A forum for advanced pancreatic cancer issues

Moderator: volmod

Forum rules
Please see the messages in our "Rules" section

The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice
Drew
Posts: 24
Joined: Fri Dec 30, 2011 7:34 pm

Re: End stage and Ascites

Postby Drew » Sat Jan 21, 2012 1:15 am

I have never heard of ascites but I have noticed Heathers stomach swollen over the last day or so. I have asked her did she think it was , but she said no.

I don't want to worry her about it but it us bigger than normal.

She is due at cancer centre on Monday for bloods and possible transfusion so I'll mention about it then.

Drew

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: End stage and Ascites

Postby laura » Sat Jan 21, 2012 5:38 pm

hello jst, so very sorry to read your post, what an awful rollercoaster for you all over christmas and new year, am so pleased for you that you had a lovely new year, what can i say, but am thinking of you and your children at this sad time. there seems so much sad news on here at the moment [my love to all of you who post on this site] im in the middle of a bout of fibromyalgia and was feeling sorry for myself, this gives one a reality check, doesnt it?
take care of yourself jst and rest when you can, love laura xxx

PCUK Nurse Jeni
Posts: 1063
Joined: Mon Jun 14, 2010 1:30 pm

Re: End stage and Ascites

Postby PCUK Nurse Jeni » Mon Jan 23, 2012 6:05 pm

Dear JST,

So very sorry to hear about the death of your husband.

It was very quick, as it often is with this cruel cancer.

Please accept our sympathies at this difficult time.

Jeni.

rosie050_0
Posts: 11
Joined: Sat Dec 17, 2011 6:37 pm

Re: End stage and Ascites

Postby rosie050_0 » Tue Feb 07, 2012 2:23 pm

Hi JST

Thank you for your reply. I wish I had read that sooner, as have only just come on now.

My husband passed away on January 27th 2012, around a month after the ascites was first drained. He died aged 34.

Such a terrible disease. He fought to the end and never once gave up! That was him all over!

I will do my upmost to fund raise for this cause to help other families in the future.

My thoughts go out to you all.

xxx

PCUK Nurse Jeni
Posts: 1063
Joined: Mon Jun 14, 2010 1:30 pm

Re: End stage and Ascites

Postby PCUK Nurse Jeni » Wed Feb 08, 2012 11:13 am

Hi Rosie,

So very sorry to hear about the death of your husband.
Please be assured that you can continue to post on here for as long as you like.

We offer our sympathies to you and your family during this difficult time. There are a few similar stories on here at the moment, so it is a sad time for many of the users of this forum.

Kind regards,

Jeni.

louiepc
Posts: 238
Joined: Wed Aug 10, 2011 10:38 pm

Re: End stage and Ascites

Postby louiepc » Wed Feb 08, 2012 2:27 pm

Dear rosie and jst

I am so very sorry to hear of your husbands deaths. such a. sad time. My thoughts, prayers and love are with you both. X louie x

rosie050_0
Posts: 11
Joined: Sat Dec 17, 2011 6:37 pm

Re: End stage and Ascites

Postby rosie050_0 » Wed Feb 08, 2012 9:18 pm

Thank you Jeni and Louie xxxx

rachelqt
Posts: 175
Joined: Tue Sep 20, 2011 9:18 am

Re: End stage and Ascites

Postby rachelqt » Thu Feb 09, 2012 9:41 am

Dear Rosie and JST

I am so very sorry to hear about your Husbands. My thoughts and prayers are with you and your family...Rachel xx

rosie050_0
Posts: 11
Joined: Sat Dec 17, 2011 6:37 pm

Re: End stage and Ascites

Postby rosie050_0 » Mon Feb 13, 2012 10:06 pm

Thank you Rachel xxx

AnthonysDaughter
Posts: 9
Joined: Mon Jan 30, 2012 8:33 pm

Re: End stage and Ascites

Postby AnthonysDaughter » Mon Feb 13, 2012 11:20 pm

My heart goes out to you, your story has similarities with my dad, he passed away on Jan 24th 2012 about a month after having his stomach drained of 7.5 litres, he came home on Christmas eve. His funneral was last tuesday, the 7th Feb. Such a sad time for lots of people at the minute. The start of one of the poems the vicar read was 'we can cry because he has gone. Or we can rejoice that he has lived..' I really think it has had a profound effect on me, it gives me some comfort. Love to all xxx

lynbo
Posts: 269
Joined: Sat Aug 28, 2010 6:23 pm

Re: End stage and Ascites

Postby lynbo » Tue Feb 14, 2012 12:34 am

Dear Rosie & JST
Im so sorry for your loss, my love to you and your families xxxx

goodsyard
Posts: 3
Joined: Mon Apr 30, 2012 3:40 pm

Re: End stage and Ascites

Postby goodsyard » Mon Apr 30, 2012 6:26 pm

Sadly my son in law was diagnosed last summer at the age of 32. We can't help thinking that his young age slowed down his diagnosis, as doctors looked for all other gut cancers first before doing a scan - which enlightened them. He's still with us,and active,not at the end stage but beyond surgery, and maybe being young and fit has helped. The real issue is pain relief. There is a well voiced view from some of the medical profession that all pain can be treated - has anyone found this to be the case?
However, I continue to be amazed at how positive the whole family and their friends are, just getting on with making the most of every single day, and my daughter's employer has granted her 6 months leave, half paid, so they can have time together with their 18 month old baby.
So whilst the overall situation, as we all know, is totally awful, I'm sharing this because I've just spent a very wet weekend with them, and we managed to have a lot of laughs. I took a mini electric blanket heat pad which is doing a brilliant warm up job.
Pain? help please.

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: End stage and Ascites

Postby laura » Mon Apr 30, 2012 10:39 pm

hello, i would assume your son in law has a specialist nurse attached to his oncology team? she certainly would talk to them, but more likely she will advise them to use his macmillan nurse, they are able to negociate with the family dr and specialist, they are well versed in adjusting, adding to, etc, all types of pain control, certainly this has been our experience of them, and hope yours also will be positive.
dont know your son in laws story, my husband now 63,also has inoperable pc, whipple was attempted in april 2010, this was followed by 19 months of chemo, things are currently static, scan due this month,
stay positive, your daughter and family are so doing the correct things, we none of us know whats in store for us, and so should always try to get something pleasurable from each day.
regards and strength to you all, laura

louiepc
Posts: 238
Joined: Wed Aug 10, 2011 10:38 pm

Re: End stage and Ascites

Postby louiepc » Tue May 01, 2012 10:46 am

Hi,

Firstly, I want to say how sorry I am to hear of your son-in-law's illness, such a young age. It is tragic.

Secondly, yes, all pain should be able to be managed. The best management is to keep on top of it, so even if he is not in a massive amount of pain, keep the pain relief up, as the last thing you want is to get to the point where the pain becomes unbearable. There are different medications for different forms of pain, i.e. nerve pain, blockers, etc. Speak to your oncologist/consultant and/or macmillan or whoever have been assigned to him. There is no reason for anyone to be in pain.

I am glad that you are all having good quality times and making fantastic memories. That is very good of your daughter's work, especially having such a little one too.

Take care, keep positive, things with this disease are not always on a set route, it affects people in different ways, and some people have had a good quality of life and have been able to carry on doing the things they love.

louie xxx