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PCUK Nurse Jeni
Posts: 951
Joined: Mon Jun 14, 2010 12:30 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby PCUK Nurse Jeni » Thu Dec 01, 2016 10:41 am

Hello Ruth,

Thank you for your post with your updates.

This really is excellent news Ruth - and so lovely for you to hear some positive news, with such a good response to the Gem/Cap combination.

Long may it last!

I am sorry to hear that you have had nasty mouth ulcers, which made eating difficult. This is most probably from the capecitabine tablets, as it is a well recognised side effect of these.

Wondering Ruth, do you have a good mouthwash at all? Difflam is a really good one, and is used often for people when they are on chemotherapy - it has a good anaesthetic property, so also helps with the pain. If you don't have any of this, please do ask for a prescription for this.

Another good item to help with mouth ulcers is a paste called Igloo. It is basically quite a thick paste, which you apply with a dry finger to the ulcers - it then coats them, and adheres to them - and remains there for a period of time - it may be used 4 times a day. This can also be accessed via prescription, however if it is the only item, it is cheaper to pay for it - unless you have a pre-payment certificate.


Finally, if these do not work, there are some very small tablets called Hydrocirtisone Buccal tablets, which you place onto the ulcer and dissolve them - they help to reduce inflammation and pain.

I hope this is of some help Ruth, and i hope the fund raising evening goes well.

Kind regards,
Jeni.
Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: support@pancreaticcancer.org.uk
support line: 0808 801 0707

Marmalade

Re: Mum of 42 recently diagnosed inoperable PC

Postby Marmalade » Thu Dec 01, 2016 8:44 pm

Wonderful news Ruth, I am so very happy for you M xx

Ruthus
Posts: 177
Joined: Tue Nov 17, 2015 2:39 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Ruthus » Thu Dec 01, 2016 9:18 pm

Thanks for the advice Jeni

The hospital gave me difflam and I used this regularly when the ulcers appeared. They appeared in the final five days of my last cycle. They are very unpleasant and the ones under the back of the tongue were really sore and made eating painful. The difflam helped and as soon as I had my week off the ulcers disappeared. I'm just finishing my first week of cycle 4 and touch wood I've had no reoccurrence. I think it will be the third week that they may pop up if they are going to.

PCUK Nurse Jeni
Posts: 951
Joined: Mon Jun 14, 2010 12:30 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby PCUK Nurse Jeni » Fri Dec 02, 2016 4:53 pm

Thats good to hear Ruth.

Fingers crossed that they won't appear this time around.
Jeni.

Ruthus
Posts: 177
Joined: Tue Nov 17, 2015 2:39 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Ruthus » Sun Dec 04, 2016 10:23 pm

I am delighted and so pleased that the concert we put on last night raised £15,224 which will be split 50/50 between Pancreatic Cancer UK and my Oncology hospital where we have requested the money is ring fenced specifically for Pancreatic Cancer research. We don't know the total made from the quizzes we and others put on for Pancreatic Cancer awareness month in November but I'm aware the staff at PCUK are totaling this amount and will let us know once this has been done. I'm nearly upto £5,000 on my Just a Giving page for Pancreatic Cancer UK. I just wanted to do my bit and that will probably be it now in terms of fundraising. I'm so pleased that people have been so generous and it's hopefully raised a lot of awareness too.

Ruth X

Marmalade

Re: Mum of 42 recently diagnosed inoperable PC

Postby Marmalade » Sun Dec 04, 2016 11:11 pm

You are a star Ruth in all respects. Much love to you for all you are and all you do.

M xx

sandraW
Posts: 987
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby sandraW » Mon Dec 05, 2016 4:40 pm

Ruth, that is fabulous, well done to you all and thank you for all your hard work. love sandrax xx

Wife&Mum
Posts: 354
Joined: Thu Dec 03, 2015 3:12 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Wife&Mum » Mon Dec 05, 2016 4:46 pm

A big thank you from me and my hubby too, a fantastic achievement, you should feel very proud.

W&M xx

PCUK Nurse Jeni
Posts: 951
Joined: Mon Jun 14, 2010 12:30 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby PCUK Nurse Jeni » Mon Dec 05, 2016 4:54 pm

Ruth,

This is such fantastic news.

A heartfelt thanks to you from all of us at Pancreatic Cancer UK - people have truly been very generous.

And a huge well done to you and yours for all your hard work.

Jeni.
Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: support@pancreaticcancer.org.uk
support line: 0808 801 0707

Justamo
Posts: 355
Joined: Sun Sep 04, 2016 9:38 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Justamo » Mon Dec 05, 2016 9:18 pm

How much ? ? ?

Just three little words:

A
Maze
Ing

Love, Mo

Ruthus
Posts: 177
Joined: Tue Nov 17, 2015 2:39 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Ruthus » Tue Dec 06, 2016 7:08 pm

Thanks all

I am hoping that by the time we have finished collating all the money from the quizzes, Just Giving and the concert that we will be in the region of £25,000.

an_optom
Posts: 11
Joined: Sat Nov 19, 2016 10:10 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby an_optom » Tue Dec 06, 2016 7:20 pm

Absolutely fantastic. Great job Ruth. Can't imagine a better source of inspiration than you. Makes me want to carry on fighting for mum.

Big smiley face!

Sandiemac
Posts: 51
Joined: Tue May 10, 2016 10:27 am

Re: Mum of 42 recently diagnosed inoperable PC

Postby Sandiemac » Wed Dec 07, 2016 12:24 pm

Lost for words, but full of admiration. Love Sandie

Proud Wife
Posts: 720
Joined: Sun Jan 17, 2016 9:28 am

Re: Mum of 42 recently diagnosed inoperable PC

Postby Proud Wife » Wed Dec 07, 2016 1:12 pm

I'm hoping it will be even more Ruth once we hold our quiz!! Your are amazing, truly amazing my lovely xx

Ruthus
Posts: 177
Joined: Tue Nov 17, 2015 2:39 pm

Re: Mum of 42 recently diagnosed inoperable PC

Postby Ruthus » Fri Dec 23, 2016 12:10 pm

Hello all
I want to wish all of you a lovely Christmas. I know that will be difficult for many but I hope that in the face of things you manage to enjoy this time and have atleast some relaxation and comfort with family.
I am feeling much better about Xmas this year than last year. Last year was awful as I was in a state of shock after diagnosis. This year I feel much better about things even though I have stage 4 PC! We have just had a lovely 10 day break in Spain again and I managed a 20 mile bike ride.
I am due to have gemcitabine, start of 5th cycle this p.m. I'm not looking forward to it to be honest and could do with a week off.
Anyhow, I must crack on with it.
I am remembering the people who we have sadly lost on the forum this year. People who were inspirational and great source of support for me when I was first diagnosed. I am sending love and thoughts to their families.

Love Ruth xx