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This evil disease

Posted: Sun Dec 23, 2018 3:31 pm
by drtzzr1100
Hi all I am new to the forum although I have been reading some posts this is my first. My poor husband who has just turned 58 was diagnosed in October with stage 4 metastatic cancer, tried the chemo for palliative purposes but it made him too poorly so he had to stop. He’s had a stent fitted into bile duct in October also. He is now very weak and we are getting some support from district nurses and McMillan. He can’t eat and says everything tastes bad even drinks , I have tried pineapple juice and a million other things but plain water is all I can get him to have any advice would be appreciated.
Today he has had to have injections for pain and sickness from the nurses and looks so frail, it’s heartbreaking how this evil disease strikes and takes over your loved one 💔😢

Re: This evil disease

Posted: Mon Dec 24, 2018 6:34 pm
by Fernack45
Really feel for you and hope you have a peaceful Christmas xxx

Re: This evil disease

Posted: Thu Dec 27, 2018 8:55 am
by drtzzr1100
So the last 2 days have seen significant deterioration syringe driver fitted to help control pain.
My husband is very bloated and has been sick (fecal sickness) quite a lot over the last day or two which is very distressing. District nurses give levonopromizone through the driver and additional injections but this hasn’t helped.
Still coping at home but it’s getting more and more difficult my husband is getting quite confused and restless.
Waiting for McMillan nurses to come today and see what else we can do to help him and manage these symptoms, any advice would be greatly appreciated if any members have tried other things ?
Out of hours GP came out yesterday and prescribe Buscopan but these so aft haven’t had any effect 😢

Re: This evil disease

Posted: Fri Dec 28, 2018 2:50 pm
by PCUK Nurse Rachel R
Hi drtzzr1100

I am sorry to hear that your Husband has been deteriorating very recently. I hope the visit from Macmillan yesterday went well. Please know that the nurses are here on the support line to offer advice and support, or even just to listen, the contact details are in the strip below.

Thinking of you,
Rachel

Rachel Richardson
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Re: This evil disease

Posted: Wed Jan 02, 2019 1:50 pm
by drtzzr1100
Thank you Rachel, we have been told my husband has 2-4 weeks to live which as you can imagine is devastating news for all of us. We are keeping him at home with support from McMillan and the District Nurses as this is what he wants.
Not sure the reality of this has sunk in for any of us yet, to go from a fit and healthy man of 58 to this in 3 months is hard to accept.
I hope and pray they find an early detection method for this horrible disease to prevent others from suffering this.
Broken-hearted angry and helpless sum up our feelings.

Re: This evil disease

Posted: Wed Jan 02, 2019 4:01 pm
by PCUK Nurse Rachel R
Dear drtzzr1100,

I'm incredibly sorry to hear this news. My heart goes out to you all. Please know we are here if you want to talk.

Thinking of you,
Rachel

Rachel Richardson
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Re: This evil disease

Posted: Wed Jan 02, 2019 6:54 pm
by BromsgroveSister
I am so sorry to hear this awful news.
My brother was a similar age to your husband so I can understand the shock and distress you are feeling.
All I can suggest is be with your husband as much as you can, hold his hand and talk to him.
It is incredibly difficult to come to terms with being told that you have such limited time, but if you can try and make that time count.
I played lots of music to my brother. He loved music so much. And I held his hand as much as I could.

This is an awful disease, a cruel unforgiving disease.
Eventually, I will do as much as I can to try and raise as much money as possible to fund research and awareness of this disease.
At least then maybe families like ours will not have to go through what we have had to go through.
Much love xxxxx

Re: This evil disease

Posted: Sat Jan 12, 2019 10:14 am
by drtzzr1100
So yesterday my brave husband lost his battle with this evil disease. He passed away 13 weeks from being diagnosed at home peacefully with all his family around him. To all of you who are part of this forum I pray you have a better outcome and I will do all I can to help to raise funds and just as importantly awareness to try to stop this from happening over and over again to our loved ones. I don’t know how we will all go forward as a family but in his honour and in line with the bravery and dignity he displayed throughout we will endeavour to do so. X

Re: This evil disease

Posted: Sat Jan 12, 2019 2:26 pm
by Happymags
I am so sorry for your loss.

Re: This evil disease

Posted: Sat Jan 12, 2019 4:07 pm
by Annabelle
I too am so sorry to hear of your loss, my heart goes out to you and your family.

Re: This evil disease

Posted: Sat Jan 12, 2019 4:12 pm
by Fernack45
So sorry xxx

Re: This evil disease

Posted: Sat Jan 12, 2019 9:03 pm
by patrigib
Sincere condoleance, it happened so fast!

Re: This evil disease

Posted: Mon Jan 14, 2019 1:04 pm
by BromsgroveSister
So sorry for you loss.
Sending love and hugs.
Xx

Re: This evil disease

Posted: Mon Jan 14, 2019 4:25 pm
by PCUK Nurse Rachel R
Dear drtzzr1100,

I'm so very sorry to hear of the loss of your brave Husband. On behalf of us nurses here, we would like to extend our deepest sympathies to you and your family - please know that you are in our thoughts. It is lovely to hear that he was at home surrounded by all his Family.

Thinking of you,

Rachel

Rachel Richardson
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Re: This evil disease

Posted: Thu Jan 24, 2019 5:20 pm
by toodotty
Dear drtzzr1100,
I am so sorry to hear your terrible news and I am thinking of you and your family.

Erika