A forum for advanced pancreatic cancer issues

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Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Unsuccessful whipple attempt

Postby Cathy » Fri Sep 06, 2013 11:59 am

Hi Heidi

That's great news about your Dad.

I hope he makes a quick recovery from his surgery and has continued good health.

All the very best

Cathy xx

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Unsuccessful whipple attempt

Postby J_T » Fri Sep 06, 2013 3:21 pm

Good news is always welcome. So pleased for your dad and the family Heidi. Hope he makes a good recovery from the op.

Julia x

PCUK Nurse Jeni
Posts: 1015
Joined: Mon Jun 14, 2010 1:30 pm

Re: Unsuccessful whipple attempt

Postby PCUK Nurse Jeni » Mon Sep 09, 2013 10:48 am

Hi Heidi,

That is brilliant news, and really shows the role for chemo/radiotherapy, when it is possible to give it. Lets hope that we see this being offered more and more in the UK to patients with inoperable PC.

I hope your dad continues to make a speedy recovery after the Whipples.

Do email us on the support line if you have any questions about what's next. The address is: support@pancreaticcancer.org.uk

Kind regards,

Jeni.

Blue-Eyes
Posts: 14
Joined: Fri Oct 26, 2012 10:28 pm

Re: Unsuccessful whipple attempt

Postby Blue-Eyes » Wed Jul 01, 2015 10:10 am

Hi guys, not been on for a while but thought I would update you all on my dad, nearly 3 years since diagnosis of PC and after whipple my dads cancer returned not to his pancreas but to the flank muscle, he is on chemo at the moment abraxane/gemcitibine after first scan it showed the tumour had shrank quite a bit, he's finding this regime very tough being hospitalised a few times with a tempeture.
Scan scheduled again soon.
Think of you all often
Never ever give up hope
Best wishes
Heidi x

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Unsuccessful whipple attempt

Postby Wife&Mum » Thu Jan 14, 2016 5:59 pm

Hello, I'm a first-time poster but long-time lurker. Like so many others I have found the forum incredibly helpful. The good news posts have lifted my spirits, the bad news posts have forced me to face and prepare for what may come. My heart goes out to all the carers who have lost loved ones, your posts have moved me deeply and I applaud your selflessness and generosity of spirit in returning time after time to the forum to support others. For sufferers and carers still on this journey, I wish you the very best.

I'm delighted to say that my husband's story (so far!) falls into the good news category, and I hope it will bring some hope and comfort to those of you with a similar diagnosis. Hubby was diagnosed with locally advanced pancreatic cancer (adenocarcinoma on head of pancreas) in May 2015. Within one week of diagnosis a Whipple procedure was attempted at our London hospital, but sadly it failed due to involvement of the SMV/portal vein. Instead the surgeon performed a palliative double bypass to relieve jaundice. The junior surgeon who saw us after the surgery said that the aim would now be to shrink the tumour enough for a second attempt at the Whipple, but the oncologist who saw us on discharge contradicted this by saying that any chemotherapy would be to "control" the disease. Our hopes of another Whipple were pretty much dashed at that point.

In June 2015, hubby began 6 cycles of modified Folfirinox. These were tolerated reasonably well (though he lost all his hair) and his CA19-9 dropped from 291 to 43. To our huge relief, the staging scan at the end of the 6 cycles indicated no spread and even possible tumour shrinkage. As expected - and as there was no metastasis - in September hubby started a course of chemoradiotherapy (with Capecitabine) in the hope that the tumour would shrink further. Also in September we consulted a different surgeon at the same hospital who told us that he didn't need further evidence of tumour shrinkage in order to take hubby to surgery again. The main qualifier for surgery was no metastasis.

Last week we got the results of the latest staging CT scan: still no metastasis and the added bonus of an indication of further tumour shrinkage. A second Whipple is planned for early February - yay!

Before I end this rather long post I'd like to say a big thank you to the wonderful nurses for their great advice and support along the way. Also thank you MSH for the heads up about bitter melon capsules and statins.

Wishing everyone well,
Wife&Mum

Fifi

Re: Unsuccessful whipple attempt

Postby Fifi » Thu Jan 14, 2016 6:09 pm

Hi wife and Mum.

Pleased to read you have decided to post. I hope you feel better for doing so.

It is a place no one wants to be, but we all know how each other feels, so it is a great comfort, which I hope you will see.

Your husband is doing very well, we need good positive posts in here.

I am not trying to dissuade you in anyway, so please don't think I am. It might be a good idea to start your own thread, that way if people are looking out for you, they can go straight to story and supposrt you that way. You could always copy and paste your post here, and start your own, save you writing it again.

Leila xx

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Unsuccessful whipple attempt

Postby Wife&Mum » Thu Jan 14, 2016 7:11 pm

Thanks Fifi, if I decide that I particularly want people to follow our story I will start my own thread.

PCUK Nurse Jeni
Posts: 1015
Joined: Mon Jun 14, 2010 1:30 pm

Re: Unsuccessful whipple attempt

Postby PCUK Nurse Jeni » Fri Jan 15, 2016 1:12 pm

Hi Wife & Mum,

Welcome to the forums, and thanks for your very uplifting post.

Great news indeed to see that the chemo does work in some cases, and that your husband will get the chance of having the operation to remove the cancer.
We would like to wish him the very best.

Kind regards from the Support Team.

Ruthus
Posts: 177
Joined: Tue Nov 17, 2015 2:39 pm

Re: Unsuccessful whipple attempt

Postby Ruthus » Fri Jan 15, 2016 8:34 pm

That is fantastic news and so good to hear positive stories. I wish you all the best with surgery.

Ruth x