A forum for advanced pancreatic cancer issues

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Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Newly diagnosed 45 yr old mum of 4

Postby Marieb » Thu Jun 25, 2015 10:35 am

Hi all, just wanted to say hi and introduce my self. Newly diagnosed on 18th June after 4 months of thinking it was severe constipation...that's a rant for another day! Just hoping to find new friends that I can talk openly to. Waiting on next set of tests at Specialist a centre to determine type of tumour so the Oncologist can provide what options I have. I am 45 and a fighter!,, hoping you can help keep me strong and maybe I can do the same for you. Marie x

Ant11
Posts: 125
Joined: Sun Dec 01, 2013 8:43 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Ant11 » Thu Jun 25, 2015 11:07 am

Dear Marie

Welcome to the place that nobody wants to be but where you will for sure, find help, support and so much information to help you. You will also find the Support Nurses "priceless". With so much experience and knowledge with PC they will guide you through too.It may be an idea to give them a call on the free phone number and introduce yourself as there are so many things you need to start sorting out with for example "Creons" if they are needed. Love Annette xx

sandraW
Posts: 1028
Joined: Thu Oct 31, 2013 5:38 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby sandraW » Thu Jun 25, 2015 11:28 am

Hi Marie,

Welcome to the forum, We are always here to talk, and give lots of support, As Annette says the nurses are invaluable with their help and support. Keep posting and let us know how you are doing, take care sandrax

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Newly diagnosed 45 yr old mum of 4

Postby Didge » Thu Jun 25, 2015 11:58 am

Welcome Marie. With this cancer it is one step at a time and not to dwell on statistics. So for now, focus on the fact that you may be operable, unless told otherwise. Your fighting spirit will serve you well! Let us know the news when you get it xxx

RLF
Posts: 223
Joined: Tue Nov 19, 2013 9:30 am

Re: Newly diagnosed 45 yr old mum of 4

Postby RLF » Thu Jun 25, 2015 12:14 pm

Welcome Marie,
You will get lots of support and help here as we all understand what you are going through. Ask questions and don't be afraid to be as honest as you want!
Rob x

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby jay » Thu Jun 25, 2015 4:58 pm

Welcome to the forum Maire, this site is amazing and the nurses are fantastic,
take care
love Jayne
x

LMD
Posts: 120
Joined: Tue Apr 15, 2014 9:06 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby LMD » Thu Jun 25, 2015 8:06 pm

Hello Marie
Sorry to read of your diagnosis.
As others have said, this forum provides invaluable information and support so you're definitely in the right place. Good Luck with your next meeting with the Oncologist. Will be thinking of you. The nurses here are extremely helpful and supportive as well.
Keep strong and positive! X

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Thu Jun 25, 2015 9:32 pm

Thank you everyone for replying so soon. It's a great feeling already to know you are out there. Marie x

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Fri Jun 26, 2015 4:13 am

Quick question, I am told that my Cancer is inoperable. This is on the basis of the initial CT where they say it covers 3/4 of my pancreas (avoiding the head), into the blood vessels beside, touching my spleen and affecting one of my adrenal glands. They thought it was in my stomach but the endoscopy was unable to get a biopsy. I am awaiting another more technical endoscopy that will use an ultra sound camera to guide a needle from the stomach to the pancreas. Is the CT scan usually right ie inoperable or is there any hope that they find they can operate once the new exam is done?

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 7:22 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Sueoliver » Fri Jun 26, 2015 6:59 am

Hi Marie,
This is a great forum where you will receive great support. There are many knowledgeable people on here who may be able to help with information. I am sorry to hear about your diagnosis but happy to hear you are a fighter. My Mum has been positive and determined on this whole journey and I am convinced it has helped her.
I think the CT scans give good indication if the tumour is operable or not. Chemo can sometimes shrink it! Have you been offered chemo?
Let us know how you get on with the technical endoscopy.
Take care and remain positive. Love Sue x

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Newly diagnosed 45 yr old mum of 4

Postby Didge » Fri Jun 26, 2015 7:46 am

Good morning Marie. The fact that it has been deemed inoperable is probably more to do with the blood vessel involvement rather than anything else. My bf had tail of his pancreas taken away, his spleen and half his stomach (because tumour was stuck to both) and one adrenal gland. They can also remove the whole pancreas so none of the rest of what you describe would preclude it being operable. Chemo can sometimes shrink it away from the blood vessels so it can become operable and as you appear to be young and fit I would think that you would withstand the chemo well - folfirinox, if that is what you are offered can sometimes bring spectacular results. Good luck and keep us posted! Didge x

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Sat Jun 27, 2015 6:12 pm

Got the date through for my next Endoscopy, it's 13th July. Pain is now stabilising well due to the wonder of these patches, also using Creone with meals and therefore feeling much more comfortable and ready for the fight of my life....get ready PC...I am going to kick ass!!!
Thanks everyone (and Chris who replied direct by email) for your advice and support so far.

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Sat Jul 04, 2015 5:52 pm

Just a wee blog for myself...a means of releasing some tension! Sitting here tonight and I feeling very sore. the wait for the Biopsy is getting to me. I just want a definitive diagnosis and to get on with whatever treatment I can get. Why does it all take so long? I keep telling myself to enjoy this time where I am actually feeling a bit better (thanks to the morphine) and I feel strangely detached from it all. Since originally being diagnosed I have been inundated with offers of support from friends and family...I am truly blessed to have such a supportive network around me. Life feels surreal, those kids voices I can hear through the window can't possibly belong to my little ones...so care free...I wish it could stay that way. I will beat the odds! I have to!

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 10:06 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby EmmaR » Sat Jul 04, 2015 9:48 pm

Oh Marieb
Be strong ,be positive , my hubby & I had a mantra when he was diagnosed Live for today as tomorrow never comes because if it did it would be yesterday ..... And for today we are the same as everyone else as there is no tomorrow !!
EmmaR x

Marieb
Posts: 65
Joined: Sat Jun 20, 2015 5:35 pm

Re: Newly diagnosed 45 yr old mum of 4

Postby Marieb » Sun Jul 05, 2015 5:10 am

Thank you Emma. It's all so new and scary but you are right. When I live in the moment I feel so blessed, the world looks so different to me now. every day is so precious and I feel really strong when I focus on the here and now. I know I am a strong character, I am a fighter and if anyone can prove to be an exception to the rule it will be me...through sheer stubbornness and tenacity. I think I need to learn quickly to not obsess over the future, it's not in my control.
Thank you for responding, knowing others are on here who know how I feel feels like a life line. Today the sun is shining and I have a family to love and enjoy. Marie x