A forum to focus on treatment related issues and side effects from treatment

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The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice
PCUK Nurse Jeni
Posts: 984
Joined: Mon Jun 14, 2010 12:30 pm

Re: Failed Whipples - What are my options?

Postby PCUK Nurse Jeni » Thu May 19, 2016 11:35 am

Hello all,

Thanks Dandygal for the post.

Whilst we appreciate that many health professionals names and contact details are certainly available on the web, as forum moderators we do have to remove the names in order to maintain consistency and operate within the Charity forum guidelines.

This is really for the protection of forum users, and more so, the health professionals involved, being mindful that the contents of the forum are visible across the internet on a world wide scale, and not just to those registered users on this forum.


Of course we all know that everyone knows who is carrying out Nanoknife, and that's fine. We are always reviewing what we do in practice, and recognise where we need to re-evaluate best practice.

You are always welcome to contact us directly and ask for an individual's contact details, in order to pass on information, provided that person is in agreement. I know it is not as direct, but really, we do have to ask all users to give due attention to the guidance & rules.

Kind regards,

Jeni.
Pancreatic Cancer Nurse Specialist,

Support Team.

Dandygal76
Posts: 736
Joined: Sat Mar 12, 2016 9:49 am

Re: Failed Whipples - What are my options?

Postby Dandygal76 » Thu May 19, 2016 11:44 am

Thank you - as long as he can ask you then that is good with me. I just know that if I wasn't pointed the right way we would be in a more hopeless situation and I want people to have the same opportunities. DG

PCUK Nurse Jeni
Posts: 984
Joined: Mon Jun 14, 2010 12:30 pm

Re: Failed Whipples - What are my options?

Postby PCUK Nurse Jeni » Thu May 19, 2016 11:45 am

Not a problem at all, Dandygal.

Jeni.

lindat4683
Posts: 1
Joined: Thu Feb 08, 2018 1:09 pm

Re: Failed Whipples - What are my options?

Postby lindat4683 » Thu Feb 08, 2018 6:15 pm

Hi Hobbs
I was diagnosed with pancreatic cancer in February 2017.
I had the investigation operation and I was told the whipple operation could go ahead but in surgery they found the tumour had wrapped itself around the main vein so they closed me up and I was given a year to live that is this month
I was left to heal for 6 weeks and then I was sent to my oncologist. I told him I wanted to go ahead with the Nano knife as I felt this was my only hope. I started chemo and saw the professor in London. In May I had the Nano knife along with chemo for 6 months. In December I had a CT scan which showed no spread and the tumour has shrunk.
The Nano knife I believe has extended my life but I don't know for how long.
I had to wait but keep looking with positivity you can succeed.