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kateeighty8
Posts: 12
Joined: Wed Sep 16, 2015 2:54 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby kateeighty8 » Fri Oct 02, 2015 3:34 pm

Yes, what a week you've had Marie! Good to hear your humour shining through, keep smiling and mend soon. Thank you too for your kind words on my post. Thinking of you and your family xxx

belgrade
Posts: 157
Joined: Fri Jul 05, 2013 10:53 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby belgrade » Fri Oct 02, 2015 4:45 pm

Oh my goodness Marie, you've really been through the wringer! Hope you are on the mend now, keep fighting.

Hilary x

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Fri Oct 02, 2015 5:09 pm

Hi all

I have had some wonderful news today. I a have now had 4 cycles of Folfirinox and my latest scan, taken a week ago, shows that my tumour has shrunk by 1cm. It was 9cm so is large but I feel this is a real step in the right direction.

Feeling happy tonight.

Marie

WilliamS
Posts: 70
Joined: Sun Apr 05, 2015 8:00 am

Re: Newly diagnosed 45 yr old mum of 4

Postby WilliamS » Fri Oct 02, 2015 6:51 pm

Good news indeed Marie - long may it continue.

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 7:22 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Sueoliver » Sat Oct 03, 2015 7:05 am

Oh Marie you have really been through it! I hope you are on the mend from your fall. What positive news from your scan I am so pleased for you. Take care of yourself.
Love Sue xxx

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby jay » Sat Oct 03, 2015 9:46 am

Brill news Marie,
love Jayne
x

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Newly diagnosed 45 yr old mum of 4

Postby Didge » Sat Oct 03, 2015 11:25 am

Marie, you do make me laugh. I hope you have a good weekend with minimal pain after your fracture. xxx

sandraW
Posts: 1027
Joined: Thu Oct 31, 2013 5:38 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby sandraW » Sat Oct 03, 2015 12:11 pm

Marie, that's great news, glad you can keep smiling through all your woes take care sandrax xx

JonUK
Posts: 5
Joined: Fri Sep 11, 2015 4:12 am

Re: Newly diagnosed 45 yr old mum of 4

Postby JonUK » Fri Oct 09, 2015 4:22 am

That is great news Marie !! Stay positive. Everyone here is supporting you !

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Sun Oct 11, 2015 6:40 am

Thanks everyone for your kind support, being able to dip in here is great.

I have a lovely day to look forward to today. My favourite artist (Julie Dumbarton - check out her "colour hugs...they brighten the dullest and most difficult days) is having an open day at her Gallery. It's an hours drive away so I was thinking I would miss out as my back is still too sore for a long drive but I have 3 work friends who are travelling down to me (they stay in Ayr which is 1.5 hours drive) to accompany me to the Gallery for a day out. I haven't seen them since first going off sick in Late May so it will be quite a reunion. I have lost 5 stone stone and had my hair cut short in that time so I am sure my appearance will come as a shock although I have been messenging them and sent photos.

As you can probably tell from what I am writing, I am both excited and slightly scared to see them, I can imagine tears but then a lot of laughter, I just hope they cope okay...I hate the impact this horrible disease has on the lives of others...although sometimes it can be positive, with people taking stock of their lives.

I also booked a wee holiday in Ayr in a couple of weeks time. It's a cottage by the sea in a small seaside village with an old fashioned harbour and lots of lovely walks. It will be lovely to focus solely on my husband and kids (oh and Belle our Goldendoodle) although I have to pop into their local hospital at the end of the week for Hickman Line care and bloods as I get my next chemo the day after we return home.

well that's my news, hope you are all doing as well as you can, and if you are having a bad day...cry, it's ok to do that too

All my love and hopes for us all are with you

Marie xxx

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 10:06 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby EmmaR » Sun Oct 11, 2015 8:58 am

Dear Marie how good you are at being positive even when you must have days that you don't feel it ,well a day with friends and a visit to see your favourite artist will do you the power of good ,and then sometime by the sea which I think is so good for the soul !! Marie just live for the moment as in the greater plan of things it's all any of us can do . so you go girl and enjoy your moments and keep on inspiring everyone fighting this dreadful disease as you do .as I have said before its only on this forum that you really feel people understand what sufferers and carers go through .

Take Care all .
Emma X

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Sun Oct 11, 2015 9:38 pm

Hi all,

What a lovely day it has been today. My visit with friends to the art gallery was wonderful. My friends met me with open arms and smiles and not for one moment did I feel uncomfortable about my changed look or the fact that we had to take it slow.

The journey took around an hour, through wonderful country side but terrible (and regrettably typical) Scottish B roads, which were twisty, roughly surfaced and full of blind bends...best travelled with eyes closed unless of course you are the driver! It was difficult with a dodgy tummy and busted back but the excitement and the endless chatter and laughter saw me there before I knew it.

The gallery is in a converted ancient church with high vaulted ceilings and light dapples through stained glass windows. I met the artist herself and sat drinking tea whilst getting lost in her highly colourful art. What an experience, a massive "colour hug" was administered and this medicine was gladly taken.

One of my friends purchased a card of one of her paintings of a sunflower field knowing its my favourite flower as to me it represents strength and beauty (and remind me of my recently deceased mum) ....she sent me a photo later with it displayed on a wall with a decorative heart above it, saying she had renamed the picture as Marie...I feel so touched, their massive gesture to travel so far and take me out for the day and for how they see me........so much for worrying about them being shocked by my changed physical status.

It's little (but oh so big) things like this that push me on and give me the determination to fight, fight and fight some more!

I have a message for you PC...I ain't going down without a fight!

Marie

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 7:22 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Sueoliver » Mon Oct 12, 2015 4:10 pm

Hi Marie,
Sounds like you had a wonderful day with wonderful friends! My Mum always says as long as she has something to look forward to each week it helps her!
You keep fighting you are amazing.
Lots of love ,
Sue xxx

kateeighty8
Posts: 12
Joined: Wed Sep 16, 2015 2:54 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby kateeighty8 » Sun Oct 25, 2015 8:47 am

Hi Marie

So glad to hear about your wonderful day - how precious, and what lovely friends you have (in my experience, lovely people tend to draw lovely people around them). I like how you write too, I could just picture the gallery, the light and the paintings. It is certainly the little or simple things that are often the biggest gift in life, and whatever time we have, we must grab the good times where we can and share them with our loved ones.

You have an amazing strength which I know is going to see you through this terrible illness, because I believe it is possible to simply refuse to be beaten, and you sound like a woman who could do that. Keep on fighting and know we are all supporting you. You are an inspiration!

Sending you big hugs and imaginary sunflowers,

Kate
XXX

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Wed Oct 28, 2015 7:23 pm

Thanks Sue and Kate for your lovely messages. I very recently announced at work that I won't be returning as I am taking I'll Health Retirement. I work as A Project Manager for NHS SCOTLAND and am in the lucky position of paying into a very good pension scheme all of my 25 years. It's time to let it pay me back and use whatever time I have left to fight this nightmare disease and spend every precious moment with my family and friends.

I fully intend to fight this and my hope is that I will prove the medics wrong and come through the other end...at which point I intend to start my own business.

For now life is good, some days are difficult but reading other threads I realise I am fortunate to be coping with chemo well and with the help of creone my appetite is far better. I feel there is now a routine to it all that I can work with. Life is different and slower but I can work with that.

Take care all and remember all any of us can do is take it a day at a time and try to see the positives...easier said than done when times turn tough though.

Love to you all X