Search found 825 matches

by Didge
Sun Jul 16, 2017 8:48 pm
Forum: Patient Experience Forum
Topic: Mum of 42 recently diagnosed inoperable PC
Replies: 315
Views: 167592

Re: Mum of 42 recently diagnosed inoperable PC

Tony thanks so much for coming back and letting us know what happened. Wonderful that Ruth could be laughing and chatting on her last day and it must be some comfort that she did not have a long drawn out passing. Sending you lots of love for the road ahead xx
by Didge
Sun Jul 16, 2017 2:51 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 268811

Re: Thanks for sharing your experiences . . .

Ah Rob lived close to Silverstone and was an F1 fanatic. It would be his birthday tomorrow. Glad everything seems calm right now. I never found a cellist so we will probably have to manage without. I think someone is actually bringing a ukulele x
by Didge
Sun Jul 16, 2017 9:06 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 268811

Re: Thanks for sharing your experiences . . .

This disease has so many twists and turns, many of them puzzling. But anyone who can devour a large meal is in a relatively good place on this journey. Is he in a watch and wait period now? Or is he just having a break from chemo with a planned restart? I do hope he enjoys the men's finals today and...
by Didge
Wed Jul 12, 2017 2:47 am
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 268811

Re: Thanks for sharing your experiences . . .

Middle of the night greetings Mo! Glad to hear about the golf. And the tennis! Still getting used to Wimbledon starting a week later so that my birthday this Friday will be men's semi finals day, not that I'm complaining. My daughter's wedding is in 2 weeks and I've still not sorted out the music I'...
by Didge
Mon Jul 10, 2017 11:30 pm
Forum: Advanced pancreatic cancer
Topic: Experiences without treatment
Replies: 4
Views: 9104

Re: Experiences without treatment

Hello Anthony, Marmalade's husband did not have treatment and I believe outlived his prognosis. I was trying to find her posts but they seem to have disappeared at least on my phone! I am sure there are others who have decided on no treatment so hopefully you will get some informative replies. Meanw...
by Didge
Sat Jul 08, 2017 9:05 pm
Forum: Ask the nurse
Topic: Whipple imminent, mass in head of pancreas - is this still classified as cancer
Replies: 12
Views: 12565

Re: Whipple imminent, mass in head of pancreas - is this still classified as cancer

Hi there. Great that they can operate but as far as the form is concerned you need to tell your work that you won't know until you get the report after the op. Good luck for a speedy recovery and glad you have some good friends on hand. Plus us of course! X
by Didge
Sat Jul 08, 2017 8:55 pm
Forum: Family, friends and carers
Topic: New diagnosis
Replies: 25
Views: 21501

Re: New diagnosis

One thing many of us have learnt is that you can go from believing it is your partner's last days or even hours to a relative period of ok lasting weeks or months. So many things can affect how they are apart from the cancer. Infections, blood sugar levels, ascites etc etc. There are constant unpred...
by Didge
Fri Jul 07, 2017 11:17 pm
Forum: Family, friends and carers
Topic: New diagnosis
Replies: 25
Views: 21501

Re: New diagnosis

It's possible that gemcitabine and abraxane could work better if the folfirinox hasn't worked. Different chemos work for different people. It's not quite so fierce in terms of side effects although again that is an individual thing. My partner tolerated folfirinox quite well but couldn't tolerate ge...
by Didge
Wed Jun 28, 2017 10:54 pm
Forum: General chat
Topic: What shall I do
Replies: 7
Views: 11782

Re: What shall I do

Hi there. I am going to stick my neck out here and say go with your consultant's recommendations as long as he is an expert in his field as others have mentioned. I note that you have not had a biopsy but your consultant must have a reason for thinking that you will develop pancreatic cancer and it ...
by Didge
Sun Jun 18, 2017 1:07 pm
Forum: Family, friends and carers
Topic: Thanks for sharing your experiences . . .
Replies: 759
Views: 268811

Re: Thanks for sharing your experiences . . .

Rob hated soup and told the hospital staff. Unfortunately it hadn't been communicated to the poor lady who cheerfully asked him if he'd like some soup after his op. I cringed with embarrassment when he bellowed for the whole ward to hear, "SOUP!! I HATE SOUP!!" to be fair he was still woozy with mor...
by Didge
Sat Jun 17, 2017 7:46 am
Forum: Treatment & side effects
Topic: Ascites
Replies: 4
Views: 7784

Re: Ascites

Hi there. The only way I know to manage it is to drain it, regularly if necessary. X
by Didge
Fri Jun 16, 2017 12:50 pm
Forum: Family, friends and carers
Topic: Hello
Replies: 110
Views: 79232

Re: Hello

Vee I am sorry to hear your news but as you say his torment is over and I hope that will be of some comfort. Thinking of you x
by Didge
Fri Jun 16, 2017 12:47 pm
Forum: Patient Experience Forum
Topic: Carls story
Replies: 402
Views: 214760

Re: Carls story

Sending you lots of love for the final days. You and Carl have been so inspirational to so many people. It sounds as if Carl is peaceful but I know how hard and surreal these last days are for the partner so you will be constantly in my thoughts xx
by Didge
Wed Jun 07, 2017 6:47 pm
Forum: Family, friends and carers
Topic: Nina's Dad
Replies: 57
Views: 46065

Re: Nina's Dad

Hi Nina. From where I'm standing you need to distance yourself emotionally from your mum in the grieving process. It seems that you are resenting your mum from not moving on because you don't feel able to if she isn't. And that is causing the resentment. So do your own thing, start enjoying your lif...
by Didge
Mon Jun 05, 2017 10:52 am
Forum: General chat
Topic: Pancreatic Cancer worry
Replies: 44
Views: 43963

Re: Pancreatic Cancer worry

As far as I am aware they would be very pale and floating.

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