my Dad, and it really really hurts.

Leila xx

rsk1974
Posts: 80
Joined: Thu Jul 31, 2014 1:21 pm

Re: Wish someone would help him

Postby rsk1974 » Wed May 06, 2015 8:36 pm

Hi leila, glad it went well and that you managed to read your beautiful letter. I managed a reading at my dad's funeral, which is one of the things that reminds me that he would have been proud of me. I gated leaving the room where his service was. I too miss my dad everyday, but it does get easier.big hugs.Rachel

Bowie
Posts: 115
Joined: Sat May 03, 2014 10:35 pm

Re: Wish someone would help him

Postby Bowie » Wed May 06, 2015 10:26 pm

Dear Leila, such beautiful words, you've done more than anyone could for your dad, your love for each other is palpable throughout your posts. Brilliant choice of songs, just from reading your words I know that your dad was so very special and a lovely person. I'm glad today went as well for you as it could, you were so brave in your sorrow.

You kindly asked about James' diarrhoea and yes he has tried steaks following your dad's example. They have worked for a while at least and even though it's not his favourite, he's more a fish and pasta man, he does now have steaks from time to time. Your research into all this that discovered SIBO has been invaluable to James. He has had several courses of antibiotics and they have helped for a while and then it returns. He finally got to see a gastroenterologist and it seems he has very likely got SIBO and has now been prescribed 3 different antibiotics to be taken sequentially along with another drug for bile absorption. Apparently clinicians have recently been advised to give these drugs to PC patient suffering with diarrhoea as it can provide a solution. It may be that he needs to continue taking a low dosage antibiotic. He's half way through and we are hoping.

Leila, I know that there are no words that can lessen your deep sorrow and loss, so just to let you know I am thinking about you and thank you for helping us. Fiona X

RLF
Posts: 227
Joined: Tue Nov 19, 2013 9:30 am

Re: Wish someone would help him

Postby RLF » Thu May 07, 2015 3:22 pm

Well done getting through it and managing to complete the reading, that's a huge achievement!
Glad so many people came, you've been a wonderful daughter to him
Rob
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Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Wish someone would help him

Postby Sueoliver » Thu May 07, 2015 10:16 pm

Dear Leila,
I am so pleased you read your letter what a great achievement! Your Dad would have been so proud of you. I hope the next few days and weeks are not to stressful for you make sure you look after yourself. You have been an amazing and supportive daughter for your Dad and don't ever forget this!
Please keep in touch as I really appreciate your support on this forum.
Take care Leila,
Love Sue x

Fifi

Re: Wish someone would help him

Postby Fifi » Tue May 12, 2015 6:07 pm

Thank you Rachel. I think our Dad's would be proud of the readings we did. That's where we get the stength I'm sure. I hope it does get easier.

Bowie, pleased I could be of some help. I hope I still can be, if you or anyone else needs any advice. There was combination drugs Dad could have had, but one of them he couldn't because he was on a trial. Turned out the steak did more than anything. Just to have Dad tested positive was good enough. It proves you should push, when there is even the slightest possibility of a result. Doctors do not know everything.

Thank you Rob, very nice of you. Hope you nd Carl are having a great holiday.

Thank you Sue, I would like to stay on the forum and help people as much as I can. People need help in these very scary times.

Leila xx

Fifi

Re: Wish someone would help him

Postby Fifi » Tue May 12, 2015 6:21 pm

Thank you Sue and Jayne for your lovely thoughtful amd much appreciated cards. Thank you Sandra for your beautiful flower in a card. It is the most wonderful idea I have ever seen and I treasure it. Going to try and press it when it wilts and then I can always keep it.



I feel times are hard now the funeral is over. I think it has finally hit me that my wonderful Dad is no longer here. I often want to call him and ask him something. My phone is so quiet. Normally, he will call me when I'm in the bath, he always knew! Now nothing. I think the hardest thing is everyone else. Seeing everyone else getting on with their lives. I went to Morrisons Sunday and everyone was smiling, and getting on with their lives, I wanted to scream that I've lost my Dad. My life has stopped. I have idiots asking me when I am going back to work, I think what is wrong with people? Don't people grieve anymore? Can't people understand that it is my Dad I have lost? And I haven't just had a call saying he has died. I have lived every minute of this camcer with him. I have heard his fears, heard his tears. For the last week, I sat beside him 24/7 and watched him leave me, and yet they still want me to move on, so soon.

Leila xx

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Wish someone would help him

Postby sandraW » Tue May 12, 2015 11:52 pm

Leila,

You will never move on, but hopefully time will heal. I understand how you feel when you say that other people are getting on with their lives, but life just has to continue, try to be strong you know that is what your dad would want you to do. I do feel so sorry for you and just wish I could do more to help you, please take care of yourself love sandrax xx

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Wish someone would help him

Postby Slewis7313 » Wed May 13, 2015 10:33 am

Leila, I lost my Mam in October and it is still difficult to believe she is not there and how many things we did which involved her. If we are passing in the car, I still find myself thinking I'll go and have a cup of tea with her. As you say, this must be a hundred times more difficult as you spent so much time caring for your Dad over the last year. I do hope the pain eases with time and that you can get some form of normality back into your life.

Take care!

Steve
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