Thank you Rachel, Jeni and Lynbo for taking the time out to reply to my post. Sorry for not replying sooner, we have had a busy few days.
My husband came out of hospital on Friday after having 10 litres drained from him in the end. He has been doing very well considering the circumstances. He managed to spend some time with us on New years eve, evening. We held a NYE charity auction event on Saturday to raise money for PC UK. So far we have raised £2,800. I am so pleased to be able to help in a little way towards this. I feel so helpless sometimes, now I feel like I'm doing something! Including the half marathon in April.......
Jeni thank you for the information. I have also been in contact with our local hospice, and the nurse will be attending every two weeks now to keep an eye on things. My husband has a habit of doing things himself with little help from everyone else! Although he is still with us 18 months later, so must be doing something right! We have had such terrible treatment along the way, with misdiagnosis and other things...... which is a whole new story!
Lynbo, it is also so sad that your husband was so young. I'm so sorry to read your story.
I really don't understand why it happened to my husband as he doesn't smoke, rarely drinks and was an avid gym goer........... It just did. I guess one thing that has probably helped him is that he was so fit to start with. There has been a few occasions in the last year and a half that I thought that the end was near, last week being one of them, but he bounces back..... truly amazing!
Our children are amazing too and have coped remarkably well. One is 14 the other 4. There have been a few issues with the 4 year old, but on the whole he has coped very well.
I will definitely keep in touch with you guys on here, as I'm finding that it does help with all the emotions going on.
It is a very sad story indeed that there are so many people in the same boat......wish I had a magic wand!
Lots of love and wishes to you all xxxxx