A forum for advanced pancreatic cancer issues

Moderator: volmod

Forum rules
Please see the messages in our "Rules" section

The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice
Desso
Posts: 1
Joined: Mon Apr 03, 2017 6:23 am

Experience and perspectives on surgery for stage IV Pancreatic Cancer.

Postby Desso » Mon Apr 03, 2017 11:10 am

I am diagnosed with stage 4 Acinar Carcinom with the tumor at the tail of the pancreas w/metastasis to the liver. I am very interested in experience and perspectives on surgery of stage 4 patients, understanding that it is a complicated question where each case might be different. I am currently being treated with FOLFIRINOX, and the treatment has so fare been very effective with aprox 50% reduction after four cycles.
I have been in contact with experts in Europe, USA and Asia. The opinion seems to be diverse among the experts. I have received some very positive signals that surgery is possible and most likely beneficial. But also some more skeptical stating that it statistically has not proved to prolong life or increase life quality. Some also seem to be concerned that surgery could spread the cancer more, but I don’t understand that since I already have metastasis and therefor already is in the bloodstream.

My perspective as of now is that cleaning out as much as possible of the cancer must be a good thing as long as I am healthy enough to recover from surgery. Understanding that there might be invisible micro metastasis that you can’t remove by surgery, I would believe that removing the main tumor with reduce the spread of metastasis?

I would be very interested to hear about experience with stage 4 surgery, or from others who have perspectives or knowledge about this treatment.

PCUK Nurse Jeni
Posts: 1016
Joined: Mon Jun 14, 2010 1:30 pm

Re: Experience and perspectives on surgery for stage IV Pancreatic Cancer.

Postby PCUK Nurse Jeni » Mon Apr 03, 2017 4:49 pm

Hello Desso,

Thank you for your post on the forum.

I will respond via email directly.

Kind regards,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: support@pancreaticcancer.org.uk
support line: 0808 801 0707