A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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Sones
Posts: 108
Joined: Tue Aug 21, 2012 7:31 pm

We all need hope........

Postby Sones » Tue Jan 24, 2017 8:38 pm

For the last fives years I have visited this site daily but posted rarely. PC is a dreadful disease and has such a low five year survival rate. When I was first diagnosed I visited this site and believe me it gave me very little hope. However, I'm still here and all of us visiting this site, patient, loved one , carer, whoever, we need this hope, we need to believe that we can survive. Its a terrifying place to be when diagnosed but we are all different and none of us know what our outcome of the treatment we receive is going to be. I fortunately was able to have surgery, my tumour was diagnosed as grade three with three out of ten lymph node involvement. I know I'm "lucky" and believe me I cherish every day, life is different and I spend many a night in a hospital corridor, cubicle or ward with associated problems related to my PC surgery. I still cannot forgive the G.P's who labeled me neurotic during two years of banging on their doors, telling them something was wrong and would say to anyone who feels they are not being listened to keep banging on that door. However, please, please believe me that against all odds some people do survive so if you are someone who has been diagnosed with PC, a partner, son daughter, whoever, hang on to that hope we all need it.x

sandraW
Posts: 1033
Joined: Thu Oct 31, 2013 5:38 pm

Re: We all need hope........

Postby sandraW » Tue Jan 24, 2017 8:57 pm

We certainly do Sue, so lovely to hear you are doing well, that's such great news. Please keep in touch and continue to be an inspiration to people coming on here, showing them people can make it and have a good quality of life. Continue to be "lucky" and take care love sandrax xx

Veema
Posts: 503
Joined: Mon Feb 02, 2015 5:35 pm

Re: We all need hope........

Postby Veema » Tue Jan 24, 2017 9:57 pm

It is lovely to hear from someone who has beaten the odds...I am so pleased for you and you do give people hope.

Vx

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: We all need hope........

Postby Wife&Mum » Tue Jan 24, 2017 11:07 pm

After DG's awful news today it was particularly heartwarming for me to read your post. Such stories of hope give carers like me a massive boost. Sue, thank you so much for posting and may you continue to defy the odds for a very very long time to come.
W&M xx

Proud Wife
Posts: 733
Joined: Sun Jan 17, 2016 9:28 am

Re: We all need hope........

Postby Proud Wife » Wed Jan 25, 2017 8:27 am

I had no idea Sue the you have done so well. I am so sorry if I upset you, W&M or indeed anyone else and took that hope away. I have of course deleted my post as in the cold light of day I knew I would but I fully accept it shouldn't have been there in the first place. Of course, this is all too close to my heart and touched a very raw nerve. As I've deleted the post and replaced it, I thought I'd copy and paste it because your thread is at the top of the forum where it most certainly belongs (and to avoid my apology on DG's thread being overlooked) and periodically, if no-one else posts, I will nudge this thread up just by saying hello or something so that newbies and oldies alike can either see or be reminded that there is indeed hope.

Thank you so much for sharing and bringing me back down to reality!

Love PW xx.................

I HAVE JUST DELETED MY POST AS I SAID I WOULD. MY SINCEREST APOLOGIES IF I OFFENDED ANYONE. I "SPOKE" WITH RAW EMOTION YESTERDAY, NEEDED TO OFFLOAD AND POSTED BEFORE ENGAGING BRAIN. OF COURSE THERE IS HOPE. I JUST WANTED HIM TO BE ONE OF THE LUCKIER ONES, THAT'S ALL.

AGAIN, I AM REALLY SORRY. NEXT TIME I MIGHT TRY TO THINK FIRST. XXXX

Sones
Posts: 108
Joined: Tue Aug 21, 2012 7:31 pm

Re: We all need hope........

Postby Sones » Wed Jan 25, 2017 9:23 am

Dear proud wife, we all need to vent so please don't apologise. In the five years coming on here I have read the most heartbreaking stories but also read and met people who have the most inspirational stories to tell. It must be so heartbreaking for people who have lost a loved one and have to cope with the ongoing pain of that lose. My husband has been and continues to be my rock but he to falls apart at times and I do worry about how he would cope if/when he has to. When I was diagnosed my youngest son was in his second year at RVC. I honestly never though I would see him graduate but I did and he's now been a fully fledged vet for over two years. I do ask myself "why me" but like I said we are all different and that's the only answer I can give.
Whoever, you are stay strong and keep fighting.x