A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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jict
Posts: 20
Joined: Sun Jan 08, 2017 7:25 pm

Re: Need advice as very worried

Postby jict » Mon Jan 16, 2017 11:51 am

Hi Marmalade,

Thanks for the good wishes. Overnight was better last night - still woke up during the night but not with the nauseous feeling although it did appear around 7.30am but not as bad. Yesterday afternoon felt worse again around 4pm - seems to coincide with stomach being empty. I've also been having an odd taste in my mouth on and off over the last 5/6 months. I did tell my GP but it was never really pursued further.

I also have a problem with my knee joints too. Started months ago with clicking if I stood up from a squatting position. Then left knee got a bit sore at times. Now my right knee feels as if it wants to buckle under me and can be quite sore. It's stopping me going for walks as it was very sore at the end of a walk a couple of days ago.

I've always been fairly fit so these symptoms are really getting me down at times. I just feel like I have no energy at all and wake up just as tired as when I went to bed.

jict
Posts: 20
Joined: Sun Jan 08, 2017 7:25 pm

Re: Need advice as very worried

Postby jict » Mon Jan 16, 2017 11:56 am

Dandygal - just wondered if you had any thoughts on my B12 level at 524?

Marmalade

Re: Need advice as very worried

Postby Marmalade » Mon Jan 16, 2017 12:29 pm

Hi jlct,

I'm sorry you are having all these issues. I have to say that they wouldn't automatically lead me to PC and from the sound of it they are not leading your GP there either.

The joint pain could be arthritis or a number of other things. While I have sympathy with your situation and think that you need to advise your GP of any developments and queries, along side you can only try to help yourself with a healthy diet, regular low impact exercise, swimming can help with joints) a class or something to stimulate your brain and some socialising. Not much else I can suggest at this stage.

M x

jict
Posts: 20
Joined: Sun Jan 08, 2017 7:25 pm

Re: Need advice as very worried

Postby jict » Mon Jan 16, 2017 12:45 pm

Hi Marmalade,

I think it's the stomach issues and back pain that have been leading me to either stomach cancer or pancreatic cancer to be honest but yes there are so many other issues too.

A test for arthritis was done in May and came back negative so I am at a loss.

I do really need to try and exercise some more now but getting increasingly difficult with all of this tiredness and weakness.

Thank you for your replies though as they've been very helpful.

jict
Posts: 20
Joined: Sun Jan 08, 2017 7:25 pm

Re: Need advice as very worried

Postby jict » Wed Apr 19, 2017 11:34 am

Thought I would update this post. No further forward with regards to a diagnosis though.

My gastroscopy showed that my stomach was normal - they have taken a couple of biopsies which I have been told is normal procedure and probably to check for H.Pylori and Celiac Disease. No word back on them as yet.

I also had a further abdominal ultrasound done just before the gastroscopy as I was still complaining of a sore back, especially on the left hand side but also around the middle of my back. Had to push the GP for this though. This time the ultrasound was done by the Consultant Radiographer who gave me information at the time of the scan which is unusual. I did mention my concerns about the pancreas so perhaps she felt sorry for me! She did say that she could see the pancreas and there were no problems. I'm really trying to be positive with this news as I still have a lot of back pain on the side especially in the evening and especially if I lie down on the couch to watch TV. My back gets quite itchy too. Can an ultrasound be quite clear?

Veema
Posts: 503
Joined: Mon Feb 02, 2015 5:35 pm

Re: Need advice as very worried

Postby Veema » Wed Apr 19, 2017 9:21 pm

If she could see the pancreas and no anomalies then I'd take it that you don't have pancreatic cancer. The only discrepancy occurs when they can't see the pancreas clearly because of where it's located.

Hope you can get to the bottom of things.

Vx

raun cesar
Posts: 30
Joined: Thu Mar 02, 2017 9:22 am

Re: Need advice as very worried

Postby raun cesar » Thu Apr 20, 2017 11:13 am

Sorry about your health situation, my weight and diet always tend to fluctuate. You might developed some allergy with fermented products....

jict
Posts: 20
Joined: Sun Jan 08, 2017 7:25 pm

Re: Need advice as very worried

Postby jict » Thu Apr 20, 2017 3:09 pm

Veema wrote:
> If she could see the pancreas and no anomalies then I'd take it that you
> don't have pancreatic cancer. The only discrepancy occurs when they can't
> see the pancreas clearly because of where it's located.
>
> Hope you can get to the bottom of things.
>
> Vx

Thanks Veema.

I can't see her saying everything was ok with the pancreas if she couldn't see it all but yes that was my worry, especially with the body and tail that seems to sit behind the stomach. However as she was the Consultant Radiographer I'm sure she knew what she was looking for.

My weight has stayed constant for around 15 months now although never did recover what was lost at the end of 2015. Presumably anything really serious would have seen me losing weight over this last year.

jict
Posts: 20
Joined: Sun Jan 08, 2017 7:25 pm

Re: Need advice as very worried

Postby jict » Thu Apr 20, 2017 3:10 pm

raun cesar wrote:
> Sorry about your health situation, my weight and diet always tend to
> fluctuate. You might developed some allergy with fermented products....

Thanks. I'm beginning to think some sort of auto immune disease.