A forum for family, friends and carers of pancreatic cancer patients

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Fernack45
Posts: 9
Joined: Mon Dec 03, 2018 6:26 am

My husband Dan

Postby Fernack45 » Tue Jan 01, 2019 1:30 pm

Hi all, I have been reading the posts on this forum since my husband was diagnosed with stage 3 PC five weeks ago. I have found the posts invaluable in helping me get my head around the diagnosis and for what is to come so thank you all.
Dan is my husband aged 45. I am a registered nurse. We celebrate 20 years of marriage on the 15th January. We have 2 daughters, aged 18 and 10.
Dan started with vague abdominal and back pain and GP said it was probably muscular pain.. If only eh... He had an ultrasound scan, blood tests etc. Was admitted to hospital on 28th November due to deranged liver function and jaundice. Whilst in hospital he had a CT scan which showed a tumour in the head of the pancreas, invading surrounding blood vessels. He had a stent fitted which relieved the jaundice after a couple of weeks. Discharged from hospital to await Oncology appointment.
We had that appointment on 14th December and it was confirmed only palliative treatment was available.
Went for pre treatment visit at the chemo unit yesterday where we were told that chemo. Folfirinox, is due to begin on Jan 8 th. In the meantime we have to wait for a date for insertion of the PICC line...
Dan is in more or less constant pain despite 40mg zomorph twice daily with oramorph for breakthrough pain. Also on gabapentin, lansoprazole, cyclizine and creon. He has lost 3 stones in 2 months and hasn't eaten anything for a week. He does take supplements.. When he can stomach them.
No real point to this post other than for me to offload and tell our story so far.
Thanks for reading x Ann x

Sandiemac
Posts: 69
Joined: Tue May 10, 2016 11:27 am

Re: My husband Dan

Postby Sandiemac » Tue Jan 01, 2019 3:53 pm

You're not alone, Ann. There are a lot of people on here who have gone through the same scenario and have experienced the same shock and disbelief. I found just coming on here and offloading to those people was a real help as they just 'get it'. The nurses are also very supportive so don't hesitate to contact them. Despite your own nursing knowledge I bet you still have lots of questions.
We are here when you need us.
Sandie x

Undyddarytro
Posts: 19
Joined: Fri Nov 23, 2018 9:29 pm

Re: My husband Dan

Postby Undyddarytro » Tue Jan 01, 2019 6:37 pm

Everything you have said takes me back to July 2017 when my husband had the same diagnosis and had lost a lot of weight etc. Within two months of starting the chemo treatment, he became more or less his old self. No pain, could eat and gained back all and more of the weight lost. It took a bit of getting used to which tablets to take re diarrhoea and constipation etc. We fed him anything and everything and added cream and calories to everything. He has tolerated 24 rounds of Folfox and 15 5fu treatments and has been very well until this month when he started chemo radiation. Something happened and his whole digestive system shut down and we have spent the last ten days over Christmas in hospital. Despite this he has not missed a single radiation treatment and we go back tomorrow. Keep being ready for the worst and hoping for the best. There are some people who survive for years.It does help to know that others are suffering the same anguish not that it makes it any easier.

Annabelle
Posts: 3
Joined: Wed Aug 29, 2018 8:56 pm

Re: My husband Dan

Postby Annabelle » Tue Jan 01, 2019 10:57 pm

Sending you love and positive vibes Ann, my husband was diagnosed with Pancreatic Cancer in June 2018 our lives were turned upside down, we waited four and a half months for treatment, he is now having folfirinox chemo which he is tolerating reasonably well (just had 5th cycle) There are lots of people on here who can offer support so hope they can help you (and me) on this roller coaster journey. Love and hugs ((xx))

drtzzr1100
Posts: 7
Joined: Fri Dec 07, 2018 6:20 pm

Re: My husband Dan

Postby drtzzr1100 » Wed Jan 02, 2019 2:17 pm

So sorry to hear this my husband is 58 and was told on 1st October this year he had stage 4 metastatic P.C. devastating news for all and he has now been given 2-4 weeks to live. I truly hope your husbands journey is more positive there are some good news stories around and I pray for you and your family to give you the strength to get through this x

Justamo
Posts: 468
Joined: Sun Sep 04, 2016 10:38 pm

Re: My husband Dan

Postby Justamo » Fri Jan 04, 2019 10:59 am

"No real point to this post other than for me to offload and tell our story so far."

There is every point to your post Fernie. You need to talk; probably not best to discuss your very real fears with your husband, family are sometimes not the best listeners, so this forum will offer you exactly what you need - a friendly and helpful ear, at almost any time of the day or night. There's always somebody logging in - sometimes from the other side of the world - so time of day doesn't really matter.

Our nurses are experts in their field, there is probably nothing in your story that somebody else hasn't experienced, and despite their own misery everybody is anxious to help.

Just be aware that there are no strangers on this forum, just friends you haven't met yet.
Love and prayers and comforting vibes.
Mo

Fernack45
Posts: 9
Joined: Mon Dec 03, 2018 6:26 am

Re: My husband Dan

Postby Fernack45 » Fri Jan 11, 2019 5:52 pm

Had first round of folfirinox on Tuesday. Vomited everyday since and terrible hiccups for hours on end. Anyone else had this? Thank you.

Justamo
Posts: 468
Joined: Sun Sep 04, 2016 10:38 pm

Re: My husband Dan

Postby Justamo » Fri Jan 11, 2019 7:49 pm

Peter experienced non-stop hiccups too. We found that tiny sips of iced water helped while he was awake, but it didn't prevent him hiccuping in his sleep. Good luck with the chemo.