A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

Moderator: volmod

Bee
Posts: 219
Joined: Fri May 03, 2013 9:39 pm

Re: My Journey So Far

Postby Bee » Wed May 18, 2016 8:32 pm

Dear Mark,

I haven't posted on here for a long time but always keep an eye on everyone's stories. I have followed your journey from the start, I think you posted for the first time at around the same time as I did about Chris.

I am so sad to hear your news, I hope your remaining time continues to be pain free and peaceful. I am sure you will be surrounded by love, with a million memories in your mind.

Sending love to you and your family

Bee xxx

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: My Journey So Far

Postby EmmaR » Wed May 18, 2016 9:37 pm

Mark you and Steve were the two guys that I kept telling my hubby about when I joined the forum in sept 2013 sadly my OH only lived 8 weeks after diagnose when he was poorly he would say ask the Dr on the forum and the chap from Swansea what should I do ! It was people like you and the ladies on this forum kept me sane we all go through the journey with this vile disease with as much hope as we can muster and you had plenty of that ! so if you think your journey is coming to its end may it be pain free and peaceful and know you made a difference .
Love EmmaR X

belgrade
Posts: 157
Joined: Fri Jul 05, 2013 11:53 pm

Re: My Journey So Far

Postby belgrade » Wed May 18, 2016 10:27 pm

Dear Mark,
I'm struggling to find words to express how sad I am to hear this. You have been such a strength and support to all on this forum. I remember your first response to me when we didn't know if my husband had cholangiocarcinoma or pancreatic cancer. Sadly, my husband only lived for 7 weeks following his diagnosis in July 2013. I am so glad that you have had the opportunity to have three good years and hope these memories will support you and your family in the coming days.
My thoughts are with you and your family.

Hilary

Dandygal76
Posts: 755
Joined: Sat Mar 12, 2016 9:49 am

Re: My Journey So Far

Postby Dandygal76 » Wed May 18, 2016 11:31 pm

Hey Mark, I did write a post on here earlier and before my other posts but it hasn't worked. I hope you get to post again, you have been such an inspiration to many. When I felt all was lost... there was your post of hope. And your thread will go forth and help so so many people. And if it helps all those people survive 3 years... with things as they are now, you may have saved a lot of people. I wish you no pain and calm. I am not religious but agnostic.... there has to be more than this. I would rather see you back on here but if not... we will see you on the other side. Stay strong and much love to you and your family. x

Paige
Posts: 34
Joined: Fri Mar 04, 2016 5:21 pm

Re: My Journey So Far

Postby Paige » Fri May 20, 2016 11:57 am

Dear Mark,

I am so deeply saddened to read your latest post, I am so sorry to hear this. I have followed your story since you joined and you have been such a tremendous support to others on this forum, my Dad found your updates so uplifting. You have given others so much hope. The lovely holidays you have had with your wife will be beautiful memories treasured always. You have been so inspirational, continuing to go on skiing holidays is incredible. I just don't quite know what to say l, thank you for all the support you have given and for keeping the forum updated at such a difficult time, I will miss seeing yor updates.

Thinking of you and your family.
Paige
Xx

MSH
Posts: 228
Joined: Tue Apr 30, 2013 11:03 pm

Re: My Journey So Far

Postby MSH » Sun May 29, 2016 9:52 pm

Mark passed away peacefully at home in the early hours of the 28 May, surrounded by his family as he had wished.

He bravely fought this terrible cancer for over three years. Pursuing the hobbies and activities that he loved. During this time, he was able to witness important family events and enjoy numerous holidays.

Through his blog he was able to express the emotional roller coaster that he was experiencing through the trails and tribulations of his treatments. I know that many have posted of the inspirational effect of his posts. We know that support and encouragement that he received in his blog encouraged him and it helped to know that others were going through the same experiences, in what can only be described as devastating diagnosis.

As his last post indicated it was a surprise that he was diagnosed with gastroparesis and mercifully this spared him from more of the ubiquitous symptoms of PC and metastatic disease. His decline was quick and relatively painless, which we would all hope for.

He was a loving husband, father and grandfather and was an inspiration to us in all aspects of our lives. He will be greatly missed not only by his family and friends but also the wider community. His whole life was dedicated to helping others, not only in his GP role but also helping others to gain new knowledge and experiences.

We can only hope that new medical advances will one day defeat this dreadful disease.

With all our love Diane, Claire, Rachel, Alex and little Eleanor

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: My Journey So Far

Postby J_T » Sun May 29, 2016 10:43 pm

This is just the saddest news and I am so, so sorry to hear it.

My husband was diagnosed around the same time but sadly succumbed after only 7 months so I was always interested in Mark's progress which gave hope to other users of the forum and he will be sorely missed.

I am glad you have had three quality years as a family. I know you have made some wonderful and enduring memories.

May he rest in peace. Thank you for letting us know.

With love, Julia xxx

stmfst
Posts: 10
Joined: Wed May 06, 2015 3:59 pm

Re: My Journey So Far

Postby stmfst » Sun May 29, 2016 10:57 pm

I am so very sorry. Mark was inspiring and gave us all hope as well as wonderful up to date, relevant information. He seemed invincible. He was quite clearly an exceptional person. Thank you so much for letting us know.

boa
Posts: 129
Joined: Thu Jul 09, 2015 1:13 pm

Re: My Journey So Far

Postby boa » Mon May 30, 2016 7:24 am

Thank you for letting us know. When I joined the forum just about a year ago and read Mark's inspiring story it gave hope to my husband and to me. Hope is very important in illness and that along with inspiration was what Mark added in his wonderful way to this forum. Another chapter closes here. I send your family warmest wishes for the future and thank Mark for taking time to help us all. Catherine

Dandygal76
Posts: 755
Joined: Sat Mar 12, 2016 9:49 am

Re: My Journey So Far

Postby Dandygal76 » Mon May 30, 2016 7:37 am

I am saddened to hear of Marks passing and send my condolences to you all. I also read the whole of Marks story and it helped me and my family to look upon this illness with hope rather than desperation. Thank you for taking the time to come on here and inform us during a time that must be tremendously difficult for you all. Sending my love and hugs to you all. x

Paige
Posts: 34
Joined: Fri Mar 04, 2016 5:21 pm

Re: My Journey So Far

Postby Paige » Mon May 30, 2016 9:38 am

I am so so sorry to hear this extremely sad news. Mark was inspirational and the forum will not be the same with out him.
Sending you love and thinking of you all.
Xx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: My Journey So Far

Postby Sueoliver » Mon May 30, 2016 9:38 am

There are no words! Mark was an inspiration to many on this forum . I am deeply saddened for you all and thinking of you at this sad time.
Much love,
Sue xxx

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: My Journey So Far

Postby jay » Mon May 30, 2016 9:48 am

Thinking of you all. I am so sorry, Mark was truly inspirational and gave us all hope.
love to you all
Jayne
x

sandraW
Posts: 1033
Joined: Thu Oct 31, 2013 5:38 pm

Re: My Journey So Far

Postby sandraW » Mon May 30, 2016 10:06 am

I am so very sorry to hear the very sad news of Mark's passing, he was such a great inspiration to all of us here on the forum, as the others have said.
He certainly did it his way, and we all loved hearing about his many trips, and how he was always planning the next one, he must have made many many memories for you all to cherish.
I am so glad that his passing was peaceful and that you could all be with him, what more could we ask for. I wish you all love and strength for the next stage of your journey as you come to terms with your loss, even though I am sure you are in some way prepared, the reality it another thing. Please take care and thank you for letting us know sandrax xx

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: My Journey So Far

Postby EmmaR » Mon May 30, 2016 11:03 am

Rest in peace Mark .
Sending Kind Regards to your family
EmmaR x