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Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Mon Aug 03, 2015 6:03 pm

Hi all, pleased to say my first cycle has gone well so far...understanding it's early days. Seem to have tolerated it well in the clinic and now at home with my pump attached.

RLF
Posts: 223
Joined: Tue Nov 19, 2013 9:30 am

Re: Newly diagnosed 45 yr old mum of 4

Postby RLF » Mon Aug 03, 2015 8:26 pm

That's very good news! I hope you continue to feel well Marie, if you do it's a real blessing
Rob
x

WilliamS
Posts: 70
Joined: Sun Apr 05, 2015 8:00 am

Re: Newly diagnosed 45 yr old mum of 4

Postby WilliamS » Tue Aug 04, 2015 7:08 am

Good to hear that. Stay strong and positive.

LMD
Posts: 120
Joined: Tue Apr 15, 2014 9:06 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby LMD » Tue Aug 04, 2015 9:09 am

Good news Marie - well done! Xxx

sandraW
Posts: 1027
Joined: Thu Oct 31, 2013 5:38 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby sandraW » Tue Aug 04, 2015 10:26 am

That's great Marie, Trevor didn't have many side effect too apart from the tiredness, so don't be surprised if in the next few days you feel lethargic and sleepy, take care sandrax

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Fri Aug 07, 2015 12:40 pm

Hi all, was a bit quick in my news of having a good response to the chemo. unfortunately things got worse over night and I was admitted to hospital with a suspected infection. In the end my bloods etc were normal and they just believe I had a bad reaction to it. Was all a bit scary at the time but I guess it's all just going to take a bit of getting used to.
Today I feel much better, just feeling weak and my tummy isn't great.

Hoping that's the worst over now though and I get a good few days of feeling near normal before we go again on 17th.

The teams in my local hospital were wonderful though x

Marie

JonUK
Posts: 5
Joined: Fri Sep 11, 2015 4:12 am

Re: Newly diagnosed 45 yr old mum of 4

Postby JonUK » Sat Sep 12, 2015 6:19 am

Hi Marie. I signed up to see how you were getting along now ? I really hope everything is well for you. How has the last month been ?

kateeighty8
Posts: 12
Joined: Wed Sep 16, 2015 2:54 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby kateeighty8 » Thu Sep 17, 2015 2:37 pm

Hi Marie

I'm new to the site and have been reading your posts - I'm so sorry to hear about your cancer. I hope things are going OK for you, you are doing so well :)

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Thu Sep 24, 2015 8:33 pm

Hi all, sorry I haven't updated in a while but it feels like I have been through a rough few weeks.

It appears now that my first spell in hospital was down to a reaction to the Irinoteken. I just don't seem to tolerate it well at all

They took to giving me a vile of aatripine to be administered by a district nurse if the side affects came on at home.

I get bad sweats, stomach cramps and bad diorreah which made me largely house bound.

However this time they missed that out and what a difference it has made. I have been feeling good and able to get out for a couple of hours each day which is fantastic.

I have my 1st CT Scan tomorrow and then I meet with my oncologist the following Friday to discuss next steps.

I am feeling very positive just now...I know I can fight this...its just a case of finding a balance.

I have spoken to the team about Nanoknife, I am too advanced just now but I am forever hopeful that that will change. Who knows what will be available if I can just keep this fight going.

Life is good, I am enjoying spending more time with my family and I take each day as it comes.

Marie X

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Newly diagnosed 45 yr old mum of 4

Postby J_T » Fri Sep 25, 2015 11:54 am

good to hear you are feeling so positive Marie - onwards and upwards!

the atropine is usually given before the irinotecan infusion, not after?

Julia

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 7:22 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Sueoliver » Sat Sep 26, 2015 7:39 am

It is nice to hear from you Marie. Stay positive and keep fighting.
Love Sue x

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Newly diagnosed 45 yr old mum of 4

Postby Didge » Sat Sep 26, 2015 10:56 am

Hope you have a good weekend Marie and enjoy the sunshine x

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Sun Sep 27, 2015 7:30 pm

Hi Julia

Due to my reaction I was getting the Atripine before, then half an hour after and then a back up dose for home. Unfortunately even that didn't control the adverse reaction and that's why this time the missed it out all together.

What I don't know at this stage is how removing this drug will affect the overall treatment, I need to discuss that with my Oncologist this week but I am at least confident that everything they do is done with my best interests at heart. I feel lucky to have a great clinical team working with me on this.

Hope you have all had as good a weekend as you can manage X

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Thu Oct 01, 2015 3:54 am

A wee drama or two!

Hi all have had a couple of wee dramas this week. Firstly I woke up Sunday morning with cramping in my right leg, continued all day so I decided to call NHS24 . Turns out I have a DVT. I was glad I had reported it early.
Secondly I had a fall in the shower on Tuesday morning. It appears I fainted due to being anaemia I came clattering down and have fractured one of my lower vertebrae. That was a tad sore!
On the plus side my eldest, who is 17, got to play paramedic by helping them stretcher me down the stairs and then got to ride up front whilst the the blue lighted through the town...he was delighted !!
So I am in hospital getting bed rest and pain management but am already up and about (albeit shakily with a stick).

The OT people came to visit the ward and kitted me out with a support brace (looks like a corset), surgical stockings, a walking stick...in my minds eye I am Liza Minelli :)...all I need is a bowler hat...hey the sick bowl could cover that!

So it's been an eventful week, I have scared my husband and kids to death and I have laughed and cried a lot.

Welcome to the Caberet old Friends...Life is a Caberet :)

Marie

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby jay » Thu Oct 01, 2015 8:50 am

What a week Marie,hope the vertebra heals quickly,take care, thinking of you all,
love Jayne
x