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ChrisP
Posts: 1
Joined: Mon May 29, 2017 6:57 pm

Waiting for Wipple surgery

Postby ChrisP » Sun Jun 04, 2017 11:36 am

Hello

In lots of ways I am probably quite fortunate in that my lesion, which is in the uncinate process of the pancreas, is not yet cancerous but at almost 3cm wipple surgery appears to be the only option as it continues to grow and is extremely likely to become malignant.

More than 40 years ago I had a colectomy (removal of the colon) due to inherited polyposis at St Mark's Hospital when it was in London's City Road but is now attached to Northwick Park Hospital in Harrow. I do not have a pouch. Polyps still grow in my rectum and are inspected every 6 months and the larger ones removed but, as time passes, they have spread to my duodenum. Because of this I was referred to UCH London about 5 or 6 years ago and the polyps in my duodenum have remained small and not needing surgery. However the lesion was discovered and is a problem.

I went on a trial which involves removal of the lesion by an endoscopy procedure to drain the liquid and use heat radiation to remove what remained. The team were very positive about the likely outcome but, after having the procedure, I was told that they could not do the procedure because of 'echobright' which, apparently, means that they could not see the lesion and it, therefore, could not remove it. I was obviously very disappointed.

If anyone is aware of other trials or procedures which might be an option to the wipple procedure I would be happy to hear from you. I'm already type 2 diabetic.

Thanks for reading my story so far.

Best regards
Chris

Veema
Posts: 498
Joined: Mon Feb 02, 2015 5:35 pm

Re: Waiting for Wipple surgery

Postby Veema » Sun Jun 04, 2017 2:08 pm

Hi Chris...I've never heard of your particular problem...perhaps give the nurses a call on Monday, they may be able to point you in the right direction.

If you do have to have the whipples, although major surgery, it's not that bad...my husband made a remarkable recovery from the surgery, but his cancer soon returned.

Good luck

Vx

PCUK Nurse Jeni
Posts: 1014
Joined: Mon Jun 14, 2010 1:30 pm

Re: Waiting for Wipple surgery

Postby PCUK Nurse Jeni » Mon Jun 05, 2017 4:30 pm

Hello Chris,

Thank you for your forum post, and sorry to hear that you were unable to have treatment as part of the trial.

If you would like to contact us then please feel free to do so - the details are at the bottom of the signature.

Kind regards,

Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: support@pancreaticcancer.org.uk
support line: 0808 801 0707

raun cesar
Posts: 30
Joined: Thu Mar 02, 2017 9:22 am

Re: Waiting for Wipple surgery

Postby raun cesar » Tue Jun 06, 2017 10:29 am

Hey Chris, I cannot help you with the problem but hope someone else will add some advice for you. Meanwhile you can ask your nurse in the appropriate direction. Good Luck!!