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PCUK Nurse Rachel C
Posts: 61
Joined: Wed Jan 14, 2015 4:25 pm

Re: Creon enzymes

Postby PCUK Nurse Rachel C » Tue Jul 19, 2016 1:17 pm

Dear All,

Sones and RMM67, I am sorry to hear about your recent experiences about your CREON being taken away, whilst you have both been in hospital. I think this again (and unfortunately) demonstrates the lack of understanding in relation to CREON and how it should be taken. RMM67, I am pleased that you were able to get the nurse looking after your mother to be more accommodating, but I’m sure this must be a common problem…unfortunately.

We are aware that the NHS does need to have strict policies and procedures in relation to 'the safe administration of medicines' and yes, these policies are there to protect all patients, however, as we are all fully aware, CREON is an enzyme replacement and not a medicine, so it should not be needed to be locked away.

I guess as a way forward, if this was to happen again to anyone, would be to ask to speak with the Ward Manager and potentially also ask for the involvement of the ward pharmacist.

It would be pertinent to highlight:

CREON is an enzymes replacement and not a medication. I know that we are stating the obvious here, however, depending on the type of ward that you (or a loved) on is on, may very well on their level of knowledge or experience in relation to CREON.

Also highlight the potential effects for you, should you not receive your CREON with your food and how this could be avoided, if you were to keep your CREON in a bedside cabinet.

Ask if the hospital has a policy on ‘self-administration of medications’. Some hospitals do have policies and procedures in place, whereby patients can still take or ‘self administer’ their own medication and a locked cabinet is part of the bedside locker to facilitate this.

Ask the ward staff (in the nicest possible way), if they can guarantee, that your CREON will be administered exactly when you need it? If not, since it’s not medication, that you are more than happy to keep it safe in your bedside locker, for their convenience.

As I mentioned above, the NHS does need to have policies and procedures in place to protect patients, however, if these are at the detriment of yourselves or your loved ones, then it is certainly worth challenging them.

I do think that by raising this as an issue, will hopefully in turn raise awareness, open discussion and debate at the clinical bedside (ever the optimist!) and hopefully change practice!

Thank you everyone for posting and do keep sharing your experiences!

Rachel
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: support@pancreaticcancer.org.uk
support line: 0808 801 0707