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Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Chemo for symptom reduction?

Postby Didge » Sun Mar 02, 2014 9:36 pm

We see each other for couple of days at a time, although some of that is spent in hospital waiting rooms! He has to come down to me when having treatment but at moment can't afford to come at other times. He is not entitled to AA as his GP says it is 'too soon' to class him as terminal. I think you are supposed to be in last 6 months!

sandraW
Posts: 1038
Joined: Thu Oct 31, 2013 5:38 pm

Re: Chemo for symptom reduction?

Postby sandraW » Sun Mar 02, 2014 10:04 pm

I don't think that's true my husband had had surgery and was cancer free when McMillan applied on his behalf, (it has since returned to his liver), and PC is one of the cancers
that automatically qualifies for AA as the GENERAL life expectancy is ONLY 6 months, The gentleman explained that they review every 3 years and of course if you make a spectacular recovery, and miracles do still happen, you would then not qualify anymore.
But as your boyfriend is having financial problems and he is entitled to help please get him to apply, Citizen's Advice, McMillan or directly to the DWP I am sure he will be awarded it, and they can advise him what else he is entitled to. Take care sandrax

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Chemo for symptom reduction?

Postby Slewis7313 » Sun Mar 02, 2014 10:47 pm

I had the conversation with my mortgage protection insurers last year. They said 12 months was a general guide to be classed as terminal. My discussions with the local NHS staff suggested they could put an appropriate document together if I was in need of financial support. I am sure your boyfriend could get something if the right people are approached. It sounds like a call to Macmillan may well help. Shame the GP is not pushing on your behalf now when it is really needed.

Steve
X

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Chemo for symptom reduction?

Postby Cathy » Wed Mar 05, 2014 2:46 pm

Hi

If he has advanced PC he would be entitled to PIP (formerly DLA). This isn't means tested. If you ring for a form the benefits agency will date stamp it and it will be backdated to that date. It can be fast tracked by the GP or oncologist completing a separate form. If there is a terminal diagnosis there is a box that should be ticked which will mean that he would get the maximum entitlement.

If he isn't working or working only very little he might also be entitled to Employee Support Allowance... Again the form that the GP etc fills out for PIP will fast track this as well.

If he qualifies for the max amount of PIP he might also find a blue badge useful and/or a Freedom pass and taxi card (apologies, I don't know if these latter 2 are just for London residents).

I've added a link below you might find helpful. There is a benefit adviser link which should flag up what benefits he might be entitled to.

https://www.gov.uk/browse/benefits/disability

Hope this helps.

Cathy xx

PCUK Nurse Jeni
Posts: 1063
Joined: Mon Jun 14, 2010 1:30 pm

Re: Chemo for symptom reduction?

Postby PCUK Nurse Jeni » Wed Mar 05, 2014 3:03 pm

Thanks Cathy for all your help with the benefits advice.

Jeni.

Fifi

Re: Chemo for symptom reduction?

Postby Fifi » Wed Mar 05, 2014 3:17 pm

Yes, thanks Cathy.

My dad is having trouble getting benefits. They are sending out so many forms for him, and not sending him any money. I will pass this on.

Leila x

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Chemo for symptom reduction?

Postby Didge » Tue Mar 11, 2014 10:45 pm

Well we have tried to get the 'automatic' benefit which PC sufferers get to no avail. He is classified as locally advanced, borderline metastatic. However, as was pointed out to him today, there isn't a trace of cancer which can be detected at the moment. This is of course good news. And his eating has finally returned to normal even though he has only managed to complete one cycle of chemo due to the constant infections. However, churlish though it may sound, the enormous stress of having hardly any money, not able to pay bills, buy food, put fuel in the car to get to his appointments, never mind any of the small luxuries which make life a little more bearable in a dire situation like this, is very hard to bear!

sandraW
Posts: 1038
Joined: Thu Oct 31, 2013 5:38 pm

Re: Chemo for symptom reduction?

Postby sandraW » Tue Mar 11, 2014 11:19 pm

I m so sorry, that is so unfair, we just called into the Mcmillan health care at our local hospital specialist centre, and were chatting to one of the specialist nurses there when he
asked if we had applied for attendance allowance, and a blue badge. When we said no, he just filled in the form for us, he hadn't even looked at Trevor's notes, as I do think they have access to them, Trevor signed them and that was it.It is so wrong, like you say he has more than enough on his plate without financial worries,suffering from this dreadful disease is bad enough, without added problems. I am glad he is eating better now
and hope he continues to feel well and that there continues to be no trace of disease. lets hope he can get back on his chemo soon, take care sandrax

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Chemo for symptom reduction?

Postby J_T » Tue Mar 11, 2014 11:24 pm

Hi Didge
I find this diagnosis a bit confusing. Your bf is locally advanced? Locally advanced pc? Ray's initial diagnosis was locally advanced pc and it was the oncologist who told us about the DLA which you get under special rules if you are deemed terminal (not expected to live beyond 6 months I think it says). Ray survived for 7 and still got the DLA, I think others got it for longer but no doubt they will correct me if I'm wrong! Have they given him any kind of prognosis? Have you been in touch with Macmillan? They know all about this stuff too and ours filled out the forms for us. By whom has it been refused? I would keep pursuing it if I were you, as you say travelling expenses etc can be costly.

On the other hand great news that your bf's appetite has returned, that is good and I hope that continues!

Julia

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Chemo for symptom reduction?

Postby Cathy » Wed Mar 12, 2014 12:25 am

Hi

It does say 6 months on the form but who can say when filling out the form? I think it's just a way of fast tracking it. Jonathan got his DLA for 13 months. My personal advice would be to apply, there is nothing to lose by doing so.

Cathy xx

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Chemo for symptom reduction?

Postby Didge » Wed Mar 12, 2014 8:46 am

Thanks all! Yes I think he is going to apply anyway. His cancer was diagnosed as locally advanced but his brilliant surgeon managed to get it all out with clear margins, although lymph nodes were involved. However, part of his stomach had to be removed along with spleen and adrenal gland. So the overall prognosis is not good - is it ever?! Thanks for your support and guidance as always!

InfoForMum
Posts: 332
Joined: Mon Aug 19, 2013 12:01 pm

Re: Chemo for symptom reduction?

Postby InfoForMum » Wed Mar 12, 2014 8:17 pm

Just to chuck something in. My mum asked about PIP and as she gets a pension she was told she couldn't have it. She was given some form to do with carers allowance. We took that at face value. Seems hard given many sufferers are over 65. My info could well be poor, so don't rely on it!

I hope you get things sorted out Didge. You're right and don't apologise, complications in life medically or financially or emotionally don't help when this enormous fight is going on so take care and best wishes to him.

Sarah