A forum to focus on treatment related issues and side effects from treatment

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Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Folfirinox experiences please

Postby Didge » Wed Nov 19, 2014 9:17 am

Ok, result of 3 month scan in and one tumour has disappeared and the other reduced. tumour level markers continue to come down. Minimal side effects from the treatment although he was sick for the first time yesterday on dose 7. He continues to put on weight. I guess we can't ask better than that, can we? Love to all in this surreal world.

RLF
Posts: 227
Joined: Tue Nov 19, 2013 9:30 am

Re: Folfirinox experiences please

Postby RLF » Wed Nov 19, 2014 9:22 am

Wow didge , no you can't ask for much more than that at this stage! That's brilliant, glad he's not having the side effects as badly. Bet he and you are glad that he gave it a try! X

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Folfirinox experiences please

Postby nikkis » Wed Nov 19, 2014 9:31 am

Wow,wow,wow! That is fantastic news, we are so pleased for you.
Lots of love,
Nikki

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Folfirinox experiences please

Postby Slewis7313 » Wed Nov 19, 2014 10:25 am

Amazing news. Gives encouragement to all of us on 'The Fox'. Long may it continue!

Steve
X

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Folfirinox experiences please

Postby sandraW » Wed Nov 19, 2014 2:36 pm

That's really great news Didge, good that he's putting on weight too, Trevor's fluctuates, dropping then coming back up over the 2 weeks but never quite making it by a pound or two. He too was sick and had dreadful stomach cramps, on round 2 of this 2nd cycle, but with a little bit of steroid and double atropine he has been ok since, take care sandrax

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Folfirinox experiences please

Postby J_T » Wed Nov 19, 2014 5:08 pm

Really excellent news Didge, long may it continue!

Julia x

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Folfirinox experiences please

Postby jay » Wed Nov 19, 2014 7:42 pm

fantastic news Didge,
xxxx

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Folfirinox experiences please

Postby Didge » Wed Dec 10, 2014 7:41 am

bf was unable to have chemo last week because of low platelets. This week the same so been put off for another week. V worried that tumours will now start to grow again. Fingers crossed for getting it next week. Any advice, experience?

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Folfirinox experiences please

Postby nikkis » Wed Dec 10, 2014 8:19 am

Sorry no experience of this Didge, as Paul always has very high platelets (not great either as this contributes to his tendency to clot!).
Really hope it goes ahead next week, so you can relax a bit again,
Love,
Nikki

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Folfirinox experiences please

Postby jay » Wed Dec 10, 2014 8:24 am

Hi Didge,hope your bfs platelets have risen,
Jayne
x

jimharding100
Posts: 4
Joined: Thu Sep 18, 2014 7:01 pm

Re: Folfirinox experiences please

Postby jimharding100 » Wed Dec 10, 2014 3:58 pm

Hi Didge

I had very regular delays to my treatment due to low platelets when I was on Folfirinox. It really didn't seem to impact on how successful it was and I came to appreciate the breaks! It worked for me for about 11 months before it apparently seemed to work less well, but this was really due to the disease finding a way around the treatment after being on it for so long. I would guess about half the time I ended up having treatment every 3 weeks rather than two, before they reduced the oxaliplatin levels which seemed to help me tolerate it better.

Hope that helps but if not feel free to shoot over any questions!

Good luck

Jim

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Folfirinox experiences please

Postby Didge » Wed Dec 10, 2014 8:06 pm

Thanks everyone and in particular, Jim. That gives me some encouragement and if things don't improve I'll bring up the subject of reducing the oxailplatin level.

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Folfirinox experiences please

Postby sandraW » Thu Dec 11, 2014 2:04 pm

Hi Didge,

They have removed Trevor's Oxaliplatin from last treatment, no 5 in the cycle. He had 6 earlier in the year and his neuropathy was getting worse in his feet, they have put back the bolus of 5FU instead. The professor is expecting to need to put it back, but wants him to have a rest for a while. Trevor has never had any problems due to platelets, he was delayed one week by low neutrophils, which as he was feeling lousy anyway, was put down to him fighting off some kind of viral infection. Hope he gets his treatment this next time ok, we all worry don't we take care sandrax