A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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Healing in darkness

Postby latvis » Fri Jul 22, 2016 10:41 am

Subject: adjuvant therapy for tumor in body of pancreas works well- but now we are facing episode 2...

Oct 1. 2015 62 y. old Caucasian male complaints about jaundice. Total bilirubin
was 217, GGT- 658.
Oct-Nov 2015 Doctors placed stent in bile duct. CA 19-9 value is 120 U/ml. No
Dec. 22, 2015 Diagnosis via operation- inoperable tumor between the body and tail
of pancreas with metastasis in abdomen. Initial tumor-
perhaps in Gallbladder. CT reading has been confirmed in Germany.
Jan, 2016 Patient starts to gradually use all possible non-invasive and
non-toxic methods he can find on internet. As a relative, I was asked
for opinion sometimes. So it will be possible to brush aside ideas like
injection of cytotoxic substances in abdominal cavity.
Feb, 2016 Patient accepted palliative chemotherapy. So more or less parallel for
next months he used
1. palliative chemo
2. phytotherapy
3. Immunotherapy
4. virotherapy
5. Physiotherapy
6. Alkalizing therapy
7. sometimes- juicing (no constant diet).
Rising of patient’s blood pH from 6.0 to 7.25 had no immediate effect, but maybe helped more slowly. Initially giving of mineral substances from Kelp algae and Cell-food seems to help. For getting energy initially- meldonium. In this case, process can be somewhat monitored with unaided eye by swelling of gallbladder and related pains. Both normalized in two weeks.
Middle of May, 2016
Patient gained weight, experienced days of light fever.
June 17, 2016 CT cannot see metastasis in abdomen or gallbladder. Diameters of
intrahepatic ducts has been reduced in comparison with January CT.
In the place, in which doctors see tumor in last December, now
is hypodense region 4cm (i.e. cyst). CA-19-9 value dropped to 40.
July 13, 2016 Qigong lady sees small tumor in head of pancreas, near intestines.
For a while here are signs of destruction of cells- like elevated uric
acid levels in blood. CA-19-9 started to rise- yesterday was 160.

I would appreciate opinions/answers to some questions:

1. how dangerous pancreatic duct cyst can be during treatment?
2. how in praxis can be tumors in pancreas, bile duct, liver resolved?
3. are our reasoning correct and after low CA-19-9 marker tumor next can be high CA-19-9 marker one?

Hope this will be helpful- and thanks in advance.

Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Healing in darkness

Postby Didge » Fri Jul 22, 2016 12:36 pm

Hi Latvis
I am not a medic but will try to address your questions. It would seem that your relative has made good progress if the latest CT showed good reduction. Many people on here have tried Nanoknife in London so that could be worth a look at. The rise in CA19-9 could be showing that tumour activity is on the increase but sometimes it rises for other reasons. As far as I am aware the danger from cysts or tumours blocking pancreatic ducts us that they can cause jaundice so keep an eye on that. Good luck!

PCUK Nurse Rachel C
Posts: 61
Joined: Wed Jan 14, 2015 4:25 pm

Re: Healing in darkness

Postby PCUK Nurse Rachel C » Fri Jul 22, 2016 3:23 pm

Dear Latvis,

Like many have said before me, welcome to the forums, although I appreciate its not the place anyone wants to be. Thank you for posting and sharing your experience and I am sorry that someone close to you has been affected by pancreatic cancer. I am sure you will find this a very supportive community. My name is Rachel, and I am one of the nurses working for the charity.

I have to apologise I have found it a little difficult to follow the full story of your relatives experience so far and as there are may complex points within the post, I will email you separately. I do hope you that you dont mind?

Best Wishes,
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: support@pancreaticcancer.org.uk
support line: 0808 801 0707

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Joined: Wed Jul 20, 2016 10:06 am

Re: Healing in darkness

Postby latvis » Sat Jul 23, 2016 8:14 am

Dear Rachel,
thank You. We both know, palliative chemo cannot do much. So- something from coctail, patient used, helped him. But now is episode 2...
As an outsaider, I am sympathetic to idea, that we should heal patient, not disease. So monitoring of blood oxygenation level, detox, enemas etc. should have some weight in general battle.

Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Healing in darkness

Postby Didge » Sat Jul 23, 2016 9:08 am

Me too Latvis although you won't find much discussion of alternative approaches on here. However pancreatic cancer is a very hard nut to crack whatever the approach and for that reason it is good to keep an open mind.