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janem
Posts: 29
Joined: Fri Nov 01, 2013 10:45 pm

I think my dads journey is nearing its end

Postby janem » Tue Feb 25, 2014 2:16 pm

I got a phone call from my dad this morning saying the pain was unbearable, the hospice told me to give him oramorph as well as his morphine patch and if still in pain repeat after 40mins which I did. The district nurse has been up and agreed it is time to going into the hospice, unfortunately there are no beds at the moment so he has been put on the list and will have the hospice at home coming to him! I am sitting waiting for the doctor to visit as the nurse said he was going to visit my dad this afternoon. He has only eaten a couple of biscuits since Saturday and had nothing today, he is also going back to the Simpsons colouring. I am just sitting here feeling useless at the moment wanting to help him but know that there is not much anyone can do.

Dollysdaughter
Posts: 64
Joined: Sat Jan 25, 2014 4:14 pm

Re: I think my dads journey is nearing its end

Postby Dollysdaughter » Tue Feb 25, 2014 3:05 pm

So sorry to hear this Jane, you must feel just dreadful. I would imagine you just being there is a comfort to your dad. Thinking of you and him,
Sara x

suef
Posts: 103
Joined: Fri Jun 25, 2010 1:58 pm

Re: I think my dads journey is nearing its end

Postby suef » Tue Feb 25, 2014 4:03 pm

Dear Jane,

Thinking of you and wishing you much courage.

Love,

SueF

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: I think my dads journey is nearing its end

Postby J_T » Tue Feb 25, 2014 4:07 pm

Sorry to hear this. Is your dad on slow release morphine? Ray went on up to 80mg morning and evening plus oramorph if needed. Towards the end he had a syringe driver which pumped the drugs straight into his bloodstream and worked very well at keeping him comfortable and pain was never really an issue for him. In the final days they upped his drugs again and he was asleep virtually all the time.

Thinking of you, I know how hard this is.

Julia x

janem
Posts: 29
Joined: Fri Nov 01, 2013 10:45 pm

Re: I think my dads journey is nearing its end

Postby janem » Tue Feb 25, 2014 5:54 pm

Thanks for your replies, the doctors increasing his patches to 40mcg/hr and his oramorph to 10mls when needed. The hospice have phoned and they have an admission meeting tomorrow at 9.30 and if he is most at need hopefully he will be admitted.

Fifi

Re: I think my dads journey is nearing its end

Postby Fifi » Tue Feb 25, 2014 6:02 pm

So so sorry to read this. It really does pull at my heart. My own dad has recently been diagnosed, so hearing about someone else's father, really is close to home. I'm sorry I don't have advice for you, I wish I did. I am thinking about you both though.

Leila x

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: I think my dads journey is nearing its end

Postby sandraW » Tue Feb 25, 2014 6:43 pm

Hope the Hospice can find a bed for your Dad and that they can make him more comfortable,
sending love and virtual ((hugs)) sandrax

ChrisD
Posts: 11
Joined: Wed Feb 05, 2014 5:27 pm

Re: I think my dads journey is nearing its end

Postby ChrisD » Tue Feb 25, 2014 7:27 pm

Hello Jane,
You and your Dad are very much in my thoughts.

If the doctor and district nurses can manage your Dad's pain (for example, with a syringe driver to steadily deliver pain relief), your Dad could be 'comfortable' in the home environment. I say this, because if a hospice bed is not available, your Dad can still receive all the care that is needed at home.

For your information, it should be possible to have a hospital bed delivered to your home (with an air mattress), this is an excellent piece of equipment to help your Dad ....

If in the home environment, there could potentially be access to additional nursing support too - this maybe provided by charities that are able to support you with nurses to 'night sit' etc. Do ask your district nurse what additional support there could be if a hospice bed is not available, I hope that you will be pleasantly surprised.

Be with your Dad, talk to him, hold his hand and give him a cuddle; whilst you may think that you are helpless, do not underestimate the support that you are able to provide ....

With best wishes,
.... Chris

belgrade
Posts: 157
Joined: Fri Jul 05, 2013 11:53 pm

Re: I think my dads journey is nearing its end

Postby belgrade » Tue Feb 25, 2014 8:21 pm

Hello Jane,
I'm very sorry to hear about your Dad and know how difficult this time is. In my husband's last few days, we played his favourite music and my daughter read to him which seemed to bring him some comfort. The hospice, I'm sure will be able to manage your Dad's pain and make him comfortable. I know this is so hard for you, but you will find the strength to cope.
Thinking of you,
Hilary

jules 2015
Posts: 55
Joined: Mon Sep 23, 2013 10:20 pm

Re: I think my dads journey is nearing its end

Postby jules 2015 » Tue Feb 25, 2014 9:38 pm

Hi Jane
Having lost my dad to pc on 1st Nov, I know how difficult it is to see you Dad in so much pain. Hopefully they will be able to get your dad into the hospice and get his pain under control soon.
Sending you both big hugs
Julie x

Janiebobs
Posts: 49
Joined: Sun Jan 12, 2014 1:21 am

Re: I think my dads journey is nearing its end

Postby Janiebobs » Wed Feb 26, 2014 6:11 am

Jane,
You, your family and your dad are in my thoughts at this sad time. I hope you can get his pain under control which is my greatest fear for the end.
Jane x

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: I think my dads journey is nearing its end

Postby EmmaR » Wed Feb 26, 2014 10:22 am

Just to say be strong and know many of us have and some are still walking the path with you .
Love EmmaR x

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: I think my dads journey is nearing its end

Postby jay » Wed Feb 26, 2014 5:53 pm

Thinking of you Jane
love jayne

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: I think my dads journey is nearing its end

Postby Cathy » Wed Feb 26, 2014 6:39 pm

Hi Jane

I do hope you manage to get a bed after tomorrow's meeting. Our local hospice were superb with my Jonathan.

If not they should be able to organise assistance for you at home, district nurses and the like including a hospital bed and a syringe driver.

Everything crossed for you

Cathy xxx

janem
Posts: 29
Joined: Fri Nov 01, 2013 10:45 pm

My dads journey has ended

Postby janem » Thu Feb 27, 2014 7:04 pm

Just a quick message to say dad didn't get a bed yesterday but this morning he took a turn for the worst and was a priority and got a bed today. He arrived there at around 2pm and died just after 5pm. He wasn't there long but at least he got his wish to die in the hospice and not at home. He lasted 9 weeks and 6 days after mum died. I hope they are now back together and both at peace.
Thanks to everyone for the support since October.
Last edited by janem on Fri Feb 28, 2014 7:03 am, edited 2 times in total.