A forum for family, friends and carers of pancreatic cancer patients

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KATB
Posts: 178
Joined: Thu Mar 28, 2013 10:41 am

Re: Pancreatic cancer or bile duct cancer?

Postby KATB » Wed Sep 11, 2013 9:40 am

Me too. I am so sorry to hear your news and I'm sending much love.
K
x

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Pancreatic cancer or bile duct cancer?

Postby Cathy » Wed Sep 11, 2013 9:43 am

Hi Hilary

Like Julia I spotted that you had posted that Dave had passed away and I was so so sorry and saddened to read that. I know you had a torrid and frustrating few months trying to get treatment started - it really shouldn't have been like that.

Just to let you know we are thinking of you at this very sad time.

Hope your Mum is on the mend?

Lots of love

Cathy xx

belgrade
Posts: 157
Joined: Fri Jul 05, 2013 11:53 pm

Re: Pancreatic cancer or bile duct cancer?

Postby belgrade » Wed Sep 11, 2013 6:29 pm

Thankyou for your kind messages of sympathy. Unfortunately Dave never really responded to the antibiotics and his condition worsened during the latter part of last week. He deteriorated even further over last weekend and unfortunately passed away peacefully late yesterday afternoon. The care he received in the palliative unit over the last week was excellent and I will always be grateful to the medical and nursing team who made his last days painfree and as comfortable as possible.
Take care all,
Hilary

karen17
Posts: 157
Joined: Sun Dec 30, 2012 8:38 pm

Re: Pancreatic cancer or bile duct cancer?

Postby karen17 » Wed Sep 11, 2013 11:07 pm

Hi Hilary
Like the rest of the "forum family" I am so saddened 2 hear your sad news and hope you have a good support network around you.
Sending a virtual hug
Karen xxx

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Pancreatic cancer or bile duct cancer?

Postby Slewis7313 » Thu Sep 12, 2013 10:36 am

Really sorry to hear of your loss Hilary.

My thoughts are with you and your family.

Steve
X

sooty
Posts: 31
Joined: Mon Feb 27, 2012 11:10 am

Re: Pancreatic cancer or bile duct cancer?

Postby sooty » Thu Sep 12, 2013 8:45 pm

So very sorry to hear about your husband, your experience mirrors mine (my husbands pancreatic situation) Bless you xx

Bee
Posts: 219
Joined: Fri May 03, 2013 9:39 pm

Re: Pancreatic cancer or bile duct cancer?

Postby Bee » Thu Sep 12, 2013 10:38 pm

Hi Hilary,

So sorry to hear of your loss, you had such a difficult time, I hope you are surrounded by love and support,

Thinking of you and your family

Regards

Bee xx

belgrade
Posts: 157
Joined: Fri Jul 05, 2013 11:53 pm

Re: Pancreatic cancer or bile duct cancer?

Postby belgrade » Sat Sep 21, 2013 11:31 pm

Thank you all for your kind messages. Dave's funeral was held on wednesday and attended by more than 200 people. He was a remarkable man and I really don't know how I will face the future without him. I have wonderful, supportive family and friends and know I am lucky in this regard, but the feeling of isolation is hard to bear at the moment.
Take care all,
Hilary

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Pancreatic cancer or bile duct cancer?

Postby Cathy » Tue Sep 24, 2013 8:53 pm

Hi Hillary

I am so pleased to hear Dave's funeral went well and I do hope that you got some comfort from that.

A number of us on here have partners and loved ones who are battling the same disease and can only imagine how you are feeling. It is great that you seem to have a lot of support and love around you and that you can take strength from that.

I do hope that things get easier for you Hilary. You did a great job for Dave.

Take care

Cathy xxx

Jwilson
Posts: 100
Joined: Sun Jun 09, 2013 9:52 am

Re: Pancreatic cancer or bile duct cancer?

Postby Jwilson » Fri Sep 27, 2013 1:21 pm

Hilary, I'm June and my husband Bill has same as your husband. They tried to do a Whipple but did a bypass because the tumour was attached to all that vital stuff.
Bill has lost almost four stone. Eating is a problem. He lived on yoghurt and digestive biscuits. His appetite returned although not as good as prior to being ill, after three sessions of chemo. It's called gem/ cap. The medical people perhaps may correct my spelling.
Bill takes piles of drugs. Steroids, maxolon, some tummy protector thing called pantoprazole, lyrica for nerve pain round his middle, OxyContin, oxynorm, paracetamol every four hours, creon with all food, co danthramer to help bowels.
Maybe the names of the ones for helping digestion would be worth asking about for your husband. Have you got a hospice nurse or Mac Millan calling to visit and help with all the medication? They know their stuff and in our experience have been invaluable.
Hope you can get food issues sorted soon its terrible making food of all kinds to try to get nourishment into them but they just can't face it. Oh......a litre of full cream milk a day we were told and Bill can always resort to porridge and it causes no problems. Make sure you get creon as its the one that produces the enzymes that the pancreas used to produce. Bill takes 2 40000 capsules before all food.
Sorry this is a bit of a mix up of info but even one tiny comment might help.
Wishing you both strength to fight and good luck
June W

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Pancreatic cancer or bile duct cancer?

Postby J_T » Fri Dec 20, 2013 10:53 pm

Hi Hilary, I've come back to your thread, I get lost around these parts!

Sorry to hear you've been struggling :(
I am generally okay but I am on my own so I can shed a tear now and again and then dust myself off and carry on.

I haven't bothered with Christmas really. I've put cards up and that's it, I haven't got the energy for anything else. I've no small/young children to worry about and I'm going to my daughter's for Christmas and my sons will be coming too and all the grandchildren so no food preparation either. I've been able to ignore it for the most part up to now. To be honest, I can't wait for this year to be gone. There again, next year will bring all the first anniversaries. :(
Its going to be tough for a long while yet but just have to keep going. My children have got me penned in for several holidays so I will look forward to that.
Be kind to yourself Hilary.

Julia xxx

belgrade
Posts: 157
Joined: Fri Jul 05, 2013 11:53 pm

Re: Pancreatic cancer or bile duct cancer?

Postby belgrade » Fri Dec 20, 2013 11:43 pm

Hi Julia,
Lovely to hear from you and glad to hear you will be sharing Christmas with your family. We will be having a family Christmas at my house, as we always do, but it will be very different without Dave this year. I agree with you, I will be glad to see the back of 2013 and hope that 2014 will be a better year for all of us.
With best wishes for Christmas,

Hilary x