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Veema
Posts: 352
Joined: Mon Feb 02, 2015 5:35 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Veema » Sat Mar 25, 2017 12:07 pm

It doesn't sound like ascites Ruth...Nige's ascites symptoms was a constantly distended belly, he did burp quite a bit, but he did that before the ascites developed too. It didn't come and go, it was always there and just got bigger and bigger.

My mum had an illeostomy for a while and I remember the wind...her bag used to blow up like a balloon and sometimes burst with the pressure it came on that quick.

Lots of luck with the nanoknife and the chemo.

Vx

Marmalade

Re: Mum of 42 recently diagnosed inoperable PC

Postby Marmalade » Sat Mar 25, 2017 2:17 pm

Just a thought Ruth, have you tried increasing creon or even just eating half the meal and then having another creon with the second half?

I hope you feel more comfortable soon and good luck with the nanoknife and treatments.

Thinking of you, M x

Ruthus
Posts: 177
Joined: Tue Nov 17, 2015 2:39 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Ruthus » Sun Mar 26, 2017 9:39 am

Thanks Velma and Marmalade. I ate earlier last night but my stomach felt distended and full afterwards and my illeostomy didn't do anything. I went to bed around ten and had an uncomfortable night. My husband was worried my illeostomy maybe blocked and so did I as in the middle of the night it still hadn't done anything. I read up what to do which involved pulling knees up to chest, lying on back and rocking side to side. Also massaging stomach. It seemed to work and my illeostomy is working again. My stomach feels more comfortable but is not right. It's still distended. Not hugely distended but I'd say looks slightly swollen and it go's down to my pelvis. I took my temperature as felt hot but it's ok.
I'm at the hospital tomorrow so if I can manage through today I will hopefully be reviewed. I just hope it doesn't prevent me from having nano knife.
Ruth

Ruthus
Posts: 177
Joined: Tue Nov 17, 2015 2:39 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Ruthus » Sun Mar 26, 2017 9:40 am

Marmalade I have increased my creon x

Proud Wife
Posts: 720
Joined: Sun Jan 17, 2016 9:28 am

Re: Mum of 42 recently diagnosed inoperable PC

Postby Proud Wife » Sun Mar 26, 2017 6:30 pm

So sorry to hear you are not 100% Ruth. Fingers crossed it's just a blip. Wishing you good luck for tomorrow and hoping nano knife still goes ahead. Please keep us posted xx

Ruthus
Posts: 177
Joined: Tue Nov 17, 2015 2:39 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Ruthus » Wed Apr 12, 2017 8:12 pm

This is Tony, Ruth's husband, I am sorry to tell you that she passed away peacefully with her loving family around her early yesterday morning.

Ruth found this thread a great source of support through her illness and the information and knowledge she gained from it helped her live as full a life as she could through treatment in that precious time she had from diagnosis.

I know what a hammer blow she felt every time her friends on this thread had progression of the disease or lost their fight and equally that she was an inspiration to many in how she dealt with this awful condition.

Ruth was an amazing woman and I can't tell you how proud I am of her and her unfaltering sunny disposition. She was absolutely incredible & coping with everything PC threw at her just amplified her positive qualities. What a star.

I'll come back at some time and report on her last couple of weeks, as I know it is the sort of thing that we would have found useful to read.

Love to you all and thank you from the family for your support

Tony xxxx

sandraW
Posts: 987
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby sandraW » Wed Apr 12, 2017 8:58 pm

Tony,
I am so so sorry to hear you have lost your beautiful Ruth my deepest sympathy to you and your son and daughter and the rest of your families, on their loss.
Ruth was, as you say, a breath of fresh air her posts where always so positive, and I know how active she was and how happy she was to be in Spain riding her bike in the sunshine. I was the one who after her op reminded her just how important it was to rest and not push herself too far, I think she did agree with me in the end and tried to be more kind to herself.
This disease is truly evil, it just destroys people, it is relentless, but you like myself will have so many happy memories to hold on to, and they are so very precious.
I am sending love and strength to you all, take care sandrax xx

Marmalade

Re: Mum of 42 recently diagnosed inoperable PC

Postby Marmalade » Wed Apr 12, 2017 9:38 pm

Dear Tony,

Thank you so much for posting, it must have been incredibly painful for you.

As well as being the centre of your family, Ruth was, as you rightly say a very special person to all of us, part of the great family where none of us wants to belong. She emailed me several times when Louis was ill with encouragement and great compassion, and cheered on my efforts to make improvements for patients and carers, this was her nature and her legacy. I'm glad that she was peaceful at the end and had you with her.

Grief is a difficult process so I hope you know we are all here for you too. It can be a comfort to be among a family of strangers.

I send my love and prayers to you all in the confidence that she is released from her trial and is at peace, you have all done a great job in walking beside her and can rest easy now too.

Marmalade xxx

Veema
Posts: 352
Joined: Mon Feb 02, 2015 5:35 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Veema » Wed Apr 12, 2017 9:40 pm

Tony, I was so sorry to hear about Ruth...she was such a positive lady who really did her best to get on with life despite the crap that this disease throws at you. She will be missed on this forum.

Much love and strength,

Vx

Ant11
Posts: 121
Joined: Sun Dec 01, 2013 8:43 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Ant11 » Thu Apr 13, 2017 5:16 am

Dear Tony & Family
Like my forum family, I was deeply saddened to hear about beautiful Ruth’s passing. As you said Ruth certainly gave everything she had to fight this battle, with the help of her family and friends. She inspired us all with her support, encouragement and appreciation of life to others whilst going through the same journey herself.

She reminded me so much of my Sister in Law, Tracy, having been inspired by her story and love of life, and our contact outside of the forum is something I will hold close to my heart. The lovely emails and updates are truly special. I’m sure our loved ones will be taking great care of Ruth on the other side....... May she rest in eternal peace. You will always be in our thoughts and prayers.

Love to you all. Annette xxx

“If there ever comes a day when we can’t be together, keep me in your heart, I’ll stay there forever.”

Quickasyoucan
Posts: 71
Joined: Tue Jan 17, 2017 10:06 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Quickasyoucan » Thu Apr 13, 2017 6:39 am

I am very saddened to hear of Ruth's passing. She was an inspiration to all of us on this forum. To be fighting a battle against this disease but still time to raise money for the cause, to help others and to take the time to share her story - these are the marks of a wonderful soul.

I hope that the fact that Ruth was enormously respected and will be sorely missed will provide comfort to you and to your family, Tony.

With all best wishes

stepuha
Posts: 90
Joined: Thu Nov 10, 2016 2:31 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby stepuha » Thu Apr 13, 2017 6:55 am

Dear Tony, I am so very sorry for your loss. I was very inspired by Ruth. She was so positive and full of life. Her PC journey had a lot of similarities with mine and she was very supportive. I can't believe how quickly things developed. This disease is truly horrible. My thoughts are with your family.
With love
Stepuha

Justamo
Posts: 355
Joined: Sun Sep 04, 2016 9:38 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Justamo » Thu Apr 13, 2017 7:04 am

I'm so sorry for you and your family Tony. The words 'inspirational' and 'hope' rang out of every one of Ruth's posts and she supported so many of us just when we needed it. At times it was hard for us carers and partners of victims of PC to remember that Ruth was a sufferer too.

She will leave a massive gap in your lives. She will leave a huge gap in this forum family too.
Love and prayers
Mo

Veebee
Posts: 77
Joined: Thu Feb 16, 2017 4:31 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Veebee » Thu Apr 13, 2017 8:44 am

Tony...This is so sad. Please accept my condolences on the passing of Ruth. She was a true fighter of this dreadful disease and was so positive in her posts that I thought she would be the one to beat it. I'm so very sorry to read your posting. Her journey was long and hard fought, you should be very proud of her determination. My thoughts are with you and your family.


Vee x

PCUK Nurse Jeni
Posts: 951
Joined: Mon Jun 14, 2010 12:30 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby PCUK Nurse Jeni » Thu Apr 13, 2017 9:32 am

Dear Tony, and the rest of Ruth's family,

We are so very sorry to hear of the passing of Ruth - she was a much loved member of the forum family, and gave a strong fight against PC - with great dignity, courage and hope.

I would like to pass on our sincere condolences on behalf of the nurses here, who had several email contacts with Ruth, and also, on behalf of the wider charity - as I know you were involved on many levels.

Thank you so much for taking the time to post in the midst of your own grief and suffering.

With kindest regards,

Jeni.
Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: support@pancreaticcancer.org.uk
support line: 0808 801 0707