A forum for advanced pancreatic cancer issues

Moderator: volmod

Forum rules
Please see the messages in our "Rules" section

The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice
Blue-Eyes
Posts: 14
Joined: Fri Oct 26, 2012 10:28 pm

Unsuccessful whipple attempt

Postby Blue-Eyes » Mon Oct 29, 2012 7:16 pm

Hi there everyone, I have been reading all your posts and I'm so glad to have found you all, July 15th our life was turned upside down when we found out my lovely dad,my hero had pancreas cancer, after weeks of tests, waiting, stents fitted, block stents,scans more waiting ... They decided he was a candidate for the whipple, we headed of to derriford in Plymouth as we live in Cornwall, we were told before the op that if the cancer had spread once they opened him up that they could not do it, they went ahead to operate but unfortunatley couldn't proceed not because of it spreading but because the tumour which is in the head of the pancreas had attached to the main vein,as you can imagine we were devastated, they did a bypass to relieve jaundice etc.
My dad is now going to be starting chemo, can anyone shed any light on this, does it help? They said it maybe possible if the tumour shrinks they could retry the whipple, is there anyone that this has happened to, my dad is feeling fine in himself, regaining the weight he lost, to look at him it's hard to believe he has this horrid disease.

Thanks for reading this

Kind regards H xx

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: Unsuccessful whipple attempt

Postby DRAD3 » Mon Oct 29, 2012 7:50 pm

Hi H
Welcome to the forum, I do hope it helps to get some information but also support at what will be a very difficult time for you, your Dad and your family. We will be here any time you need us, be sure of that.
It is good news that your Dad feels fine and he is regaining the weight he lost - it also seems positive in that they are saying that they will reconsider the whipple - this would imply they are confident that the treatment will have a good effect. My husband's tumour shrank after his first lot of chemo but the whipple was never an option so different in that respect. You do not say what chemo treatment they are going for but I assume that as he is feeling OK that he will tolerate this well - they will keep a close eye on him and will adjust things if need be. Let us know what chemo he will be on when you know and hopefully one of us can shed a bit more light. I know it is difficult, but try and stay positive and I do hope that your Dad continues to eat well and stay feeling fine.
Keep us posted and you take care of yourself too, it can be tiring, caring and worrying about our loved ones and you will need your strength too.
Much love
Deb
x

Blue-Eyes
Posts: 14
Joined: Fri Oct 26, 2012 10:28 pm

Re: Unsuccessful whipple attempt

Postby Blue-Eyes » Mon Oct 29, 2012 10:32 pm

Thankyou for your reply,it's lovely to know your all here, he will be having Gem cap/ gemcitabine and xeloda, do you have any experience of these, all we can do is hope, trying to stay positive as hard as it is, as there's no room for negativity with this terrible diesese

Kind regards H xx

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: Unsuccessful whipple attempt

Postby laura » Tue Oct 30, 2012 12:03 am

hi blue eyes, well yes, i can relate to your story completely, my hubby was in the same situation in april 2010, i feel i cant relay our story all over again, people will get fed up re-reading it, we too live in cornwall, also went to derriford etc etc etc, when you sign in, click on my name and you will be able to review all my posts, if you want further info feel free to ask.
we actually go away on monday next and wont be back at home untill 24th nov, if your desperate, and want to talk b4 we go away i am happy for my telephone no or email to be passed to you?
chin up and kind regards to your dad
love laura xx

Blue-Eyes
Posts: 14
Joined: Fri Oct 26, 2012 10:28 pm

Re: Unsuccessful whipple attempt

Postby Blue-Eyes » Tue Oct 30, 2012 9:20 am

Hi Laura, thankyou for replying sorry that this situation happened to yourselves too, I will have a read through your threads as I'm sure they will be of use to us, have a lovely break and when you come back I would love to have a chat if you feel Upto doing that either by mail or phone,
take care
Heidi x

Jool2504
Posts: 42
Joined: Wed Sep 19, 2012 12:28 pm

Re: Unsuccessful whipple attempt

Postby Jool2504 » Tue Oct 30, 2012 12:09 pm

Hi Heidi,

Sorry to hear about your father, flaming PC its a nightmare.

My husband is on gemcitabine only and seems to be doing well, light side effects but I have been proactive and after a post on here I give him in anti sickness 4 times a day which seems to really help with the nausea, the hospital said take as and when. This way seems to suit him better, nothing worse than feeling sick.

Please to hear you Dad is gaining weight, William has just started putting weight back on and has a healthy appetite but little and often not large meals.

As mentioned in an earlier post, we are all here for you.

Regards

Jools

PCUK Nurse Dianne
Posts: 271
Joined: Tue Aug 14, 2012 3:29 pm

Re: Unsuccessful whipple attempt

Postby PCUK Nurse Dianne » Tue Oct 30, 2012 1:51 pm

Hi Heidi,

Sorry to hear about your father's recent diagnosis, this is obviously a difficult time for you all. If you wish to email the support line at any time we may be able to give you more information if you require.

email: support@pancreaticcancer.org.uk


Kind regards,

Dianne

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: Unsuccessful whipple attempt

Postby DRAD3 » Tue Oct 30, 2012 8:12 pm

Hi Heidi
Gem/Cap was the combo Gary was on and the combo that had a good effect (shrank the tumour!) so keep that in mind and remain positive. I posted a lot of info relating to this treatment under Clinical Trials/SCALOP if you want to read - it may help although remember that everyone is different. Email the support team who will give you lots of specific info re. the chemo and your Dad. We will continue to think of you and keep everything crossed that your Dad continues to feel good. Keep us posted.
lots of love
Deb
x

yorkypaul
Posts: 136
Joined: Tue Sep 11, 2012 12:23 am

Re: Unsuccessful whipple attempt

Postby yorkypaul » Tue Oct 30, 2012 10:03 pm

Hi Heidi
can't offer advice on the chemo front yet as my wife won't know if she can have it till this Thursday due to falling through every loophole possible along this horrible journey. I would like you to know, though, that you are very much in my thoughts along with the rest of my forum family.If I feel I can offer any advice based on my experience so far, rest assure I will.
Hugs, Paul

Blue-Eyes
Posts: 14
Joined: Fri Oct 26, 2012 10:28 pm

Re: Unsuccessful whipple attempt

Postby Blue-Eyes » Thu Nov 01, 2012 4:50 pm

Hi guys thankyou for your lovely replies, it means a lot, it's nice to know that you are here and we are not alone with this terrible diesese, have been looking on the boards trying to navigate but not that good at it at the moment, will keep trying.

Kind regards xxx

DRAD3
Posts: 435
Joined: Wed Mar 16, 2011 11:22 am

Re: Unsuccessful whipple attempt

Postby DRAD3 » Thu Nov 01, 2012 6:26 pm

Keep in touch, Heidi. I know it can be difficult to find your way around the forum but there is lots of info on here, current and historical so worth persevering! In any case, ask whatever you need to know and someone will help, as will the support team.
Take care
Deb
x

Blue-Eyes
Posts: 14
Joined: Fri Oct 26, 2012 10:28 pm

Re: Unsuccessful whipple attempt

Postby Blue-Eyes » Thu Nov 01, 2012 7:33 pm

Thankyou deb xx

Blue-Eyes
Posts: 14
Joined: Fri Oct 26, 2012 10:28 pm

Re: Unsuccessful whipple attempt

Postby Blue-Eyes » Thu Sep 05, 2013 10:36 pm

Hi guys well nearly a year on and my dad managed to have the whipple 3days ago, the chemo/radio shrank my dads tumour by half, he is in hospital and doing well.
I never thought in my heart we would ever get to this point but always remained positive and hopeful, it's felt like we have been on a roller coaster ride for a year.
Sending my love and best wishes to you all.
H xxx

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Unsuccessful whipple attempt

Postby Slewis7313 » Thu Sep 05, 2013 11:14 pm

Hi Heidi, we haven't spoken yet but when your story was developing last year, I was being checked out for possible gallstones / ulcer which transpired to be good old Pancreatic Cancer. Not sure where mine is going as chemo / radiotherapy has helped, but not enough yet. It is however fantastic to hear that your dad's treatment has ultimately lead to surgery, though I know it would have been a very difficult year for you all. Please keep us posted as this is so uplifting and shows that the fight can be difficult, but once in a while (unfortunately not often enough) is well worth it! Recovery from the operation will not be a quick process, but please give your dad my regards and wish him well.

Nice to see some really good news in the world of Pancreatic Cancer!

Steve

LindaH
Posts: 186
Joined: Tue Jan 15, 2013 8:12 pm

Re: Unsuccessful whipple attempt

Postby LindaH » Fri Sep 06, 2013 9:21 am

Hi Heidi,

Like Steve says this is fantastic news and gives hope to us all. My tumour reduced in size after Chemo from 49mm to 33mm and that was only after five courses of treatment, I have now finished all my Chemo sessions and had a CT scan 30th August, I hope to receive the results on Tuesday.

I'm trying not to build my hopes up as my cancer (like your dad's) travelled to my liver, but now I have been given a little hope by reading your dad's story.

Thank you for sharing and big hugs to your dad may he go from strength to strength.

Linda x